Burning Mouth Syndrome. I have it very severe.

Some people Laser will help,and other people not,it depends on severely of the issue you have. Try it everyone is different. Good luck!

I too have suffered from debilitating BMS pain since 2012. I am sorry, but I do not understand how commiserating with faceless strangers helps. I guess my misery does not love company. No one has recommended anything that I have not tried, without finding relief. The medical community knows nothing about BMS and no one cares. Every doctor I have seen, offers no help. I wish I would die. I am so ready for death. Only after death, will ALL pain be gone. Knowing that I am not alone in my suffering, only makes me sad for everyone who suffers with me. My grief for all who suffer is over-whelming. I find no comfort in knowing that I am not alone in my suffering. One can only conclude, that we will all suffer until we die. I am sorry if anyone takes offense to how strongly I feel. I mean no offense. I am so not okay.

Hello, my name is Debbie. I am new here in this support group. I have had BMS for 3 years. I’m feeling so much anxiety over this horrible condition. I hurt until I go to bed at night. My Dentist and ENT have done nothing.
My PCP has me on Alprazolam .5 mg a day if needed. I suffer from this but don’t share it to friends because nobody gets it. It’s really taking a toll on my life.
Anyone have suggestions?

My daughter has just started lyrica and cymbalta. She had 5 days of no pain but now it is back.
She’s up to 150mg of lyrica. We tried 200mg but her legs and arms went numb. Have you experienced that side affect? Is lyrica still working for you?

What dose of Klonipin do you take? Is this a medication you can take as needed or a daily prescription?

Hi Debbie, BMS is awful to live through without any help. You may want to ask your dentist to prescribe an oral steroid rinse to see if it helps you. The one I use is Dexamethasone .05 mg per 5ml. It’s a standard Dexa solution. I’m posting a photo below so you know what it looks like

The directions are to take 1 teaspoon (5ml) in the mouth. Swish for 30 seconds and then spit it out!
Don’t eat or drink for 30 minutes.
It really helps to calm things down.
Has this been suggested to you?

Did you receive the Botox shots? Did they work? I'm desperate and have had this condition for 13 years. Where did you get the shots. I've only seen that they've done them in Italy. Thank you!! If you want to text me directly my number is 20six-3nine1-1four86

I have BMS for over 2 years and I take klonopin, but wonder how much are you taking and at what times? I have been taking.05mg twice a day. And yes, it helps greatly.

I have been taking gabapentin 600 3x daily fir a month and also take klonopin .25 in the mornings and afternoon and when really in need I take a 05mg as well.
And yes, the klonopin is of great help.

When I was deep into BMS a couple of years ago, I was about to start acupuncture for a different malady. My wife asked if acupuncture might make the BMS worse, so I researched it and found a medical study that showed that a particular type of acupuncture was actually beneficial. I printed the study, took it to the acupuncturist, and he followed the procedures outlined. My BMS subsided by 80 percent within three months of treatments. There were times when there were no symptoms at all. It returned to a lesser degree about six months later, so I went back and had a few more treatments. It’s been almost a year and I would say that I feel nothing 90 percent of the time and just slightly noticeable the rest. I’m VERY happy I found the research and had the protocol. I can only verify that it worked for me, and it may for you. Best of all, it has not side effects. Here is a link to the study, which I downloaded and took to my acupuncturist.
https://www.nature.com/articles/sj.bdj.2010.582#Abs1
Over time, he added some more points beyond what was called for in the study. I think two in particular added a lot. I don’t know what they are called in acupuncture vernacular, but they were next to the fingernail on the fourth and fifth finger. Those, unlike the others, did hurt, but I think made a lot of difference.