John Hopkins Webinar on transplant recipients and vaccines

Very helpful information, which concerns me.that im.not hearing more from.Mayo itself as to some of these studies. I will.admit I keep hearing the same mantra, "We are following the CDC and WHO recommendations" which is not telling us much. I have always respected the opinion of my Doctors directly but lately it seems they are just quoting the mainstream media as to what to say. Im told we should not listen to erroneous sources but when information is wanted and your primary sources are quiet it makes it hard to not listin to what appears to be good information for people who are some bodies Doctors talk about all aspects of the information available. I'm really having a hard time dealing with the lack of data from Mayo Doctors these days. I just sent a request to my team about getting an antibody test since I did come in contact with individuals who had confirmed covid but after the fact. I did not have any symptoms but based on some of the information out there I could have been asymptomatic and not know it. The response I got was a basic We are following CDC and WHO recommendations and are suggesting all patients follow those guidelines. Which really upset me since I've come to relay on the opinions of my Mayo Doctors not what CDC says. What are we paying them for? It's really got me concerned as to what is driving the current campaign about vaccinations. Oh well I'll just keep to the original advice I received during my transplant. Mask up during virus seasons, wash my hands and take precautions. Until I feel the information im getting is from my doctors and not from the government.

@jerrynord, @kedwards73, @livertrex, @contentandwell, @luckonetj, @nanmargaret, @terry14, @pdennis,

Here is an update from @zon that he posted in the Transplant Discussion: How much covid protection are transplant recipients really getting. NOTE - I did include the updated time correction.

The transplant team at Johns Hopkins is "planning on broadcasting a 1-hour live webinar on Friday, May 14, 2021 at 2:00PM EST to share our findings with you and answer your questions. If you are unable to view the live webcast, please do not worry. The webcast will be recorded and we will share a link of the recording with everyone."

Please register here: https://jhjhm.zoom.us/webinar/register/WN_W2-T8NbVTDWMxEMG2aP3aQ

For those of you that are Kidney recipients from Florida, we have a monthly Education/Support group on Zoom for our patients and Dr Martin Mai has been providing updates for our patients including studies that are being completed with the kidney transplant patients here at Mayo. I would encourage any of our patients to attend. For the other Mayo sites, you could request that your Social Workers have a physician attend and provide an update at their meetings.

Are there studies being done on liver transplant patients?

@bosco17, Yesterday, I viewed the Johns Hopkins Webinar, and they said that information about specific transplanted organs is being worked on now as more and more data is collected and studied. It is still early in the process, and there are other variables such as elapsed time since transplant, medications, specific organ or multiple organ transplant, underlying conditions...to be considered.

If you missed the Webinar, you can see what attendees are sharing here:
https://connect.mayoclinic.org/discussion/how-much-covid-protection-are-transplant-recipients-really-getting/

Yes I saw it and it was just as I warned when I started my blog. Im 13years post liver tx on 500mg cellcept 2x daily and Im not vaccinated as I want to wait until John Hopkins issues more guidance.I really believe that our treatment will be with theraputics eg: monoclonal antibodies The CDC really doesnt care about our group with their reckless actions . Why isnt the Mayo Clinic giving us more guidance???????????????????????????????????????????????

You're so right, @rosemarya. Information about specific transplanted organs with respect to COVID, the vaccine and post-infection recovery is being worked on now as more and more data is collected and studied.

To all:
A small study from Mayo Clinic researchers raises the concern that some transplant patients may have a limited immune response after being vaccinated for COVID-19 with an mRNA vaccine. Their findings are published as a letter to the editor in the American Journal of Transplantation. Read more here: https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-researchers-question-effectiveness-of-mrna-covid-19-vaccines-for-solid-organ-transplant-patients/

Mayo Clinic's COVID research related to transplant recipient continues. Patients will be updated. You can also follow updates on Mayo Clinic News Network https://newsnetwork.mayoclinic.org/

Thank.You and just like my original instructions from transplant 3.5 years ago im so used to the Mask and other protocols I probably would feel weird to take the mask off anyway. I always have looked at the transplant as a gift to extend my life and thank God for it. I guess when you have faced death not much is worse than that anyway. Every day is a gift hence is why we call it the present.
Blessings Everyone
Dana