Nick, are you the same Nick who came to the Atlanta Support in Atlanta? If so, I also use Clear Lung and Broncolin cough syrup W/ honey and Propolis. Both are awesome! Walking and doing any exercise has helped my o2 immensely!
Jan/Ga. ( I have not been on in months)!

No I am not I am from NB Canada. I buy my clearlungs when we spend summer in Florida at Nature's food patch. 

Cherry do you have CTScan or x-rays? Do you have nodule in your lung also?

Janovr,

I wonder if you got my message?

@tdrell, that is totally understandable. That is why I do not push my daughter into it. Unless she were to marry and want children. If your children develop health issues up the road, then, yes, they should get tested. Also, if they have already had the children they want, I wouldn't do it. I was so sick and ready to go on disability; that I didn't care who knew.

Hi Cindy, Thank you for your point of view on taking the antibiotics. I agree with you about the problems they cause. I have searched many Mac chats and have not found one person who has overcome MAC after all their years of misery on therapy. Some say they were for a short time and it returned. Some doctors have even told their patients to stop taking them. I read an interesting article from the Journal of Thoracic Disease that said many times that just because the germ is present in the culture and on the person doesn't always equate with active infection dated December 12, 2013 I am checking with other doctors before I begin the treatment. Everyone here seems so encouraging and helpful and I'm glad I found the group.

Hi Jen, I am also in the medical field and I think like you. My mother has been diagnosed with MAC/MAI with the bronchiectasis. There is a child a week being diagnosed with just the bronchiectasis in New Zealand , most of them from the surrounding islands. The doctors are saying that now they are susceptible to get MAC. From what I have read bronchiectasis is : the lung damage (cilia) that prevents or inhibits you to cough up and out the bacteria around us. So the bacteria- Avium complex (depending what bacteria is found and if its MAI or MAC) sits in the sputum, mostly in the middle or lower lobes and GROWS. Now you have MAC/MAI. This reminds me of MRSA, and other "opportunist bacteria" that are all around us, but now people's own immunity cant fight it any longer. I want to know what is damaging the lungs to fight this off. My goal is to get patients to fill out more information who are diagnosed with this, to find a connection. The kids in New Zealand have had whooping cough and other "child" ailments that lead to the cilia damage or bronchiectasis. hmmm.

This is Cathy from Lake Mary Florida. I was on three antibiotics per week for two years minus three months when my doctor retired. I'm seeing one of his partners who is now telling me I need another bronchoscopy to see if I still have Mac with Ct showing I now have the budding of s tree in the other line which means it has gotten worse. I feel I need to increase the mess by going daily or increase mg something to keep it at bay.he told me he would call in a refill for three more months then take me off. I've been off for six weeks I told hi I would just stay off now instead of starting back up and stopping again. I'm looking for a new infectious disease dr that might have a little knowledge of this infection. Do you know of anyone near Seminole county, Florida?

My side effects were minimal

@cathyt Hi Cathy. I highly recommend getting yourself up to the Mayo Clinic in Jacksoville. They are my first choice. Dr. Leventhal has helped me immensely. Closer to home for you is Dr. Layish 407-841-1100 he is registered with NTM.org as a mac specialist. Please let me know if you find a good doctor. Good luck!