Lichen Planopilaris...newly dianosed

Posted by ginyer @ginyer, Feb 17 6:18pm

Hi, new to the site and new to the diagnosis. Just was hoping to touch base with anyone else that may have dealt with this or be dealing with it. I've had thinning of hair over the years but it would always stop and some would come back, but I would say this "dropping" as I call it has been going on over a year now…I've seen the dermatologist in the past and we never knew what caused it. I was at dermatologist for a completely different issue, no intention of her looking at my scalp, but she did and immediately wanted to take a biopsy. She said the name and said, no, this was a brand new issue, and the biopsy came back as the lichen planopilaris. I just had my first set of scalp injections today. Anyway, if anyone else is dealing with this, would be very interested in treatment plans, etc.

Is this the same as lichen planis? I cannot exactly remember the differential diagnosis that the locum tenums (?) rheumatologist gave me. My hair falls out the grows back but is vinstantly shedding at a rate where i NEVER get any growth longer than a shoulder length. What are your other symptoms? I have psoriasis and PsA and have been on biologics for 20 years. I also got a differential diagnosis of Bechet's syndrome at the same time. My ENT and dermatologist are so slow to respond i have yet to get a biopsy to confirm anything.

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@lorrainechavez

Is this the same as lichen planis? I cannot exactly remember the differential diagnosis that the locum tenums (?) rheumatologist gave me. My hair falls out the grows back but is vinstantly shedding at a rate where i NEVER get any growth longer than a shoulder length. What are your other symptoms? I have psoriasis and PsA and have been on biologics for 20 years. I also got a differential diagnosis of Bechet's syndrome at the same time. My ENT and dermatologist are so slow to respond i have yet to get a biopsy to confirm anything.

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I could be wrong as I've just started trying to research the situation, but I think the difference is that the planopilaris is strictly the scalp as opposed to oral, etc. I had had bouts of hair shedding over the years, but it would usually stop..this was so much worse and has been like a year and a half since it got so extreme but I was taking vitamins, etc., that I thought would promote regrowth, but had no idea that is no option with this autoimmune disorder or that I even had an auto immune disorder. it cannot regrow once it is gone with this diagnosis. I have other conditions such as diabetes, etc., but nothing that contributed to this I don't think. I hope you are able to get a biopsy if one is needed…I was lucky that thankfully the dr noticed and acted quickly. I was actually at the visit for an unrelated issue so For that I am grateful.

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what kind of injections? been diagnosed with lichen planopilaris last Sept.Using ratio clobetaso 0.05% on scalp and a bacterial pill but the pill work so been 3 weeks on a new pill. This pill has to have my blood monitored once a month and my eyes checked freqently. I think I would rather have my eyesight rather than my hair.But I will see how things go. I just hate losing my hair.

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what kind of injections? do they help?

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