Grover's Disease: What works to help find relief?

If you follow results of cilantro starting mid Feb 2019 on this blog you will only see that either fresh or fresh frozen cilantro has benefit. Perhaps I missed reading the positive results from those that did the drops, if so please correct me.
All other treatments of which I have a cabinet full of were a waste of time and money- my GD had a predictable rhythm after the first full year of rash it was six months of dormancy and 6 months of activity. My first year was the most severe with all the front and back torso covered, after that the rash area was smaller, not going up to my neck and the pain and itching a few degrees less, still awful.

I am an avid runner in Texas, evidently years of intense sweating, heat and sun exposure to sailing have created this very frustrating disease. It has severely affected my hands, particularly between my fingers...After numerous visits to my dermatologist and numerous steroid creams I'm done. Last week I had accupuncture and he also dispensed two different herbs (one primarily rhubarb ) and he recommended dandelion tea. I also have started to take vitamin A minimal dosage. Six days have passed my hands are not itchy but very very dry, which is better than blisters and uncontrollable itch. I have also ordered Cilantro drops....this site has helped me to realize other folks have this very irritating disease that prevents you from your lifestyle ....thanks to all of you!

Honestly I haven't read about GD manifesting on the hands. I have 3 forms of eczema, GD is one yet my first form was Allergic Contact Dermatitis, ACD. The rash was on my hands, between fingers and on my palms. Crazy itching! Steroids did help me temporarily with this form, they are a treatment not a cure. Avoidance to allergens is key. It can happen at any age, but often it occurs in middle age like it did for me. ACD is caused by allergic contacts: fibers, preservatives, adhesives, metals and so on. Everyday chemicals and natural ingredients in clothing, dish soap, bedding, laundry soaps, make up, hand lotions, shoes, anything you have contact with. The 5 Day Extended Patch Test identifies your allergens, Google this test if you haven't already had it. The True Test is a common test kit ordered by specially licensed derms and allergists, not all derms are licensed to administer these test kits. It take 5 full days at a cost of $1,500 but is covered by most insurance and Medicare. It's not unusual to have several forms of eczema which have different causes and treatments. Go to dermnetnz.org and search for ACD and look at the mass of photos they have of your rash areas, you may find one that looks exactly like yours. While you are at it look at the GD rash sites, different types of eczema often have different rash characteristics and locations and I'd be surprised to see any GD hand rashes. For you I wondered about sailing if nylon ropes are used as I am allergic to nylon and also varnishes if you have a wooden tiller. For me toxic Dawn dish soap and using protective gloves with elements of rubber triggered my hand eczema ACD. Preservatives in hand lotions triggered me. Even the memory foam pillow and mattress I had were toxic. My body handled these elements for years but finally overreacted and tried to remove them from my body and thus my histamine army was raised, and this raised my inflammation levels all over my body.

my derm dr did tests to confirm I had grovers back in 2015, but after this episode it has affected my hands, arms and legs..where before it was my eyelids and upper torso. .I ordered the cilantro drops from amazon and have another Accupunture appt tomorrow. It has calmed some no blisters on my fingers but just very dry and scaly. Strangely I tried Avocado oil and it seems to calm down somewhat. Its a trial and error where you do not discount any treatment...I refuse to take any oral medications such as steroids

Never mind, I found the answer to my own question. It is recommended that Chlorella be taken 45-60 minutes before Cilantro.
Has anyone ever tried taking food-grade Bentonite Clay either externally or internally to absorb the heavy metals or whatever other nasty substances that the Cilantro is supposedly mobilizing within your body? I just started experimenting with this substance yesterday and am mixing it with water and chugging it down a few hours after I take Chlorella followed an hour later by Cilantro.

Yes you have GD, but you haven't explained if you were tested for other forms of eczema also. If. you have allergic contact allergies you need to identify them. Never assume you only have one form of eczema

I'm an old geezer to and I don't believe I ever said the drops helped, in fact I never read where the drops or tablets helped anyone. If I wrote that the drops helped it was an error and should have written the drops never helped and that's my mistake then and glad you corrected that. If you can tell me the date I wrote that I will go back and correct it. I tried the drops and the tablets and got no benefit. As I just stated 3 hours ago it was only the fresh or frozen that helped about 50% of us. We have lots of smoothie recipes, most of us used about 1/2 a bunch daily with stems included and added fruit, yogurts, almond milk, collagen and so on in the blender. We listed tips to keep it fresh for about 5 days and also freezing tips. If you are being helped by the cilantro drops, keep it up. Perhaps your brand or concentration is superior. As you pointed out the professional really have no idea what the cause it and no idea what treatment put it into remission.
You are also right about there being limited information about GD, they state it is a rare form of eczema, but you can see from this site alone we have many suffering from GD. Facebook is said to have an active site and earthclinic's GD blog is where Kimass 1 read about it helping the first time and that's when she shared with us about cilantro around mid Feb 2019. That information was only about fresh cilantro. Also, you are right about even the causes being iffy. It seem likely since cilantro helps only about 50% of us, at least that's about the results from our Mayo site, we can assume it has different causes. Today more and more is written about heavy metals causing diseases like Parkinson's and Alzheimer's. All I know is that my torso skin feels normal. Even after I went into dormancy after using the cilantro it still took over 8 months for all the residual scabs to loosen up and fall off for good so don't be discouraged. So even free of active GD it takes time to heal. Good luck and hope you keep improving.

Many of us have exacerbations after sweating. I always simply wash with a wet washcloth (any temperature) and dry. Some people use witch hazel (it evaporates easily.) I have taken to using a hairdryer to dry all my creases after showering or any time I'm wet. I find that if I don't do that, I can get quite itchy, with or without a rash. The creases of my body tend to stay damp even after I dry with a towel. That includes the little dip above my clavicle, under my breasts, even though I am very small, where my thighs join my torso and even my butt crack and crotch area (sorry if TMI - it might help someone.) Where there's still a rash (which happens now only occasionally) I use a few drops clove oil mixed with CeraVe cream. Just make sure you wash your hands thoroughly after using clove oil because getting it anywhere on your face or near your sensitive eyes or mouth not fun. When I was in a full blown rash, I used clove oil straight. It burns so good (vs. itching so bad) and made the rash recede. I have posted this before, but insert here for newbies. Now I get an isolated bump in any random place on my body that itches so intensely, it almost feels like a bee sting. The clove oil, straight, makes it go away.