Afib - do I just live with it?

Posted by kfox21 @kfox21, May 3, 2021

I am in permanent afib for 18 months. Because my quality of life is good (mild SOB on exertion) I am told to just live with it vs ablation. Is this a good recommendation?

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@squeaker2

I was told by 2 different cardiologists that I would be on medication for the rest of my life. The medication made me feel bad. The third cardiologist who is still my doctor and who I picked out of the phone book, recommended an ablation procedure. He referred me to a Dr. Paul Mounsey at the University of North Carolina hospital in Durham. My a-fib was intermittent and when I went into a-fib, I was so breathless that I had to go to bed. Dr. Mounsey said I was an "ideal candidate" for the procedure and.
so my ablation procedure was performed eleven years ago at UNC by Dr. Mounsey. I take no medicine for this other than an 80 mg. aspirin a day. I also take medicine for my blood pressure but that is all. I am 81 years old and have never had another problem with a-fib.

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I am impressed. I will give some thought about traveling to meet this doctor.

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@squeaker2

I was told by 2 different cardiologists that I would be on medication for the rest of my life. The medication made me feel bad. The third cardiologist who is still my doctor and who I picked out of the phone book, recommended an ablation procedure. He referred me to a Dr. Paul Mounsey at the University of North Carolina hospital in Durham. My a-fib was intermittent and when I went into a-fib, I was so breathless that I had to go to bed. Dr. Mounsey said I was an "ideal candidate" for the procedure and.
so my ablation procedure was performed eleven years ago at UNC by Dr. Mounsey. I take no medicine for this other than an 80 mg. aspirin a day. I also take medicine for my blood pressure but that is all. I am 81 years old and have never had another problem with a-fib.

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Yes you explained your problem very well. You are right in that my cardiologist doesn't have an explanation. What he has been doing is an EKG every month for 3 months. We are now doing an EKG on my 6th month which is coming up shortly. I do have other issues the most damaging one is a slow thyroid. My understanding is that this problem impacts AFIB very much. My thyroid problem is very minor and there is nothing to do about it. I also have sleep apnea which is what I am going to investigate next. I feel I grasp for breath many times when I go into AFIB. I also am considering going to a better cardiologist for a second opinion. None of these things will hurt me but it is a lot of time and money with no guarantee result for AFIB. AFIB has really impacted my life.I have had to cancel so many activities because I just can't function normally. I find this forum very helpful because it helps me understand how I feel. If I could control this condition I would be very happy and am willing to do a lot for that result. I am just not sure I can get rid of it.

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I also have had thyroid problems. I have a goiter which has small growths within that they keep checking to make sure they are not growing. When they get to a certain size I have to have them biopsied. I've only had to get biopsies twice and that was the year of diagnosis and the following year. I've had no more growing for the past four years. It gives me no problem but the only medicine to take for it is Methimazole and one of the possible side effects of Methimazole is atrial fibrillation so taking that is a risk. For a while my thyroid doctor had me on 2-1/2 mgs. of Methimazole and I didn't have any problems with it but I stopped taking it on my own after three years of no more thyroid problems. I have an ultrasound every year to check it. If the growths begin to grow again, I'll go back on the 2-1/2 mgs. of Methimazole. My husband thought I might have sleep apnea because I stopped breathing a couple of times one night when he was reading and I was asleep. Ever since then, I started sleeping on my side which I read somewhere helps. When I wake up I'm still on my side and my husband never noticed anything like that again. It also stopped my snoring.

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@cturner01

I have been in chronic AFIB for over a year now. Had a ablation about 3 weeks ago. My heart went back into rhythm for 1 1/2.days. Been on Amiodarone & Eliquis. Scheduled for another cardioversion this Friday. Praying this time it will stay in rhythm. I am 69.

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Had the cardioversion on Friday. Heart back in rhythm. All meds gone & Amiodarone cut back to 200 mg a day. Still be taking Eliquis. I feel great!!

