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Has anyone had the LITT procedure at Johns Hopkins in Baltimore or Amygdalahippocampectomy via LITT procedure?
I see that this is your first post on Mayo Connect, welcome! I had not heard of the LITT procedure, so I did google the term and came up with some information from the John Hopkins website. Here is the link for anyone who might want more information.
Are you an epilepsy/seizure patient yourself? If so, please share a little about your history with this disorder. Are you interested in pursuing this LITT treatment for yourself?
I look forward to getting to know.
Did you undergo this LITT procedure? This same procedure was recommended to me recently. I would very much appreciate talking to people who have undergone LITT surgery.
Has anyone had laser interstitial thermal (LITT) surgery?
I have refractory epilepsy (temporal lobe epilepsy with hippocampal sclerosis – left hemisphere). I have already tried 5 different medications (including medical cannabis) without success. Very recently LITT surgery has been recommended to me. Right now, I am trying to learn more about LITT and would very much appreciate talking to people who had undergone this surgery in the past, his or her experience and the results.
I just wanted to check in with you to see how you are doing with your seizure disorder. Did you have the LITT procedure or another treatment?
I look forward to hearing from you.
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@santosha 5 different medications is a lot to try and it's important to gather as much information and support as possible before seriously considering surgery.
You'll notice that I moved you question to an existing discussion on this topic. I did this so you could connect with members in a central location.
Members like @jakedduck1 @jeffery @deeebeee @lsittll @jillian18 @caseybach @heal33 @wildone101 @heal33 @debint have recently discussed epilepsy and may be able to offer support.
May I ask if you have consulted with a second opinion?
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