Afib - do I just live with it?

Posted by kfox21 @kfox21, May 3 10:30am

I am in permanent afib for 18 months. Because my quality of life is good (mild SOB on exertion) I am told to just live with it vs ablation. Is this a good recommendation?

Interested in responses to your message as I have basically the same situation for 5 months now.

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I have been in a fib for 4 years now had 2 cardio versions but did not hold. Been on 325 mg aspirin and going to be starting blood thinner when I turn 66. Trying to decide which one is best, my Pcp gave me eloquent samples but I’m waiting to start taking until I check out the data on which is best.
I don’t feel the aging very much just occasionally at when I go to bed at night.

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@teddyboy

I have been in a fib for 4 years now had 2 cardio versions but did not hold. Been on 325 mg aspirin and going to be starting blood thinner when I turn 66. Trying to decide which one is best, my Pcp gave me eloquent samples but I’m waiting to start taking until I check out the data on which is best.
I don’t feel the aging very much just occasionally at when I go to bed at night.

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Eliquis. And Afib not aging

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@teddyboy

Eliquis. And Afib not aging

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I am currently 65 will be 66 in November

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I have had AFIB for many years now. I just had the Watchman FLX device put in 12 days ago. Simple procedure in my case. I am now waiting to do another heart cath to see if I need a stent put in. I am also thinking about doing the ablation procedure. The cath and ablation solution will have to wait for one year. For now, I monitor myself and let my doctors know how I am doing. I completely trust my heart team so doing more procedures will not me a mental issue for me..
Hope your procedure goes well. Keep us posted please.

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I don't think you have stated your problem very well. My cardiologist has told me to stay in afib for hours isn't good. My heart went to 209 heartbeats in a minute and sometimes was very low – around 55. He told me both were bad for me. I have had an ablation and I do recommend it. It didn't cure me but I was having afib very frequently and they are much less frequent. You really need to read about this condition more and talk to your doctor as good medical advice is imperative.

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@elegantgem

I don't think you have stated your problem very well. My cardiologist has told me to stay in afib for hours isn't good. My heart went to 209 heartbeats in a minute and sometimes was very low – around 55. He told me both were bad for me. I have had an ablation and I do recommend it. It didn't cure me but I was having afib very frequently and they are much less frequent. You really need to read about this condition more and talk to your doctor as good medical advice is imperative.

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I have permanent atrial Fib – 24/7, ever since an aortic valve replacement when I was 49 (I'm now 77) and I'm doing just fine. I take a few meds; to slow down the heart rate a bit; for my blood pressure; and of course Warfarin. I've had an ablation some 20 years ago which didn't work. Sometimes the fear and anxiety about a problem is worse than the actual problem!

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I have been in chronic AFIB for over a year now. Had a ablation about 3 weeks ago. My heart went back into rhythm for 1 1/2.days. Been on Amiodarone & Eliquis. Scheduled for another cardioversion this Friday. Praying this time it will stay in rhythm. I am 69.

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@elegantgem

I don't think you have stated your problem very well. My cardiologist has told me to stay in afib for hours isn't good. My heart went to 209 heartbeats in a minute and sometimes was very low – around 55. He told me both were bad for me. I have had an ablation and I do recommend it. It didn't cure me but I was having afib very frequently and they are much less frequent. You really need to read about this condition more and talk to your doctor as good medical advice is imperative.

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Like you, I was having very frequent episodes of AFIB, so my cardiology team recommended an ablation. Also like you, I highly recommend it. For two years and 3 weeks, I was free from AFIB episodes! (But NOT "cured" as I have been told AFIB is NOT "curable," but "treatable.") Two weeks ago, I had an episode that lasted about one hour. I contacted my cardiologist the next day and he was quite reassuring and said I should just monitor myself. He mentioned putting me on a ZIO patch and I assumed he said that we'd do that if the episodes continued. Last night, almost exactly 2 weeks from my "first" episode, I had another one which lasted about an hour. I will be informing him of that episode today. You said that after your ablation, the frequency of your episodes of your AFIB was much less, which lead me to believe you were STILL experiencing SOME episodes but much less frequently. I am wondering what your team thinks about this. Have they discussed a second ablation to map out any areas they may have missed during the first one? What have they recommended you do about the ongoing, if infrequent, episodes? Being free of AFIB for those two years was such a joy, I really HAD gotten my life back…..the two recent episodes have left me depressed and very anxious. I am not afraid of having another ablation if my cardiology team deems that best, but I am extremely interested in knowing what your doctors think about the infrequent episodes you have. I hope I have stated my problem well.

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I was told by 2 different cardiologists that I would be on medication for the rest of my life. The medication made me feel bad. The third cardiologist who is still my doctor and who I picked out of the phone book, recommended an ablation procedure. He referred me to a Dr. Paul Mounsey at the University of North Carolina hospital in Durham. My a-fib was intermittent and when I went into a-fib, I was so breathless that I had to go to bed. Dr. Mounsey said I was an "ideal candidate" for the procedure and.
so my ablation procedure was performed eleven years ago at UNC by Dr. Mounsey. I take no medicine for this other than an 80 mg. aspirin a day. I also take medicine for my blood pressure but that is all. I am 81 years old and have never had another problem with a-fib.

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@squeaker2

I was told by 2 different cardiologists that I would be on medication for the rest of my life. The medication made me feel bad. The third cardiologist who is still my doctor and who I picked out of the phone book, recommended an ablation procedure. He referred me to a Dr. Paul Mounsey at the University of North Carolina hospital in Durham. My a-fib was intermittent and when I went into a-fib, I was so breathless that I had to go to bed. Dr. Mounsey said I was an "ideal candidate" for the procedure and.
so my ablation procedure was performed eleven years ago at UNC by Dr. Mounsey. I take no medicine for this other than an 80 mg. aspirin a day. I also take medicine for my blood pressure but that is all. I am 81 years old and have never had another problem with a-fib.

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I am impressed. I will give some thought about traveling to meet this doctor.

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@squeaker2

I was told by 2 different cardiologists that I would be on medication for the rest of my life. The medication made me feel bad. The third cardiologist who is still my doctor and who I picked out of the phone book, recommended an ablation procedure. He referred me to a Dr. Paul Mounsey at the University of North Carolina hospital in Durham. My a-fib was intermittent and when I went into a-fib, I was so breathless that I had to go to bed. Dr. Mounsey said I was an "ideal candidate" for the procedure and.
so my ablation procedure was performed eleven years ago at UNC by Dr. Mounsey. I take no medicine for this other than an 80 mg. aspirin a day. I also take medicine for my blood pressure but that is all. I am 81 years old and have never had another problem with a-fib.

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Yes you explained your problem very well. You are right in that my cardiologist doesn't have an explanation. What he has been doing is an EKG every month for 3 months. We are now doing an EKG on my 6th month which is coming up shortly. I do have other issues the most damaging one is a slow thyroid. My understanding is that this problem impacts AFIB very much. My thyroid problem is very minor and there is nothing to do about it. I also have sleep apnea which is what I am going to investigate next. I feel I grasp for breath many times when I go into AFIB. I also am considering going to a better cardiologist for a second opinion. None of these things will hurt me but it is a lot of time and money with no guarantee result for AFIB. AFIB has really impacted my life.I have had to cancel so many activities because I just can't function normally. I find this forum very helpful because it helps me understand how I feel. If I could control this condition I would be very happy and am willing to do a lot for that result. I am just not sure I can get rid of it.

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