@suzie2017 Hi Suzie. (In case you missed) here are more questions you may consider asking your doctor if they apply.

Hello Kate, Thank you so much for this post! I was recently diagnosed with MAC. I am a retired CCRN. I have no symptoms other than fatique which I attributed to lack of sleep and supplemented my tiredness with afternoon naps. I started Azithromycin 500 mg on 4/2/18, added Ributin 300 mg on 4/9/18. I was having nausea almost immediately after the Ributin but I was managing it. That is until I added the Moxifloxocin 400 mg on 4/15/18. It felt like someone poured poison into my body. My GI system was on fire, I had nausea, vomiting, diarrhea, dizziness, headache, agitation and shaking. I lost 9 pounds in 4 days. After 4 days I ended up in the ER where I received IV hydration, IV Zofran and a prescription for Carafate and Prototonix. That was 2 days ago. I am still nauseated. I feel like I am still in the stage of denial and at this point I feel that the cure is worse than the disease. I stopped all three meds. My doctor simply said that if I can't take all three than she'll have to refer me for IV infusion therapy through a PICC line. I am upset and very unhappy. The more I read about this disease the more I am doubtful about it. It all started on December 1st. 2017 with pneumonia. I live in Souther California. Any input from you would be greatly appreciated.

Why aren't they giving you ethambutol and rifampin....less side effects

@kathyg Hi Kathy. Do you still read posts on Mayo Connect? I pray you are doing well.

Hi Katherine, My name is Rebecca and I was just diagnosed with both MAC and bronchectasis and was trying to access the article you referenced in this post but it was a dead link. I know it has been some time since you posted this but thought maybe you had saved the article and could share it. Thanks!

@desertnurse, Hello, How are you doing these days? Are you under any treatment at this point? I hope that you are alright.

@rwhite725, Hello Rebecca. Katherine is no longer on this site. I am the mentor for this group now. I am not sure which article you are asking about. I can help you locate it though with a little more info. I need for you to go back to Katherine's post where you saw it, then reply to it by first starting your text with @katemn. Then at the end of your text, type @windwalker. This will direct me to that post.

I am SO sorry that I am jumping onto someone else’s post, but I just joined the group and was not sure where to post new one. I am SO thankful to find this wonderful group as it’s hard to find info. The Drs started me on the 3 medication 2 weeks ago. I had horrible side effects and they are going to see if I can tolerate the Rifampin only. Thinking of all of u. I’m located in the Atlanta area. Jae

Welcome @jaejack! As you will find as you read through our posts, there's a variety of treatments beyond the "big 3" - recommend you explore all!

@jaejack, Hi jaejack! Welcome to our group. Please don't worry about jumping into other people's posts; we all do it from time to time if we have something to add to the conversation. When you want to address or reply to someone, use the @name of that person in the beginning of your text. Do you see how I did that on this text to you? There is a lot of info on this site, you just have to poke around a bit to find it. You will get better at using the site as time goes on. You can learn things by reading over older posts, and by going to the Discussion board and clicking on a topic. Do you want to share more of what is going on with you?