Hi Carol, Yes indeed, exercise does seem to help weight loss, even when you don't want it to! About 6 years ago I lost a lot of weight when I was having continuous flareups. I felt nauseated for a good 3 years, couldn't eat, and had the accompanying diarrhea at intervals. I was hospitalized 4 times at monthly intervals in 2017. No one could help me except tell me I had IBD and that I needed my duodenum removed.. I was also weak so exercise wasn't something I was doing. Thank heavens for Mayo Clinic. Every state should have one and fortunately Arizona does. (I live near Phoenix.) I had many different tests and finally started to get answers. Crohn's Disease! Fortunately I started to respond to medication. I was initially on Humira but was diagnosed with chronic lymphocytic leukemia (CLL) in 2020 so my doc switched me to Entyvio, which has less of an immunosupressant factor. At some point with the Humira I began to get better. I regained the weight I had lost (now I want to lose a little weight!) and enjoy eating again. As for the leukemia, it is very stable. I never had any symptoms and am not requiring any treatment. I've been very fortunate.
I hope you are continuing todo well with the Entyvio. Your wt loss could be a result of the inflammatory process of Crohn's. If that gets under control, the weight may stabilize. Stay healthy!

It will be 6 months since my symptoms started before I can be seen at the Mayo in AZ. I was diagnosed on the 3rd of August and can’t be seen until Nov. 30. I have been a mayo patient for 13 years. I have done 6 weeks of imodium and a few weeks of pepto. I have budesonide and I guess I will have to start it soon. I am very discouraged. Some of you have done the Entyvio, is this something I can hang some hope on. Celiac Hashimotos and now Lymphocytic colitis. I have no idea or direction about this new diagnosis or what I am dealing with. I cannot get in anywhere else. Some offices won’t even treat colitis. I can't live like this. Any encouragement would be very appreciated.
Thanks

Thanks!! I am glad you are better. I bet that feels do freeing. It gives me something to hope for.

Thank you so very much.

Strange timing. I was just writing Dr. Harris about getting on that.
Thanks for your help.

What are concerns or side effects with Cholestyramine.

Yay! I've been waiting to see if anyone on here can relate to MC issues.I seem to have both IBS and MC. Awful combo. I tried colestyramine, but it didn't make much difference in my constant runs. The steroid, Bud...helped firm my stools a tad, but the side effects were intolerable. If I eat anything with fiber, I get pain and bloating to add to my five to seven daily watery stools. So no fruits and vegetables. And I used to be a vegan! Thank goodness I am not gluten or lactose intolerant. I consume lots of dairy and lots of white stuff. I was trying to take two Imodium twice a day, which helped lessen the frequency of my runs, but my heart started going into arrhythmia. I spent 12 awful 0years with atrial fib, and I don't want to go there again. So gulping down Pepto-Bismol seems to be the only thing that slows things down a bit. Anyone else find help for these constant watery stools?

I have IBS-D and MC. It is trial and error! Yes, keep a good journal. I was on a FODMAP diet under a nutritionist. I lost weight, did not feel well and still had bowel problems. Since then I have severely restricted fruits to bananas and a little pineapple. I eat no fried foods and if I do I have a reaction. I am on cholestyramine 4 gram once a day and use Imodium if needed. Keep hydrated! Be vigilant to what you eat.

Has anyone had a stem cell transplant to treat your ulcerative colitis? I’m considering it but would love to hear if it’s been helpful

Tell me your symptoms. I have a friend that may suffer what you have.
Mikayla