Anyone had LITT (laser interstitial thermal) Procedure?

@patrassi, I'm so pleased you saw my message. Please note that I removed your personal email from your message. We recommend not sharing personal contact information on the public forum. Feel free to use the secure private messaging to exchange email addresses. I also encourage you to share in the forum for the benefit of others too.

How are you doing Patrassi? How is your son?

Hi ! Thank you for your attention!
My son had another surgery in Brazil September 2019 and he is taking just one medication now and he is seizures free . I am so glad and thankful for his health.
I hope I could help others with our history .
I answered your request in a private message .
Thank you for your attention
Best wishes

Hi @collenyoung, Good Morning
Thank you very much for introducing me to @patrassi. I am already in contact with her :-).
I wish you a nice Sunday!
Kind regards, @santosha

Hi @patrassi
First, hearing that your son is seizure-free makes me smile. I am happy for your son, you and your family.
Thank you very much for your message. I truly believe that people with epilepsy have much to learn from one another through the sharing of experiences. I am so pleased to hear that you are open to share your son's experience with me.
I have written you a private message.
Have a nice Sunday!

Hi @colleenyoung,
Yesterday, I have talked to @patrassi. We had a long and very valuable conversation. Thank you very much again for putting me in contact with @patrassi. If I can be of any help to anyone, today or in the future, please let me know and feel free to contact me. It will be a great pleasure to help!!!
Hi @patrassi,
Thank you so much again for sharing your experience with me and my husband yesterday afternoon. You have given us much comfort and hope at this moment I am preparing myself for the LITT surgery. This is priceless! MUCH GRATITUDE for your time and help.
Kind regards,
@santosha

I will be always available to talk to you @santosha . I am glad it was a helpful talking. Best wishes for you. I really hope you could be seizures free soon!
With love
Patrícia

I have LITT surgery scheduled at the Mayo on June 30th. Can anyone tell me about what to expect for the recuperation time and potential symptoms? My epileptologist is insisting that I'll only be in the hospital for one night. That's hard for me to imagine given that it's a brain surgery. Thoughts???

Suzanne Mills-Rittmann

Hi Colleen. I am scheduled for LITT at the Mayo on 6/30 and would love to hear from anyone who has had this procedure. The only person I can find is @patrassi. You suggested using "secure private messaging" as a contact tool but I can't figure out how to use it. Can you direct me to a place where I can find instructions? Also, have you seen other people who use this site who have given information about personal experiences with LITT? Thanks

Welcome @stmr. I'm confident that @patrassi will return to tell you about her son's experience with laser interstitial thermal therapy (LiTT) and perhaps @suellipo68 and @santosha. While you can private message Patrassi, it would be helpful for others to hear more from members in the forum so others can join in the conversation and learn.

You can find instructions on how to use Connect here: https://connect.mayoclinic.org/help-center/

You may also be interested in this recently published article from Mayo Clnic:
- Expert Alert: Laser therapy brings the heat to minimally invasive epilepsy treatment https://newsnetwork.mayoclinic.org/discussion/expert-alert-laser-therapy-brings-the-heat-to-minimally-invasive-epilepsy-treatment/

You're in good hands at Mayo Clinic, Suzanne. It is hard to imagine that you will only need to be in the hospital for one overnight after such a procedure, but it's true. LITT is minimally invasive and the hospital stay is typically a day. Usually the return to former activity is within two weeks. Crazy, right?

Will you be going to Mayo in Minnesota, Florida or Arizona? Do you plan to stay at Mayo in a hotel for a few days following surgery? Are you traveling from from away?

Thank you for your suggestions. I'll do some more exploring. My surgery is at Mayo in Rochester and I have plans to stay in town the night prior but haven't made reservations for the following nights. I live 1.5 hours from the hospital but am worried about potential complications that may necessitate a quick trip back to the hospital. Do you think it might be a good idea to hang around town for a while after discharge? Thank you.