I have had several colonoscopies over the years. And had both colonoscopy and endoscopy in December 2018. I had had some benign polyps. An ultrasound was done in October 2019 after I had increased abdominal girth and pain. Nothing remarkable was shown in Pancreas, liver, spleen, gallbladder. On January 22, 2020 I thought I was having a heart attack...severe pain radiating to to my jaw. Because I had previously had abnormal EKG, the cardiologist had me carry nitroglycerin tablets. I put one of the tablets under my tongue and in a few minutes the pain went away. My husband took me to the nearest clinic affiliated with the doctors that we use. They had me transported to the hospital. After most of the day in the ER with several EKGs taken and blood work, they determined that I had not had a heart attack and was released. 2019 and 2020 have not been kind to me. In January 2019 some malignant cells were found in my right breast. I had a lumpectomy and followed with radiation treatments. All follow up exams and mammograms have been normal. Looking forward to a diagnosis and a better fall and winter.

@turtlegalsandy - Question- Have you been tested for celiac disease? I assume that you have- especially having had endoscopes and colonoscopies over the years.
You mentioned that your doctor put you on antibiotics for presumed bacterial infection in intestines. Was the term SIBO mentioned? Small intestine bacterial overgrowth. Causes bloating,gas and discomfort.
The antibiotic Xifaxan is often given for that, since it only works inside the intestine and won’t cause side effects as broad spectrum antibiotics do.
Sorry about the breast cancer- good that you could be treated with lumpectomy and radiation.
(I also had breast cancer years ago.)

Biopsies for microscopic colitis was negative. My gastroenterologist is scheduling a CT scan.

I have lymphocytic colitis Do probiotics help?

@vacres- probiotics are helpful for any illness that interferes with digestion and motility. I had collagenous colitis in the past / similar to microscopic colitis. Your doctor can recommend the type of probiotics you need, since there are so many on the market. Stay well!

I Too am new to microscopic colitis. I haven’t spoken with my doctor yet. As far as I can figure out my colitis came from asides and prolesec and some pain meds

My mother has suffered from Lymphocytic Colitis since I was in kindergarten, I am now turning 31 years old. I have watched her suffer and see no end in the pain ever since. I have also witnessed her long time doctor resort to the use of morphine as a constipation aid when my mom decided that it was time for her to go back to work from being a full time stay at home mother to me. Between the severe diarrhea, unbearable stomach pain, and nausea that my mother has suffered with after giving birth to me, I can only imagine how helpless she feels as I feel just as helpless. My mother is the strongest woman that I know, and I have NEVER gone without as a child despite her condition. I just feel as if there must be a better way for my mother to deal with this. She is not one to go on to the internet to look for others suffering with the same condition. I feel as if it is the least that I can do to help her have the best quality of life that she deserves. I hope this post has not scared others away and I only want to gain knowledge of how to help my mom. Along the years of dealing with colitis she has gained a number of other health problems, however, I feel that if I start at the first problem I might be able to understand and be of more help to her.
Sincerely, Rinnie

I've had lymphocytic colitis for almost 20 years, and was on budesonide (for too long) until my skin started scraping off. I changed to colestipol some time ago. It does control symptoms unless I cheat and have alcohol (rare!). What I hate about it is being chained to a kitchen timer all day long, to leave 2-3 hours between it and my other medications and supplements. I can't hear the timer if my hearing aids are out or my roommate turns it off (it's annoying!) and forgets to tell me. I'm considering asking for one of the meds that might effect my immune system. It's questionable, though, since I've had cancer twice and was poisoned with chemicals 30 years ago, so my immune system is probably weak. I'm fully vaccinated for COVID-19, and did not have any side effects (which might also indicate a weak immune system). Does anyone know of any NEW, STATE-OF-THE-ART medication that will not effect the immune system, but can be taken at any time during the day without regard to other meds??? I would go to MAYO, but I'm hoping I won't have to travel so far! Thanks in advance for any alternatives you might know about.

I was diagnosed with UC in 2012 and was flare free between 2013 and Oct 2018. I had a flare in Nov 2018 and have not been in remission since then. The only thing that keeps me symptom free is Hydrocordisone Enema and a strick diet. Everything from Predisone, 6-MP, Remicade, Entyvio has failed. My GI doc has prescribed Tofa now (Xeljanz)

I dont know if it will work or if I need to take the enema for the rest of my life. I am 46 and hoping to be in remission (which has eluded me for the last 3 years)

I was diagnosed with MC in 2021 and my GI doctor put me on Budesonide (9 mg) I have completed taking 2 months of this medicine but my condition has not improved. Also my GI doctor does not recommend Continuing taking this medicine due to its adverse side effects. He recommends change of diet.
Does any one has advice!