Probiotics for MAC, MAI, MABS: Do you take them daily?

Posted by anniepie @anniepie, Sep 3, 2021

I knew that good Probiotics are needed if you take antibiotics. And most of us with MAC, MAI or MABS etc take the Big 3 or other antibiotics for a long, long time.

But I didn't realise how important Probiotics could be for preventing virus infections in us, like the Flu virus, viral Pneumonia....or even the Covid19 virus.

Research (https://www.medicalnewstoday.com/articles/325651#Antibiotics-leave-mice-vulnerable-to-the-flu) has shown that:
..."80% of [those] with healthy gut bacteria survived the infection"..... But "of [those] who had previously received the antibiotic mix, only one-third [33%] survive" and recover from the viral infection....

That reduces the risks of viral infection by less than half !

The scientists doing this study also found 2 more important things:

* "gut bacteria drive interferon signaling, 'telling' the lung cells to react to the virus, stopping it from replicating, and making survival and recovery more likely"

* if the gut bacteria destroyed by antibiotics are replaced with good Probiotics, "this brought interferon signaling back to normal and reestablished [viral] resistance in the lungs"....

So all of us with NTMs who are on the Big 3 or other antibiotics should probably be taking good Probiotics every day. And probably continue this even after any negative sputum tests.

Have any of you been taking good Probiotics every day ? Even after any clear sputum tests ?

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

@thumperguy

At risk of repeating myself, I eat a bit of my own Kimchi ferment most every day with at least some confidence that it delivers a sufficient load probiotic.

Jump to this post

Hello,
Sorry for the question,but,how you make your own Kimchi ferment ?

REPLY

The current batch is 2 heads green cabbage, 3 rather large chopped green onions with tops, red Bell Pepper cut to small pieces, perhaps a third of a cup.
Process cabbage to approx. consistency of Cole Slaw. Transfer to a large mixing bowl. Add 1-2 tbls. Course Sea salt (mine happened to be ALESSI brand. Morton’s Course Kosher works equally well.
Knead the mixture and be fascinated as, with a little help from you, chemical magic unfolds, soon yielding a soggy mass (not mess). Mix in a tablespoon of Paprika and a sprinkle or two of powdered Cayenne pepper (to taste), and some Caraway seeds. Let it rest for a few minutes then spoon into quart Mason jars, compressing the mixture as you go. I usually stuff a leftover cabbage leaf into the jar to top off the mixture but this isn’t crucial. Cap loosely and set aside out of direct sunlight. After a week I transfer to the fridge and soon begin to cheat by taking a smidgin’ a bit early, though I understand that it continues to be active, but at a slower pace I’d guess. Don

REPLY
@thumperguy

The current batch is 2 heads green cabbage, 3 rather large chopped green onions with tops, red Bell Pepper cut to small pieces, perhaps a third of a cup.
Process cabbage to approx. consistency of Cole Slaw. Transfer to a large mixing bowl. Add 1-2 tbls. Course Sea salt (mine happened to be ALESSI brand. Morton’s Course Kosher works equally well.
Knead the mixture and be fascinated as, with a little help from you, chemical magic unfolds, soon yielding a soggy mass (not mess). Mix in a tablespoon of Paprika and a sprinkle or two of powdered Cayenne pepper (to taste), and some Caraway seeds. Let it rest for a few minutes then spoon into quart Mason jars, compressing the mixture as you go. I usually stuff a leftover cabbage leaf into the jar to top off the mixture but this isn’t crucial. Cap loosely and set aside out of direct sunlight. After a week I transfer to the fridge and soon begin to cheat by taking a smidgin’ a bit early, though I understand that it continues to be active, but at a slower pace I’d guess. Don

Jump to this post

Thank you for the easy recipe! We are both big fans of the kimchi at our local Korean restaurant, and my husband's family always made huge crocks of sauerkraut, which we have no room to do. This sounds like a great option! Is it OK to set it on the shelf in a cupboard, or does it require some light?
Sue

REPLY
@sueinmn

Thank you for the easy recipe! We are both big fans of the kimchi at our local Korean restaurant, and my husband's family always made huge crocks of sauerkraut, which we have no room to do. This sounds like a great option! Is it OK to set it on the shelf in a cupboard, or does it require some light?
Sue

Jump to this post

Sue, You're probably getting something much closer to the "real McCoy" by patronizing a Korean place. I get the impression that Korea is sorta the original "hotbed" of Kimchi. And the "real thing" included shrimp and no tellin' what else. Does your local source include anything that was once animated?
I'm unaware if it requires light. It's not getting any at may place, definitely after I put it in the fridge.

Good eatin', (and good breathin') Don

REPLY
@sueinmn

Hmm...I knew it was important to use probiotics while taking the Big 3 (it helped modulate the awful gut issues I had with those drugs). I know that whenever I am prescribed antibiotics I should add probiotics. And I have usually remembered to start my probiotic regimen for a while whenever I have gut issues.

But this is a new idea for me, so I did what I always do and started looking for scholarly articles on the subject. The reason I looked further is that Medical News Today is essentially a "sound byte" - a quick, short reference to a new or emerging medical topic, meant to pique your interest. The articles are short on details - about both the study and the conclusions, so more reading is necessary.

Here is one highly technical article I found, summarizing the findings of dozens of trials in mice, children and adults: https://www.mdpi.com/2304-8158/10/1/130/pdf

What I learned - Several studies showed increased defensive cells after trials with highly specific probiotic strains. A few reported decreased incidence of a specific virus (eg Influenza A) in a treated population, again with specific strains. Some were inconclusive. Few of the probiotic strains are included in significant quantities in commonly available probiotic blends.

