C. difficile – Are your guts ever normal again?

Posted by sue6408 @sue6408, Jan 27, 2019

Does anyone know any body that has recovered from c.diff (guts back to pre-c.diff status ) . I have been negative for a year and still have bloating every time I eat anything and sporadic diarrhea. I need maternity clothing to eat and be comfortable. I have 0 appetite since I was initially infected.I am on creon 36,000 . this helps some what with bloating,I take papya&pineapple enzymes not helping, and floraster 2xday not sure about that.I have tried the FODMAP diet, I avoid many foods on that diet. I am seeing an RD, just finished an elimination diet with her. If I eat I bloat there for I am. Bottom line...are my guts ruined forever ?

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@lacy2 Until I took clindamycin for a tooth abcess, I had not been on any medications for years! Right now, I don't take anything but vitamins and probiotics. So far, so good.

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@lacy2 Out of curiosity, how is the covid19 situation where you are? I am in the US, in New Jersey, and it's been a long, long recovery.

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@lacy2 Wow! Terrible! I have been vaccinated but who knows what's to come? I remember my Mom lived through the Spanish flu epidemic but she never wanted to talk about it. Now I know why. If this ever goes away, I don't want to ever remember it. Take care of yourself!

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Profile picture for femalegolfer @femalegolfer

@ngorman25 , if FMT is 90% effective, why are we bothering with more antibiotics? I don't understand why Dr's won't just go that route after one fail of antibiotics? I am on my first round of vanco after being diagnosed on Wednesday, but sadly I lived with Cdiff for the last 8 months or so and never went to the Dr. I would have bad flare ups at times, like when I had strep and was given antibiotics, but I never shared how my bowels were affected with Dr., shame on me I know. So I'm praying that this 10 day treatment will bring me back to normal because I'm so tired of feeling bad. Clindamycin needs to be banned!!

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I total agree that Clindamycin should be banned... A lot of dentist prescribe this and it causes C-Diff in most people.. The FDA should ban this drug!!

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Profile picture for minge @minge

I total agree that Clindamycin should be banned... A lot of dentist prescribe this and it causes C-Diff in most people.. The FDA should ban this drug!!

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@minge Here's what I think. Whoever produces vancomycin would be out of business! If they gave you the fmt after the first round of vancomycin that didn't work, then we wouldn't need vancomycin! It's all about the money! Big pharma doesn't care about your health. They only care about the money.

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Profile picture for ngorman25 @ngorman25

@minge Here's what I think. Whoever produces vancomycin would be out of business! If they gave you the fmt after the first round of vancomycin that didn't work, then we wouldn't need vancomycin! It's all about the money! Big pharma doesn't care about your health. They only care about the money.

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@minge Also, I wonder what all the vancomycin I took is doing to my body. That remains to be seen.

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Profile picture for ngorman25 @ngorman25

@minge Also, I wonder what all the vancomycin I took is doing to my body. That remains to be seen.

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Did you try Dificid or fidaxomicin ?

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Profile picture for minge @minge

Did you try Dificid or fidaxomicin ?

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@minge My gastroenterologist told me after the 2nd round of vancomycin that if it didn't work, fmt would be done next. At that time, I did not know about dificid or fidaxomicin.

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Also, do not assume that ongoing diarrhea means that c diff is still present unless you are being tested regularly. My husband had to tell his GI doctor after six months that he refused to take any more antibiotics. The doctor finally prescribed cholestyramine powder for off label use. He started with multiple doses a day and gradually reduced it it to zero. The binding properties of cholestyramine finally stopped the diarrhea.

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