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Anyone had LITT (laser interstitial thermal) Procedure?
Epilepsy & Seizures | Last Active: Dec 15, 2022 | Replies (37)Comment receiving replies
Welcome @stmr. I'm confident that @patrassi will return to tell you about her son's experience with laser interstitial thermal therapy (LiTT) and perhaps @suellipo68 and @santosha. While you can private message Patrassi, it would be helpful for others to hear more from members in the forum so others can join in the conversation and learn.
You can find instructions on how to use Connect here: https://connect.mayoclinic.org/help-center/
You may also be interested in this recently published article from Mayo Clnic:
- Expert Alert: Laser therapy brings the heat to minimally invasive epilepsy treatment https://newsnetwork.mayoclinic.org/discussion/expert-alert-laser-therapy-brings-the-heat-to-minimally-invasive-epilepsy-treatment/
You're in good hands at Mayo Clinic, Suzanne. It is hard to imagine that you will only need to be in the hospital for one overnight after such a procedure, but it's true. LITT is minimally invasive and the hospital stay is typically a day. Usually the return to former activity is within two weeks. Crazy, right?
Will you be going to Mayo in Minnesota, Florida or Arizona? Do you plan to stay at Mayo in a hotel for a few days following surgery? Are you traveling from from away?
Replies to "Welcome @stmr. I'm confident that @patrassi will return to tell you about her son's experience with..."
Hi @colleenyoung
My apologies for not replying before, I was on vacation.
I finally decided not to do a LITT as my neurosurgeon has said it would bring more losses than benefits, as my lesion is in the hippocampus on the left side.
I am controlling my seizures with CBD, a neurobehavior approach and yoga. Feeling good and well again, as I did not tolerate well the 5 AEDs I have tried. Some of them did control my seizures but have affected very much my life quality.
Have all a nice Sunday!
Santosha
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Thank you for your suggestions. I'll do some more exploring. My surgery is at Mayo in Rochester and I have plans to stay in town the night prior but haven't made reservations for the following nights. I live 1.5 hours from the hospital but am worried about potential complications that may necessitate a quick trip back to the hospital. Do you think it might be a good idea to hang around town for a while after discharge? Thank you.