My takeway - Probiotics may increase our ability to mount an immune defense against viruses, but figuring out which one to take, how much and for how long, still needs more study. I will continue to take probiotics that contribute to gut health when I need them, but wait for more guidance as far the contribution to immune health.

Does anyone else use probiotics daily?
Sue

Jump to this post

I love this group! Sue (I want to grow up to be like you🧡) your mind, heart, and research keep us straight during this journey with MAC….thank you. Here are my 2 cents…

Have always believed in probiotics…even before they became branded and marketed (was a modern hippie of the 70s and worked in a health food store for pocket change). I do believe my overall health for 40 plus years as an adult taking probiotics proves the gut/health relationship (because I have some horrible family history and genes to ameliorate upon); in spite of this acquired villain MAC, and some undiagnosed “most likely “ connective tissue issue….I am really strong & healthy.

I found most my faith is guarded well by this UK producer…Optibac Probiotics. They stand by not all probiotics address everything equally. They…as our ID docs firmly warn us to treat the “specific kind” of invader MAC…the specific species/kind. Optibac also warns that the system/organ affected merits specific kinds of probiotics. Different strains for different symptoms, ailments, issues. They offer good science, support from nutritionists/scientists/ research/ trials. All can be found on the website. I even communicated with staff regarding the FedEx delivery…time…heat…transport ..etc. They responded to my email over night and reassured my doubts on safe delivery of products.

I presently take one type for digestive issue and another to address my immune system. Both help me stay at my optimum, I also consume plant based diet and fermented foods…not to mention my boiled water regimen (lots of water).

So, I am a firm supporter of probiotics; just caution all to always back up claims with the best available research, manufacturers, and testimonials.

Stay strong and well.
Regina

REPLY
@cmi

I love this group! Sue (I want to grow up to be like you🧡) your mind, heart, and research keep us straight during this journey with MAC….thank you. Here are my 2 cents…

Have always believed in probiotics…even before they became branded and marketed (was a modern hippie of the 70s and worked in a health food store for pocket change). I do believe my overall health for 40 plus years as an adult taking probiotics proves the gut/health relationship (because I have some horrible family history and genes to ameliorate upon); in spite of this acquired villain MAC, and some undiagnosed “most likely “ connective tissue issue….I am really strong & healthy.

I found most my faith is guarded well by this UK producer…Optibac Probiotics. They stand by not all probiotics address everything equally. They…as our ID docs firmly warn us to treat the “specific kind” of invader MAC…the specific species/kind. Optibac also warns that the system/organ affected merits specific kinds of probiotics. Different strains for different symptoms, ailments, issues. They offer good science, support from nutritionists/scientists/ research/ trials. All can be found on the website. I even communicated with staff regarding the FedEx delivery…time…heat…transport ..etc. They responded to my email over night and reassured my doubts on safe delivery of products.

I presently take one type for digestive issue and another to address my immune system. Both help me stay at my optimum, I also consume plant based diet and fermented foods…not to mention my boiled water regimen (lots of water).

So, I am a firm supporter of probiotics; just caution all to always back up claims with the best available research, manufacturers, and testimonials.

Stay strong and well.
Regina

Jump to this post

Thank you Regina - Be careful or I might get a swollen ego!
Thank you for your information about specific probiotics. I have access to a wide variety through our local coop, and choose different ones each time, as I also have lung, autoimmune and inflammatory issues, as well as an abysmal family history.
@thumperguy Don - I wasn't looking for authentic, just easy to do at home. Yes, their kimchi contains dried shrimp. I will omit is at home.
Sue

REPLY
@thumperguy

The current batch is 2 heads green cabbage, 3 rather large chopped green onions with tops, red Bell Pepper cut to small pieces, perhaps a third of a cup.
Process cabbage to approx. consistency of Cole Slaw. Transfer to a large mixing bowl. Add 1-2 tbls. Course Sea salt (mine happened to be ALESSI brand. Morton’s Course Kosher works equally well.
Knead the mixture and be fascinated as, with a little help from you, chemical magic unfolds, soon yielding a soggy mass (not mess). Mix in a tablespoon of Paprika and a sprinkle or two of powdered Cayenne pepper (to taste), and some Caraway seeds. Let it rest for a few minutes then spoon into quart Mason jars, compressing the mixture as you go. I usually stuff a leftover cabbage leaf into the jar to top off the mixture but this isn’t crucial. Cap loosely and set aside out of direct sunlight. After a week I transfer to the fridge and soon begin to cheat by taking a smidgin’ a bit early, though I understand that it continues to be active, but at a slower pace I’d guess. Don

Jump to this post

Thank you for your healthy recipe.I’m going to make it today.

REPLY

My 88 year old mother has MAI. What probiotics would you recommend? She takes 2 of the antibiotics and aryicase replaced rifambin because she had horrible side effects.

REPLY
@almap

My 88 year old mother has MAI. What probiotics would you recommend? She takes 2 of the antibiotics and aryicase replaced rifambin because she had horrible side effects.

Jump to this post

My Son has dealt with GI distress and seems to get relief with “Jarrow” Jarro Dophilus Probiotic + Prebiotic

REPLY
@thumperguy

My Son has dealt with GI distress and seems to get relief with “Jarrow” Jarro Dophilus Probiotic + Prebiotic

Jump to this post

Thank you, I will look into it.

REPLY
Please sign in or register to post a reply.