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mygrigio (@mygrigio)

Burning Mouth Syndrome. I have it very severe.

Skin Health | Last Active: Aug 31, 2021 | Replies (536)

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@lexie

I am a 55 year old woman who has had this for 13 years. It is devastating and has completely changed my life…I belong to a group of woman on line who have this and we are trying to figure out how to treat this. I have decided to go to a holistic dr to get bioidentical hormones. I think it’s either that or from GERD, something going on in our digestive track. will be gettng my kit for hormonal testing…will post my results.

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Replies to "I am a 55 year old woman who has had this for 13 years. It is..."

@chloejulie @oregongirl Thank you for answering my question. I have lost all the enamel on my teeth for a while now. Not sure how it happened. Anyway I got my upper teeth pulled when I was in my early twenties because I always had problems with my teeth. No side affects from that. My lower is the problem I am worried about. Now that I have all this other stuff going on at 57yrs old. Besides GERD, which is very bad and I found I cannot take pain meds with anything that has to do with codiene, I am scared to death about the pain I will have since I cannot take nothing like that. The last time I had a tooth pulled on the bottom I hurt for two weeks after they pulled it from pain. I prayed God would take it away. I have 8 left and they need to go. This is so scary and I am so sorry all of you are going through this. I pray God takes your pain away.

You all are wonderful on here trying to help others with this terrible thing. Your suggestions I am sure will help at least one person if not more so know you are helping with everything you write and experience. God Bless all of us.

Have you researched the medication Gabapention. Works for me I've had BMS for five years
Very dibilitating Trading one lesser evil for another. I'm on very high dosages. But my mouth feels wonderful I have dentures
That's what started me down this horrible nightmare I lost over fifty pounds I was wearing a size 18 when I first got my dentures. Now I'm in a size 6. I'm 5 ft 8in weigh 140lb Again do your research on this medication it's certainly not for everyone Talk to your Doctor or dentist about it. I also use a lot of honey. You can put it in peppermint tea. Sometimes I just pour it on my tongue and lips. It nutrilizes the burning for a few minutes
Hope this helps

Have you researched the medication Gabapention. Works for me I've had BMS for five years
Very dibilitating Trading one lesser evil for another. I'm on very high dosages. But my mouth feels wonderful I have dentures
That's what started me down this horrible nightmare I lost over fifty pounds I was wearing a size 18 when I first got my dentures. Now I'm in a size 6. I'm 5 ft 8in weigh 140lb Again do your research on this medication it's certainly not for everyone Talk to your Doctor or dentist about it. I also use a lot of honey. You can put it in peppermint tea. Sometimes I just pour it on my tongue and lips. It nutrilizes the burning for a few minutes
Hope this helps

If you are having your teeth pulled because of b.m.s don't do it.
Unless your doing it for some other reason.people think that it's going to stop the burn.It has nothing to do with it.
It's a nerve that comes from the brain.
I've had 18yrs plus with this horrible condition.
Google botox for b.m.s.
Also for laser for b.ms.
Good luck.
Do not pull your teeth out for this condition.
Good luck

Oh, @oregongirl — that is a lot of dental work. Will be thinking of you. Please do check in after you have it done and let us know how it went for you.

That is really too bad about the water in your former town.

Lisa L…I know. I wrote letter to editor regarding not allowing dogs to drink water. Buy bottled. Paper WD not print it. City peoole might have sued the water Dept. Can't have that. What I have is common. I had friends who had all their teeth pulled. For some reason I believe water cannot be filtered.

Lisa.. where did our wonderful world go?

I went to Mayo Jax 4/17 – they put me on amitriptyline starting with 10 mg and working up every week or so till find relief or get hung over feeling in am. I settled in at 30 mg after feeling groggy/extreme dry mouth at 40 mg. after few weeks my burning mouth/throat was totally gone. Stayed gone for almost a year, now is back. Local doc put me on gabapentin and after building up it did nothing except make my stomach reflux and heartburn so I stopped it and now back trying amitriptyline with only marginal improvement so far. When I tried to get more testing at Mayo, they referred me to UF Gainesville, Fl. burning mouth clinic but they only have 1 doctor that comes there 1 day a month with earliest appointment 5-6 months and Mayo needs to do referral. Since I have not read many good results out of Gainesville, that option seems questionable. Have any of you gone to UF Gainesville within success?

Speaking of toothpaste – I just recently learned of a natural whitening toothpaste that has activated charcoal. The toothpaste is black and minty and claims to have pain relieving properties….for me it helps long enough for me to get to sleep. The brand is HELLO. My neighborhood Walmart has it but not CVS or Walgreens.

I had it for about a week recently..I am 54 and tapering off hormones and wonder if you are right..that menopause, and lack of hormones is partly the cause. I agree it is very painful, and I initially thought I had eaten something too hot, but the painful sites kept moving to different parts of my tongue and oral mucosa.

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