When I eat anything cold like ice cream it temporarily makes the nerves on my tongue zing all over the place, yogurt does the same thing too. Please never say there are no bad side effects to Botox use. There are side effects If it migrates from any insertion spot in the human body. Botox works by paralyzing muscles and nerves. If it should migrate to any respiratory nerves or muscles then you die for inability to breathe. If anyone wants to try it then I say I hope it works, but being a medical professional and a 25 yr BMS sufferer I would never try it!

You are right on target.there us no cure,nothing helps.
It's a damaged nerve that come from the brain.
I am a 19 plus yr sufferer.Tried everything, many many meds.
At least 6 Boston hospitals.
Professors of oral maxofacial surgery.
Look up botox treatment for b.m.s.
It is quite new,it is working.
Giving us hope.
Also look up laser treatment. It is also a new treatment.
Believe me when I tell you, I've done it all.
I got accupuncture.Sever al different people who practice it.
Nothing helps.
Surgery is deadly.
They put a sponge under the nerve,and that relives the burn.
It's dangerous, could kill you You can suffer a stroke,parallia
That's if you survive.
I'm interested in joining your group.
Please contact me.
I'm loaded with info.
Had many years to learn it all.
God bless..

I received at least 25 shots per month for trigeminal neuralgia, by a neurologist.
They are usually given for nerve pain from the trigeminal nerve.As a result it did calm the tri.nerve,but it will not help with b.m.s.look into laser treatment and currently Dr's are giving botox shots in the inside of the lip.with good results.Please take some time to read about it on the internet.

I have trigeminal neuralgia as well as b.m.s.
I have been receiving nerve block shots for a year now.I get 25 per month.that's one day if shots.
It has helped my nerve,but not the tounge.I'm quite surprised they would do that in your mouth.
If you do have trigeminal neuralgia, seek out a good neurologist. Discuss the nerve blocks.I wish you luck.
God bless.
I feel your pain.

@sheetrock0131 .. I never had this until my RA doctor put me on Methotrexate. It's a strong drug also used with cancer. Started with small sore on upper lip and grew from there. I had dental work just prior to starting the Methotrexate
It's starts to go away a no d then comes back. It hurts when my teeth touch it.

Thanks. I'm going to look into the botox for bms. I use it for migraines. You're right -- stay away from surgery. Let's continue to stay n touch.

Hello @sheetrock0131, this is the first time I remember you having trigeminal neuralgia as well as b.m.s. What do you use for the TN? Do you have TN1 or TN 2? Thanks. Hope to hear from you soon. Lauren

Would like to know how you are doing???
I to have bms for many many years.Tried everything.
Maybe you have some news to share.I would greatly appreciate it.

Hi Sheetrock, did you see my note from a few days ago? I don't have any news, unfortunately. Have you tried Botox for your TN? Do your have TN 1 or TN2 (Atypical TN)?

I was diagnosed with burning mouth syndrome and central sensitization at Mayo in Jacksonville. This has been going on for over 2 years. I’ve had many bouts of candida in my mouth and espohogas as well and suffer from acid reflux. They seem to all run together. I have no answers and just try to cope and act like everything is normal. It’s not and very painful. I get tired of putting up a front. I’m wondering if it could be the synthroid I take or maybe some food sensitivity that makes it worse? Currently I juice celery every morning and try to get my acid reflux under control. Hoping that will help as I don’t wanta take the heavy meds with so many side effects doctors recommend. I am always open to trying new things. Any suggestions?