LITT (laser interstitial thermal) Procedure / Johns Hopkins Hospital

Posted by csue1 @csue1, Sep 25, 2020

Has anyone had the LITT procedure at Johns Hopkins in Baltimore or Amygdalahippocampectomy via LITT procedure?

Hello @csue1

I see that this is your first post on Mayo Connect, welcome! I had not heard of the LITT procedure, so I did google the term and came up with some information from the John Hopkins website. Here is the link for anyone who might want more information.
https://www.hopkinsmedicine.org/news/articles/treating-epilepsy-with-a-laser-focus
Are you an epilepsy/seizure patient yourself? If so, please share a little about your history with this disorder. Are you interested in pursuing this LITT treatment for yourself?

I look forward to getting to know.

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Hi @csuecl
Did you undergo this LITT procedure? This same procedure was recommended to me recently. I would very much appreciate talking to people who have undergone LITT surgery.

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Has anyone had laser interstitial thermal (LITT) surgery?

I have refractory epilepsy (temporal lobe epilepsy with hippocampal sclerosis – left hemisphere). I have already tried 5 different medications (including medical cannabis) without success. Very recently LITT surgery has been recommended to me. Right now, I am trying to learn more about LITT and would very much appreciate talking to people who had undergone this surgery in the past, his or her experience and the results.
Thank you!

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Hello @csuecl

I just wanted to check in with you to see how you are doing with your seizure disorder. Did you have the LITT procedure or another treatment?

I look forward to hearing from you.

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@santosha

Has anyone had laser interstitial thermal (LITT) surgery?

I have refractory epilepsy (temporal lobe epilepsy with hippocampal sclerosis – left hemisphere). I have already tried 5 different medications (including medical cannabis) without success. Very recently LITT surgery has been recommended to me. Right now, I am trying to learn more about LITT and would very much appreciate talking to people who had undergone this surgery in the past, his or her experience and the results.
Thank you!

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@santosha 5 different medications is a lot to try and it's important to gather as much information and support as possible before seriously considering surgery.

You'll notice that I moved you question to an existing discussion on this topic. I did this so you could connect with members in a central location.

Members like @jakedduck1 @jeffery @deeebeee @lsittll @jillian18 @caseybach @heal33 @wildone101 @heal33 @debint have recently discussed epilepsy and may be able to offer support.

May I ask if you have consulted with a second opinion?

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@hopeful33250

Hello @csuecl

I just wanted to check in with you to see how you are doing with your seizure disorder. Did you have the LITT procedure or another treatment?

I look forward to hearing from you.

Jump to this post

Picture uc

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