← Return to Burning Mouth Syndrome. I have it very severe.

Discussion

Burning Mouth Syndrome. I have it very severe.

Skin Health | Last Active: Dec 7 11:26pm | Replies (581)

Comment receiving replies
@lexie

I am a 55 year old woman who has had this for 13 years. It is devastating and has completely changed my life...I belong to a group of woman on line who have this and we are trying to figure out how to treat this. I have decided to go to a holistic dr to get bioidentical hormones. I think it's either that or from GERD, something going on in our digestive track. will be gettng my kit for hormonal testing...will post my results.

Jump to this post


Replies to "I am a 55 year old woman who has had this for 13 years. It is..."

Lisa.. where did our wonderful world go?

I went to Mayo Jax 4/17 - they put me on amitriptyline starting with 10 mg and working up every week or so till find relief or get hung over feeling in am. I settled in at 30 mg after feeling groggy/extreme dry mouth at 40 mg. after few weeks my burning mouth/throat was totally gone. Stayed gone for almost a year, now is back. Local doc put me on gabapentin and after building up it did nothing except make my stomach reflux and heartburn so I stopped it and now back trying amitriptyline with only marginal improvement so far. When I tried to get more testing at Mayo, they referred me to UF Gainesville, Fl. burning mouth clinic but they only have 1 doctor that comes there 1 day a month with earliest appointment 5-6 months and Mayo needs to do referral. Since I have not read many good results out of Gainesville, that option seems questionable. Have any of you gone to UF Gainesville within success?

Speaking of toothpaste - I just recently learned of a natural whitening toothpaste that has activated charcoal. The toothpaste is black and minty and claims to have pain relieving properties....for me it helps long enough for me to get to sleep. The brand is HELLO. My neighborhood Walmart has it but not CVS or Walgreens.

I had it for about a week recently..I am 54 and tapering off hormones and wonder if you are right..that menopause, and lack of hormones is partly the cause. I agree it is very painful, and I initially thought I had eaten something too hot, but the painful sites kept moving to different parts of my tongue and oral mucosa.