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Good for you. Wish I were that way. I have persistent CPVT, as part of RYR2, FKTN, GSN, Diabetes, with almost everything "---megaly", including my skull. My blood pressure is dropping, and my tachie is going up, sometimes over 150. Now I have started the shakes again. A few years ago i had them almost every day, but they went away. Now they are back. Some days I have the body shakes and terrible hunger pains which last for days at a time. I even tried Marijuana meds for a brief time, and all I did was wreck the car in our driveway because I could not find the brake pedal. And pain everywhere, with purpura all over my face and toes. I wear a warm stocking cap most of the time, even in 80 degree weather because my heart does not pump enough blood to keep my scalp warm, especially at night.

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@teddyboy

I have been in a fib for 4 years now had 2 cardio versions but did not hold. Been on 325 mg aspirin and going to be starting blood thinner when I turn 66. Trying to decide which one is best, my Pcp gave me eloquent samples but I’m waiting to start taking until I check out the data on which is best.
I don’t feel the aging very much just occasionally at when I go to bed at night.

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Not to upset you but I hope you have a BIG BANK ACCT Or VERY VERY GOOD DRUG INSURANCE. MynDr also gave me a STARTER PACK AND A RX FOR ELOQUIS . I about STROKED OUT @ THE PHARMACY WHEN I FILLED THE SCRIPT ... $800 for 30 days 25mg twice a day .. Absolute INSANITY !!!!!! PART D INSURANCE DON'T want to pay for anything that costs more than an ASPIRIN !!! BIG PHARMA is nothing but a MAFIA ORG> in disguise ...JUNQDAWG

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@phoenix1647

I have had AFIB for many years now. I just had the Watchman FLX device put in 12 days ago. Simple procedure in my case. I am now waiting to do another heart cath to see if I need a stent put in. I am also thinking about doing the ablation procedure. The cath and ablation solution will have to wait for one year. For now, I monitor myself and let my doctors know how I am doing. I completely trust my heart team so doing more procedures will not me a mental issue for me..
Hope your procedure goes well. Keep us posted please.

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I have a great cardiologist who's had good results with the Watchman. I sent a friend to her who's had a few AFIB episodes and she's monitoring his care for now and, if they continue, might recommend the Watchman as she has patients doing very well with it. I'll be interested in reading what you think as time passes and you've lived with it awhile.

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@callalloo

I have a great cardiologist who's had good results with the Watchman. I sent a friend to her who's had a few AFIB episodes and she's monitoring his care for now and, if they continue, might recommend the Watchman as she has patients doing very well with it. I'll be interested in reading what you think as time passes and you've lived with it awhile.

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I am now (Apr 28) at the one year mark with my Watchman. I have had NO problems with the device at all. I still get some very minor AFIB episodes now and then but nothing like I had before. I did not get a stent put in as my doctor said the issue she saw in the lower part of my heart was not that bad and we decided to do a wait and see. I am very happy with my Watchman and my medical team.

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@truus1106

I have permanent atrial Fib - 24/7, ever since an aortic valve replacement when I was 49 (I'm now 77) and I'm doing just fine. I take a few meds; to slow down the heart rate a bit; for my blood pressure; and of course Warfarin. I've had an ablation some 20 years ago which didn't work. Sometimes the fear and anxiety about a problem is worse than the actual problem!

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Thank you for posting! I have been in permanent AFIB for 1 1/2 yrs. It is comforting to know that you have been feeling well for so long in permanent AFIB. I have been on the same meds as you are on also.

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@phoenix1647

I am now (Apr 28) at the one year mark with my Watchman. I have had NO problems with the device at all. I still get some very minor AFIB episodes now and then but nothing like I had before. I did not get a stent put in as my doctor said the issue she saw in the lower part of my heart was not that bad and we decided to do a wait and see. I am very happy with my Watchman and my medical team.

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Thanks for the update. As I noted, a friend may be getting a Watchman in the future and hearing of your positive xperience is good news.

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