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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Apr 14 3:02pm | Replies (9325)Comment receiving replies
Hello, Kate
What a coincidence that my first name is Katherine/Kathy. I was just diagnosed with MAC, found out via a phone call from my Mayo doctor last night. I have been coughing for over 14 months and I just kept trying to get someone to tell me why..... Now that I have the diagnosis, what do I do? My first reaction was to try to get more information and that is how I stumbled across your posting. My doctor, Dr. Mullen at Mayo in Rochester, is a very nice man and he explained that some of the side effects of the treatment can be worse than the disease. So, I rejected the idea. When I saw your post saying that the reality may not be as bad as the hype, it gives me a different perspective. Would you be willing to share more of your experience with me? The doctors can only tell you what the books tell them unless they have had a patient who has gone through the process. Even then, different folks can have differing reactions. I am a 58 year old, recently retired (in part due to the coughing with the embarrassing results), I am overweight so the shortness of breath was attributed to that.....
Thank you, Kathy
Replies to "Hello, Kate What a coincidence that my first name is Katherine/Kathy. I was just diagnosed with..."
@cindyrnc Hi Cindy. How are you doing? Had you gotten your water tested? Also, wondering if you figured out how to respond on this forum. I finally did!
Terri ....No did not look into water testing...assume NTM is in it and using Bottled spring water tdrell aka terri
Or the whole-house .2 micron water filtration system I've discussed a few times here...also gave specifics on what to get and cost...
@cbest Hooray Cheryl! We love good news! Congrats!
@cbest Cheryl, what about your shortness of breath, has that improved?
Hi Kahy,
Have you tried natural herb called Clear Lund from Ridgecrest. It clears my lungs and stop my coughing. I do not take antibiotics.
Cindy try Clear Lungs (natural herbs) for you MAC coughing. I use it and it is working well. I do not cough a lot. When you cough it is because you lungs need to reject obstructions. Keep eating more alkaline food for your rhumatstist. Good luck!
I got mine in 2009 after a big pneumonia. They also found a cancerous tumor in my right breast that same year. Thank God it was stage 1
Windwalker....now both adult kids have been told re my being an Alpha 1 anti trypsin carrier...both refuse being tested....convinced that even thru private foundation, somehow insurance companies will find out....sad. Tdrell
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@tdrell Hi Terri. I was curious if you had your water tested? I am going to call my water treatment plant and ask for the 'REAL' tests.