Gastritis, Esophagitis, GERD , small Hiatal hernia , diverticulosis

Posted by rozy288 @rozy288, Jun 5, 2021

I am suffering 7 years with chronic digestive disorders , that take me out every day and night . I have Chronic Gastritis, Esophagitis, Class B GERD , small Hiatal hernia , diverticulosis. The worse thing is , I deep wet beach what tastes like sewer water 2000-3000 x a day/ night . My gut can’t handle any kind of food . It just constantly churns and is so loud , non stop . I live on Ultra Pepto . I’ve tried everything under the sun , RX wise , holistic wise , diet and elimination wise . Had so many tests done ✅. Even did acupuncture and 3 sessions of hypnotherapy. 6 Gastro Drs , in 2 states . I’m not celiac and no h pylori . I Eat small and healthy when I can eat . No fast food , no caffeine , low sugar ( just fruit) low dairy . Tried Keto and Gluten free . I’m on waitlist for Mayo Clinic in Jacksonville 6 weeks now . I’m a medical mystery and it’s now getting to me emotionally. I can’t lead a normal life . So much I want to do and I’m always sick . No Dr. has helped yet . I pray daily for relief of symptoms. Even for a day or two of relief. I’m desperately seeking and tried everything they make for gut health on Amazon. Today I will start on antidepressant . I’m sick if I eat or don’t eat and have empty stomach. We rarely go out to lunch and never to dinner . Just cook at Home . My poor body is getting weary of this . 7 years taken away and counting .
Thanks, Rosemary

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The same insurance company does not like you going to a specialist. It has been as if they put up roadblocks for you not to see a specialist. This is a HMO with this insurance. Your primary care doctor has to refer you to a gastro doctor. I cannot count how many times and ways I have tried to help myself with this insurance company, only to get worse. Good luck with that! My last primary care doctor said "No." She would treat me with high blood pills, cholesteral meds, and pills for anxiety. My next step is to switch primary care doctors and hope for the best outcome. Perhaps, he will refer me to a spcialist.

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Profile picture for annie2 @annie2

I hate to see any of us suffering with whatever we have going on. I can't say what it is as the doctors simplify the diagnosis too much. I had thought that this upcoming scope was a Bravo procedure but I learned later on that it is not. Just an endoscopy with a few biopsies to be taken. Same old, same old. I don't expect anything constructive to come of it, but trying to remain somewhat optimistic. Someone on a post commented that nothing can be done for my symptoms except a strict acid watchers diet. That is so depressing to me and not helpful in my current state of mind. I think it ironic that most people hope for no significant findings when they have a procedure. Sadly, we hope they will find something so at least we know what we're dealing with. All the best to you when you have yours done. Mine is Thursday and I will post results one way or the other. In the meantime, prayers for all of us who struggle.

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Let me know how you come out at the Mayo Clinic.

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That was me and I made the decision to have Toupet’s Fundoplacation surgery as the PPI’s stopped working. I am eight weeks out and regretting it. I was readmitted a week after surgery for uncontrollable vomiting and dehydration. While things have improved some I still vomit daily (not from the stomach from the esophagus). It could be from food or even water. I barely eat and have lost so much weight. The surgeon said it will get better we’ll see.

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Profile picture for saygirl @saygirl

I have some type of stomach condition, too. I don't know what is wrong. I am just wasting away, too.

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I am in that boat…over the years of pain & tests & scans & tests..(cuz that’s ALL Dr’s want to do) I have no answers, no cure, nothing ! I just had a reminder yesterday from another GI who wants an ab scan..I guess just to put next to all my other scans. RIFICULOUS
Not to mention, I really don’t relish even living like this. I have no life.

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Rozi, I’m not ABSOLUTELY sure, but maybe 80% sure…that Pepto isn’t really good for your gut

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My gastroenterologist recommended it for me.

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Profile picture for Lucy Toddi @lucytodd

My gastroenterologist recommended it for me.

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Hello @lucytodd,

I see that this is your first post on Mayo Clinic Connect. Welcome!

It would be good to get to know you better. Could you share what type of digestive problem brought you to Connect?

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I have acid reflux issues and have had a severe case, where I ended up in the hospital last Jan. Make the long story short, they found I had Thrush at the back of my throat as well at that time. Now a year and a half later, I am still battling with pain in my mouth and throat and no one seems to know why. I get tossed around between GI and ENT and so was wondering if anyone has experienced anything like this and if there is any solution short of being on pain medication all the time in order to be able to eat.

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Profile picture for Teresa, Volunteer Mentor @hopeful33250

Hello @lucytodd,

I see that this is your first post on Mayo Clinic Connect. Welcome!

It would be good to get to know you better. Could you share what type of digestive problem brought you to Connect?

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Bloating, pain, gas, diarrhea-followed by constipation. Gastroenterologist ordered ct scan followed by total clean out. She said to take Benefiber and every other day miralax. xSymptoms continued. She said cut out milk products and take Pepto bismal as needed. No change. I found out about FODMAP diet and am trying to follow it. This is proving very effective though confusing at times. I’m in the mountains till Oct so have no doctor or nutritionist available. When I get back to Texas I’ll find a nutritionist.

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