Burning Mouth Syndrome. I have it very severe.

Question to the Moderators or anyone that knows, I looked for this group but can not find any entries.... will you please help me? Thank you.

Hi @rgpadilla, it can sometimes be a challenge to find discussions after you've been away for a bit. Glad you called out for assistance. I've moved your post to the discussion you last participated in called "Burning Mouth Syndrome. Mine is very severe." This is where you've connected with members like @lauren123 @sheetrock0131 @bonitav @judybl1 @twentyfour7 @ristu and others.

You can find discussions about burning mouth syndrome in the Skin Health group https://connect.mayoclinic.org/group/skin-conditions/
As @hopeful33250 mentioned, there is also another discussion here:
- Burning Mouth Syndrome (BMS): Anyone found any relief? https://connect.mayoclinic.org/discussion/burning-mouth-syndrome-2/

One of the easiest ways to find discussions that you've posted to in the past is to go to your profile and scroll to your post activity.

@rgpadilla, how are you and your wife doing?

I am Ok. my wife burning tongue is getting worse, chewing Orbit Gum helps sometimes, not always and the nights are the worst. Looking forward to seeing the BMS group in Rochester Minn. hopefully this COVID-19 will abate a little to give us the opportunity to travel. God help us!!!

Hello, again @rgpadilla,

I see that your wife has had this problem for a while now. Has she been seen at Mayo before or will this be your first visit?

It will be the first visit

Has anyone been told they have burning Mouth Syndrome ?

@lexonpark, I've moved your post to this existing discussion called "Burning Mouth Syndrome. Mine is very severe." I did this so you can easily connect with other members like @rgpadilla @lauren123 @sheetrock0131 @bonitav @judybl1 @twentyfour7 @ristu and others who have experiences with burning mouth syndrome.

Discussions about burning mouth syndrome like this one can be found in the Skin Health group https://connect.mayoclinic.org/group/skin-conditions/

Here are some related discussions:
– Burning Mouth Syndrome (BMS): Anyone found any relief? https://connect.mayoclinic.org/discussion/burning-mouth-syndrome-2/
- burning mouth syndrome,or bms https://connect.mayoclinic.org/discussion/burning-mouth-syndromeor-bms/

Lexonpark, have you been diagnosed with burning mouth syndrome recently? How do you manage the pain?

I am sure I have had this for years. I saw a tongue specialist a few years ago. He reccomended Klonpin, I was already on Klonpin, he just increased the dose. I also go for IVIG treatment. autoimmune deficiency. I spoke with my hematologist (thinking he had patients on chemo who got month sores). He gave me an RX for a mouth treatment. Lidocaine, Bendryl,Nystatin and Mylanta. You have to purchase it from a compound Pharmacy. I have used it 4 times a day for one week. Finally feeling better.

I was diagnosed with Burning Mouth Syndrome and Central Sensitization at Mayo Clinic a few years back. Now I feel it’s in my throat as its sore 24 hours a day. Does anyone experience this in their throat? Any suggestions?

I got it but come to find out it is from a med I was taking and now I am fine . Topamax was the med