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@kathyg

Hello, Kate

What a coincidence that my first name is Katherine/Kathy. I was just diagnosed with MAC, found out via a phone call from my Mayo doctor last night. I have been coughing for over 14 months and I just kept trying to get someone to tell me why..... Now that I have the diagnosis, what do I do? My first reaction was to try to get more information and that is how I stumbled across your posting. My doctor, Dr. Mullen at Mayo in Rochester, is a very nice man and he explained that some of the side effects of the treatment can be worse than the disease. So, I rejected the idea. When I saw your post saying that the reality may not be as bad as the hype, it gives me a different perspective. Would you be willing to share more of your experience with me? The doctors can only tell you what the books tell them unless they have had a patient who has gone through the process. Even then, different folks can have differing reactions. I am a 58 year old, recently retired (in part due to the coughing with the embarrassing results), I am overweight so the shortness of breath was attributed to that.....

Thank you, Kathy

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Replies to "Hello, Kate What a coincidence that my first name is Katherine/Kathy. I was just diagnosed with..."

Windwalker Terri.....so if we wipe off the pink slime....the methobacterium ...that is NTM's enemy.....are we foolish??? Or is the pink slime the debris of NTM vs Methobacterium battles.....which makes sense to remove? is this a question for Dr Falkingham's list? Tdrell Terri

Keep a plastic cup in the tub and use it to rinse from the faucet.

Oh my goodness! The whole process for me was very ongoing - kind of like laundry - endless!

auntnanny thanks for all the detail re builtin walk in tubs....have saved it....am set with using my shower for now...especially since l have the "pink slime" that occurs on walls which windwalker has reported that Dr Falkingham the NTM specialist says fights NTM...tdrell

What I bought was not one of the walk in tubs -- I looked at them but the seat was low and I had trouble rising from it. I kept looking and found an inexpensive chair that hydraulically takes you down into your own tub of water and with a remote rises up when you are ready to get it. You don't have to wait for the tub to drain...... and I fill the tub before I sit down in the seat..... so it takes no extra time at all. I love it. It's a 20-pound mechanism that sets in your existing tub and you can fill the tub as usual, go sit down in the chair, push a button and it lowers you to the bottom of your own tub and then lifts you out when you push the button to come up. No waiting for anything.

auntnanny...thanks for clarifying re the equipment for tub....l am now aware for future ,,,,also will mention to chum who might be interested...thanks! terridrell

Lets hope that is really the case! (pink slime)

@tdrell The way I understand it Terri, is that the pink bacteria has it's own biofilm, and for whatever reason, it does not co-exist with any of the other mycobacterims. The pink biofilm is in our pipes and faucets and shower heads. Because we wash away what we see in our bathroom, does not mean we are stripping away protection. Not all municipal water is conducive to the growth methylobacterium. That is why it differs from region to region. I read read an article by Joseph Falkinham at http://www.sciencedirect.com titled: 'International Journal of Mycobacterology volume 5, Issue 2 June 2016 pg. 240-243 it is about a study done in Pennsylvania for Virginia Tech. This study is also about the possibility to impregnate NTM infected water sources to get rid of them. You would enjoy the read.

@tdrell Since the bacteria that leave pink slime are in the water, I don't think it should matter if we wipe off the slime or not. It is that type of bacteria you want in your water. Pink slime is just evidence that these basteria exist in your water.

Kitchen sink, it is easier than in the tub.