← Return to Anybody diagnosed with microscopic colitis?

Discussion
Comment receiving replies
Profile picture for Kristi Motch @kristimotch

I am looking for others diagnosed with microscopic colitis. I'm new to the group and the condition. Any help or information about what my future holds would be appreciated.

Jump to this post


Replies to "I am looking for others diagnosed with microscopic colitis. I'm new to the group and the..."

I don’t recall any - but frankly I might have welcomed it after 7 months of horrendous colitis. That said, I am prone to medication-caused constipation -and find that the best natural solution is 3 cups a day of green salad with a small amount of an oil-based dressing like Italian just to toss it. I believe green leaf lettuce, spinach, or arugula are more effective than iceberg. I just throw a protein in - salmon, chicken, egg, tuna, etc - and spread that 3 cups over a couple of meals. You could also add a stool softener if that doesn’t work in a couple of days. I would have been terrified to use a laxative and would check with your doc before doing so.

Cool. I can never seem to eat bananas before they are over-ripe so I tend not to buy them now that I don’t have kiddos around.

Also, if you like licorice (the real kind - black), try that. It’s a natural laxative. But don’t overdo it on the licorice!

Thank you. How long did you stay on it? Have been in the meds for three days snd already see an improvement.

I am with you, no licorice!
I rarely eat salads as I will pay for it.
Budnesoide definitely helps! Took about 2 weeks after my flare up.

If you get constipated I would take a stool softener but only 1 and the low dose!
We are here for you!

I have been on and off Budesonide for the last 23 years, as flares occur (and they occur quite often). It worked miracles for me, usually puttingme into remission in about 6 weeks. Absolutely no side effects, and my gastro says it's a low risk drug. The bad news is that sometimes it stops working as effectively over time. This happened to me this past year. I had to stay on a high dose (9 mg) for about 8 months until I SLOWLY healed. Now I'm on a permanent maintenance dose of 3 mg per day. The great news is that I'm maintaining remission and no side effects.

mollygirl3719, Your story is similar to mine, except I have had MC for only 8 months. Twenty three years is a long time. I also tried to get off budesonide after my 90 tapering course. The symptoms returned within a few days. I am now on 3mg budesonide per day with symptoms well controlled, until I eat something with too much fiber or indulge in too much sugar. I have been gluten free for a while, but will probably start introducing gluten as I start baking my sourdough bread again.

I have collagenous microscopic colitis and Celiac disease. I've been on budesonide several times; unfortunately, this doesn't work for me. I feel miserable on it, and return to chronic diarrhea shortly after I stop. Unfortunately, this has made it challenging to maintain healthy potassium levels.