Hello, I partially received this diagnosis. Actually, it is said to be partial, but the results showed that it was mild, I also had IBS, the doctor is not sure. Diarrhea increases these days, but turns into constipation in the afternoon. I recently had gastroenteritis and I still don't know how to resolve my diarrhea, IBS attack, or microscopic colitis. The pathology report is out and the result says this: Slightly increased levels in sections of ascending colon, colon mucosa samples, surface epithelium and crypt epithelium.
Lymphocyte entry is monitored. With trichrome, there is a slight increase in collagen in the subepithelial region. No additional findings regarding mucin were found. Although the findings are 'partial' support, if they are clinically compatible, it can be considered collagenous colitis. HK: Mucin, Trichrome. What awaits me now? The doctor prescribed Bizpomen. I am so afraid. I'm worried if it will turn into IBD.
The doctor didn't talk clearly but he said it came out once and we can't rule it out.

I don’t see any postings about CC or microscopic colitis on here.

I was diagnosed with MC in June. My GI doctor prescribed a 90 day tapering protocol of budesonide. As soon as I started taking it, my symptoms stopped. It was such a relief,

When I stopped, the symptoms recurred but not with such intensity.

The doctor put me back on 3mg/day until my next appointment.

I’m on a restricted diet, no gluten, low fiber, chicken, fish, no dairy.

The restricted diet is hard, but necessary.

I also take Florastor probiotics morning and evening.

I’ve found the Microscopic Colitis Foundation to be a helpful source of information.

Why probiotics? Do they help? My doctor said they would worsen my condition.

Hi again. I posted awhile ago. I've been on Budesonide for a few months now for MC. They started the regular 9mg, 6mg, 3mg routine. I then did 3mg daily for awhile and then about 2 months ago I started every other day. As far as effects, I haven't had diarrhea since I was diagnosed (last February?). If anything I'm a hair on the constipated side, but not really. I eat what I want and deal with minor stomach pain. It's a part of my life. I am stubborn and refuse to change my diet. Plus, I am way underweight (97 pounds and used to be 105-110!) and need all the calories I can get. I'm mostly self-regulated because my GI has too many patients and is very hard to reach. There is no "Personal" touch there. I think they're all like that where I live. My initial appointment was fast-tracked by my GP due to weight loss, otherwise it would have been months out! They NEVER check up on me. I had to call to be put on every other day. Very disappointing. I'm considering tapering off to one every two days and see how that goes. I have Osteoporosis and was never told Budesonide is bad for that. I'm wondering how bad that is. I recently had a bone scan that showed the same as I've been for years so...anyway, so sorry for everyone dealing with this. No fun. Out of the blue at 64 after endometrial cancer (caught early and totally gone). I wonder if it's related - like stress of dealing with hysterectomy etc. It came 4 months after. Hmmm.

I’m so sorry you have other health issues in addition to MC.

I started in July with 9mg budesonide per day, tapering to 6mg per day for August, then 3mg budesonide per day through the end of September.

When I stopped taking it in October. Things didn’t go well, so my doctor said to continue 3mg until I see him in December.

I’m going to try taking the 3mg every other day to see how that goes.

I’m not sure. I will see my GI PA in December. She may discuss alternatives.

I miss playing every single day. It’s hard. There is really no telling what causes microscopic, or cc, to come out of remission, according to my GI. A reaction to medication. An infection (even a sinus infection - which I get constantly), allergies, stress. It’s considered an autoimmune disorder so anyone’s guess. I couldn’t, and won’t, take Budesonide, however, what really helped me was pink bismuth (Pepto Bismol), but far more than what is says on the package of tablets. It’s something to talk to your gastrointestinal about. Unfortunately I can’t take it anymore. A year ago I had a heart attack while I was in surgery (best place to have one, I guess). The surgeons were surprised my PCP was surprise I was surprised. Not a candidate at all for heart problems, but yet. So I’m on blood thinners and pink bismuth has a lot of salicylic acid in it (stuff in aspirin) so nope. If you’re not on blood thinners, talk to your doctor about pink bismuth. I think my doc had me chew 4 tablets 3xday (after each meal). It honestly helped!

Well, the first thing you should do is read the warnings listed very carefully. Ask your pharmacist for the pharmacy sheet and go over it with your pharmacist. They know far more about the side effects of drugs than doctors do. If this is your regular pharmacist, he or she will have your records about any other medications and conditions you have. Ask them for their honest opinion. Then discuss it with your doctor. Corticosteroids are hard on your body, very hard on your bones and may do you more harm than good. I majored in dance, minored in music (piano) so dancing took first place. I was started on steroids at a young age. When you are dancing and you hurt yourself, as long as it’s not broken, they give you a cortisone shot so you can keep dancing. It builds up. I’m 72 now and have broken so many bone my orthopedic surgeon feels like a member of my family.

As long as you aren’t on blood thinners, a good is alternative is pink bismuth (the tablets). But you have to take a lot per day. AND, please check with your doctor! It may not make it stop completely, but it helped me enormously - until I was put on blood thinners. I can no longer take them.

I have MC it started after my gallbladder was removed by emergency. I also have Ostepenia and Osteoporosis in spots and nobody has mentioned Budnesoide is bad for me!
I had been in remission for 3 years but unfortunately it returns!
I also am looking for another med to take for it but research is limited. Watch your fat intake that does help somewhat.
Just know you aren't alone and we are all here for each other!