I wish we could have a group in person, but I'm all the way in Reno, NV.

I have lymphocytic colitis and Celiac Sprue. I was used to most of the symptoms but not the severity. It took many months to get diagnosed and treated. What has worked for me is Colestipol and or Cholestamine.
I don’t do any caffeine anything (coffee tea chocolate) no sugar or sweeteners and only healthy oils.
It can be tricky but after 3+ years I have periods of remission. Taking good pro and prebiotics and a good multivitamin is essential.
I don’t do Imodium or pepto at all…too many side effects (migraines mostly). AIP way of eating helps so much. (Urban AIP…life saver!)
Find a good gastroenterologist and find what works for you and your unique body. It doesn’t have to ruin your life although it seems like it at times. Know when to say “no can’t do that, I am just not up to it”…rest when you need to. HYDRATION and STRESS reduction are a must. It is doable!!! Sending love from this Grammy….

I’m pretty sure I will have a UTI by the time my current flare up goes back into remission. I don’t want to take antibiotics now because they’ll go right through me. A concern I have with other meds I have to take.

Probiotics give me diarrhea even when my MC is in remission.

Out of curiosity, how does anyone make it doable to go to doctors appointments, stores, etc. To just leave the house? When I’m in flare up, about 6 feet from the bathroom is max for me!

Is fresh water being used or water from the toilet/tank?

I have recently been diagnosed with lymphocytic colitis. Nor unsurprisingly the gastroenterologist just wanted to give me a prescription for steroids (which I haven't filled) and made no mention of diet. Does anyone have a recommendation?

I was diagnosed with lymphocytic microscopic colitis in June 2025. Before the diagnosis was confirmed, I tried keeping a very strict diet, no dairy, low fiber, chicken, fish, gluten free. It was extremely limiting and didn’t stop the explosive diarrhea.

I started taking budesonide in July. The symptoms immediately stopped. Currently I am on a maintenance dose of 3mg budesonide 4 days per week. This dosage is controlling symptoms. I am still eating a low fiber but have reintroduced low gluten sourdough bread.

I will see my GI doctor in December to discuss how to move forward. My GI doctor and the PA work closely together and listen to me.

The Microscopic Foundation has been a helpful resource. There hasn’t been a lot of robust research, which is very unfortunate for those of us who have MC.

I have recently been diagnosed with Microscopic inflammation of the colon on top of EPI. Doctors are not convinced I have EPI after a year being on Creon.
I have been put in a steroid, Budesonide 3 mg, for two months. Haven’t started taking it yet. Has anyone been on this snd what are the dude effects? Have been told to continue taking Creon.

Sorry meant to say what are the side effects?

Boy, you're lucky piemonte that you have a GI doc who listens! I saw my GI twice: once before Colonoscopy and tests and once after. Since then they don't check up on me. I have to call and it's like a fortress of anti-phone call. He's really good at what he does but he treats someone and moves on. When I read there were two types of MC, I called my GI to ask which one and they said there is only one. I should try someone else but our area is limited and they're so booked out. So I've been on my own. I'm now on Budesonide 3mg every 2 days. I'm weaning myself off. Then we'll see. I haven't changed my diet except that I try to eat as much as possible because I weigh 97 pounds but used to weigh 105-110. I go up and down ounces but have been at this weight forever. I live with frequent mild stomach ache. I exercise moderately.
Aren't you majorly constipated not eating any fiber? I don't go as often as I should, but I'm not constipated.
My MC showed up in my colonoscopy. He took a sample for 3 parts of my colon. Sometimes it doesn't show up?