Lewy Body Dementia with Parkinson

Welcome, @bobkat1065. Does your dad have Lewy body dementia? Are you his main caregiver?

Hi there yes they think he does sadly …. He had a bad fall on Aug 13 th with a traumatic eye injury and the anesthesia has advanced him now to total care…. Me and my mom are his main caregivers

Hello @bobkat1065

I am sorry to hear of your dad's fall and surgery that advanced his dementia. Did your dad have a Parkinson's diagnosis prior to his fall?

How are you and your mom doing with this type of 24/7 caregiving? Do you feel that you have enough support?

Hi yes my dad has Parkinson’s as well ….our family is supportive but sadly most live far away or work …. I am blessed to be working at home so it works for us

Hello again @bobkat1065

I am glad that your situation allows you and your mom to be there for your dad.

On Mayo Connect, we also have a Caregiver's Discussion group that you might find helpful. Here is the link to that discussion, https://connect.mayoclinic.org/group/caregivers/ @IndianaScott is the mentor for that group.

Have you looked into community resources that may be available? Perhaps respite care or assistive devices may be available.

Thanks so much

I do have a question my dad had a terrible fall with eye trauma and had emergency surgery the anesthesia really advanced his Parkinson’s he is now chair/bed bound ….. two times he has had syncopated episodes while we try to walk him with assist ….. is this common? He doesn’t eat or drink as much or nearly enough it’s just scary to see

Bob, your question about how much activity your dad can safely do and if assisted walking is causing syncopated episodes is something you should ask your dad’s doctor about.

It’s not uncommon for people who are chair/bed bound with dementia to not eat or drink very much. For most of us, caregiving is intertwined with nurturing with food.

You might find these nutrition questions and answers helpful:
https://www.virtualhospice.ca/en_US/Main+Site+Navigation/Home/Support/Support/Asked+and+Answered/Nutrition.aspx
How is your dad doing? Is he home or in the hospital?

My wife has Parkinson's and Lewy Body. Diagnosed with Parkinson's at Vanderbilt University in 2017 and Lewy Body at Mayo in 2019. My biggest concern right now is the frequent hallucinations. I have to be very careful how I react when she tells me she sees all of the people in the lake behind our house and walking in our yard. I do not want to tell her that there is no one there but I do want to be able to put her at ease and to relax.

Any suggestions or literature on this subject??

He is home his Drs have stopped seeing him d/t he is on Hospice at home