Weird new symptom possibly connected to Epilepsy

POTS possibly.

May be POTS

@charmyachicago
Hi there,
Although I don’t claim to be an authority on pots, I don’t believe my symptoms are consistent with that malady. Although I’m not in total agreement they’re consistent with arthritis either.
My blood pressure and heart rate are normal.
My primary doctor recently had me take my blood pressure & pulse before I got up, immediately upon sitting up on the edge of my bed and then while standing. All my readings were well within normal limits not like what one would normally see in pots or at least the type of pots I’m most familiar with. I thought it might be Postural Hypotension, But my knowledge of that is limited as well. My father was a C-5 quadriplegic and he suffered from that nearly every time we got him out of bed. I’m not familiar with Orthostatic hypotension happening after being upright for some time but who knows.
You may be more knowledgeable than I on other types of Pots. Do you think it's still a possibility?
Thank you for your contribution it was very much appreciated.
Take care,
Jake

im going for a syncope eeg test wondering if nuero thinks i dont have epilepsy

Look into POTS. We are currently in hospital for drops and by a fluke, they found it. It is commonly misdiagnosed. My daughter does have epilepsy but when the drops started, her old neurologist assumed they were new seizures. He was wrong!

We are in Pittsburgh hospital right now for EEG monitoring for drop seizures. Doc caught heart rate issue and said they are not drop seizures. It is dysautonomia ( POTS). After wasting a few years increasing and changing meds. No wonder they did not work. Glad we found a new team of neuro who caught it the first night inpatient

I went 10 years with controlled epilepsy and started to get aura feelings and small twitches. So changes can happen. I was prescribed a second medication and it helped sort of but didn't stop it all the way and I was referred to Mayo for an extended eeg and they found that I was having a more seizure activity than I even felt.

@jeffery I went about 15 years without seizures after the neurosurgeon removed the focus of my epilepsy from the center of my brain. Lately I've noticed that I've developed twitching in my hands. I did have a grand mal seizure about a year ago. I feel like my epilepsy is coming back? I may need some serious testing re: my epilepsy soon, before it gets worse.
I was diagnosed with type 2 diabetes 4 years ago. My blood sugar level was at 25. The endocrinologist put me on Gliclazide and my blood sugar went down to 5 or 6. Weeks later, I discovered my libido was gone. Has anyone else had this side effect with Gliclazide? I need to be put on a safer diabetes medication. I'm 70 Y.O.

@jeffery I've noticed lately that I too almost feel like I'm about to drop to my knees. I used to have epilepsy but had surgery to remove the focus of it from my brain in 1992. I've been virtually symptom free ever since. But I wonder if my epilepsy is coming back. I've also noticed that I often have tremors in my hands. I'll have to let my neurologist know about how my body is reacting. I'll encourage him to do an extended EEG on me to get to the bottom of this. I trust the medical profession.

@jeffery
The seizures that are likely happening could be
subclinical seizures which are also known as electrographic seizures. I have these types of seizures that don't manifest into physical symptoms. Have your doctors suggested you are having myoclonic of focal seizures to explain the auras and twitches?
Take care,
Jake