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Lichen Planopilaris...newly diagnosed
Hi, new to the site and new to the diagnosis. Just was hoping to touch base with anyone else that may have dealt with this or be dealing with it. I've had thinning of hair over the years but it would always stop and some would come back, but I would say this "dropping" as I call it has been going on over a year now...I've seen the dermatologist in the past and we never knew what caused it. I was at dermatologist for a completely different issue, no intention of her looking at my scalp, but she did and immediately wanted to take a biopsy. She said the name and said, no, this was a brand new issue, and the biopsy came back as the lichen planopilaris. I just had my first set of scalp injections today. Anyway, if anyone else is dealing with this, would be very interested in treatment plans, etc.
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Yes, I have heard of it but not tried it. Will certainly give it a try. Thank You! Planning to also start an anti-inflammatory diet. I truly need to eliminate some foods I am allergic to but “cheat”. I also forgot to mention I do use a hairmax laser. Always looking to try new things that might help and I try to be optimistic. thanks again.
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1 Reaction@clora is there a specific diet you plan to follow?
I have 4 autoimmune skin diseases and recently the biopsy results showed positive for LPP. I also have Hashimoto's Thyroiditis and sjorgen's syndrome. I am thinking making I have a Mast Cell colection of diseases. Has anyone else been thinking about this? I also have iron deficiency anemia that gets really bad.
My only caveat is if you already have iron deficiency amenia, do not take tumeric. It chelates iron from yout body.
Hello,
I too have lost hair over the years but in the last year started to notice visible bald spots on my scalp.
Dermatologist just sorta blew me off as Alopecia. In desperation I set up an appointment at a Hair
Transplant clinic in another city 3.5 hours away. The doc there was great.....but after looking at my scalp
said he needed to do a biopsy. Two weeks later his early diagnosis was true....lichen planopilaris.
He said I needed to see Derm. Went to a new one. This is my new routine, just started less than a week ago.
1/2 tablet daily of Minoxidil 2.5mg. One Dutasteride capsule 5 days a week, 0.5mg. Topical Mometasone Furoate Solution USP 0.1% 2 to 3 times per week.
Will this help?? Gawd, I hope so. Hair transplant doc said if my dermatologist releases me (whatever that means?) I may be able to have a transplant. But the LPP can still come back.
I am very active and do own a wig but DO NOT want to wear one. Looking for any and all advice from you folks in this very sad little club
Thanks you
Marlene
Hello,
I have been recently diagnosed with LLP and I am so devasted with the news. The treatment plan that I have been given is the Rogain Shampoo & Conditioner (I actually use Bosley), I use Clobetasol .05% Solution (Once a day), Minoxidil Solution 5%, and Doxycycline 100 mg (twice a day). I also get injections about twice a month. So far I haven't seen any radical changes and I am still having hair loss but I fear stopping to use these and lose more hair. I started this journey way too late, I thought it was stress and that my hair would grow back, until my daughter-in-law which is also my hair dresser saw more balding. I am willing to try any idea that can help so please keep posting about success that you may have. Glad to know that I am not the only one!
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1 ReactionHello Amanda, wondering if there is a Lichen Schlerosus group that I cannect with, thanks for your help.
Thank you..I just got dx with LPP and possibly frontal fibrosing..no biopsy yet but two dermatologists have said this to me...it's shocking
Thank you..I just got dx with LPP and possibly frontal fibrosing..no biopsy yet but two dermatologists have said this to me...it's shocking and I'm devastated ..waiting yo see a specialist soon ..hoping for the best, but it's a tough diagnosis to receive.
I just was fx 3 weeks ago. I'll see specialist next Tuesday. Was told LPP mostlikely FFA variant..it's very upsetting ..not sure what,if any, the treatments might be.