Lichen Planopilaris...newly diagnosed

Posted by ginyer @ginyer, Feb 17, 2020

Hi, new to the site and new to the diagnosis. Just was hoping to touch base with anyone else that may have dealt with this or be dealing with it. I’ve had thinning of hair over the years but it would always stop and some would come back, but I would say this “dropping” as I call it has been going on over a year now…I’ve seen the dermatologist in the past and we never knew what caused it. I was at dermatologist for a completely different issue, no intention of her looking at my scalp, but she did and immediately wanted to take a biopsy. She said the name and said, no, this was a brand new issue, and the biopsy came back as the lichen planopilaris. I just had my first set of scalp injections today. Anyway, if anyone else is dealing with this, would be very interested in treatment plans, etc.

Interested in more discussions like this? Go to the Skin Health group.

@rashida

@siroisjli thanks! What’s NAC? Salt?

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N-Acetylcysteine my Dr. put me on over the counter.

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@rashida

@siroisjli I just went into the Kiera.com website and the description addresses only hair loss. No mention of it being goos for lichen planopilaris. Have I got the correct website?

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@tsafer

Has anyone recently been disagnosed with Lichen Planopilaris? Would be interested in your results following biopsy and treatment.

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I was diagnosed in January 2021 with 2-biopsies. I had been losing hair for a few years and my original Derm did not feel I needed it as he would refer to my scalp burning as being “angry” due to many chemical allergies. Obviously this was wrong. I am not a candidate for Placquenil. My new Derm had me start with Doxycycline mono 100mg, twice daily for 3 months. Just recently it was reduced to 1-capsule daily. I was also given Clobetosol foam PRN. which temporarily calms the area. Since reducing the Doxy I have had more hair loss. Waiting to hear from my doc. Unfortunately from what I have read and been told there aren’t too many options for me.

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@clora

I was diagnosed in January 2021 with 2-biopsies. I had been losing hair for a few years and my original Derm did not feel I needed it as he would refer to my scalp burning as being “angry” due to many chemical allergies. Obviously this was wrong. I am not a candidate for Placquenil. My new Derm had me start with Doxycycline mono 100mg, twice daily for 3 months. Just recently it was reduced to 1-capsule daily. I was also given Clobetosol foam PRN. which temporarily calms the area. Since reducing the Doxy I have had more hair loss. Waiting to hear from my doc. Unfortunately from what I have read and been told there aren’t too many options for me.

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Hello @clora and welcome to Mayo Clinic Connect. I am sorry to hear that you are struggling and not seeing improvement.

I found this article on lichen planus that may be of interest to you as you explore where to go from here:

– Turmeric – A new treatment option for lichen planus: A pilot study
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3961895/
Like everything, it would be recommended to discuss with your doctor first. Have you heard of Turmeric before?

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@amandajro

Hello @clora and welcome to Mayo Clinic Connect. I am sorry to hear that you are struggling and not seeing improvement.

I found this article on lichen planus that may be of interest to you as you explore where to go from here:

– Turmeric – A new treatment option for lichen planus: A pilot study
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3961895/
Like everything, it would be recommended to discuss with your doctor first. Have you heard of Turmeric before?

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Yes, I have heard of it but not tried it. Will certainly give it a try. Thank You! Planning to also start an anti-inflammatory diet. I truly need to eliminate some foods I am allergic to but “cheat”. I also forgot to mention I do use a hairmax laser. Always looking to try new things that might help and I try to be optimistic. thanks again.

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@clora

Yes, I have heard of it but not tried it. Will certainly give it a try. Thank You! Planning to also start an anti-inflammatory diet. I truly need to eliminate some foods I am allergic to but “cheat”. I also forgot to mention I do use a hairmax laser. Always looking to try new things that might help and I try to be optimistic. thanks again.

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@clora is there a specific diet you plan to follow?

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