Hello All, I am still battling HER2 + and HER2- at the same time the + appears to be responding to Herceptin and Perjeta. I started Piqray for the negative about 45 days ago & will know soon if it is getting the HER2 negative under control. Please let me know if anybody else has both a negative and a positive going on at the same time. Thanks
I was just recently (July) diagnosed with both. My left breast tumor is HER2- but my lymph nodes are HER2+ I have a small cancerous lesion on my left pelvic bone. I am not sure what type it is yet. I just had my first round of (six scheduled) chemo treatments a week ago. I am taking Taxotere, Carboplatin, Herceptin, Perjeta and Neulasta. I will have surgery after I finish chemotherapy.
I was just recently (July) diagnosed with both. My left breast tumor is HER2- but my lymph nodes are HER2+ I have a small cancerous lesion on my left pelvic bone. I am not sure what type it is yet. I just had my first round of (six scheduled) chemo treatments a week ago. I am taking Taxotere, Carboplatin, Herceptin, Perjeta and Neulasta. I will have surgery after I finish chemotherapy.
@michmom
The pelvic bone lesion is something which I worry about (bone lesions in general)... at my age, so many places hurt. How did you discover it? What were your symptoms, if you don't mind me asking?
I was just recently (July) diagnosed with both. My left breast tumor is HER2- but my lymph nodes are HER2+ I have a small cancerous lesion on my left pelvic bone. I am not sure what type it is yet. I just had my first round of (six scheduled) chemo treatments a week ago. I am taking Taxotere, Carboplatin, Herceptin, Perjeta and Neulasta. I will have surgery after I finish chemotherapy.
@michmom er
Oh my, you sure have a lot to deal with. I had two lesions in my breast but both were ER/PR+ and HER2- and was on taxotere and carboplatin, not all the extras you are receiving. Just recently though on PET scan a very small lesion was noted in my lung which they'll watch and do another PET scan in 3 months. Here's to all of your infusions going well. All the best to you.
I was just recently (July) diagnosed with both. My left breast tumor is HER2- but my lymph nodes are HER2+ I have a small cancerous lesion on my left pelvic bone. I am not sure what type it is yet. I just had my first round of (six scheduled) chemo treatments a week ago. I am taking Taxotere, Carboplatin, Herceptin, Perjeta and Neulasta. I will have surgery after I finish chemotherapy.
WOW..... I hope you read my initial post. But just to quickly recap, I was diagnosed in April 2015 with HR+HER2- invasive ductile carcinomas. 2 surgeries/8 rounds of chemo/33 rounds of radiation and then declared NED until August 2019 when it came back in my chest. We thought it was negative & started Ibrance but about 30 days in we discovered it was HER2+.....& switched to Herceptin/Perjeta with a Faslodex shot. But in Jan 2020 we discovered lesions in my neck/spine that turned out to be HER2-. (My neck fractured... which resulted in 10 rounds of radiation & a very restrictive neck brace from 01/25-06/29)
It appears the + is responding well to Herceptin/Perjeta/Faslodex. The - is a bit more stubborn. I started Piqray in May, I am into round 3 of the Piqray and it appears it might be working 🙏🏽Scheduled to check my tumor marker again in about 3 weeks. If it’s going down we will stay with Herceptin/Perjeta/Faslodex/Piqray. I remain optimistic and faithful. This journey requires a positive attitude always.....otherwise cancer wins . Don’t give in..... Don’t give up..... Don’t give out!
WOW..... I hope you read my initial post. But just to quickly recap, I was diagnosed in April 2015 with HR+HER2- invasive ductile carcinomas. 2 surgeries/8 rounds of chemo/33 rounds of radiation and then declared NED until August 2019 when it came back in my chest. We thought it was negative & started Ibrance but about 30 days in we discovered it was HER2+.....& switched to Herceptin/Perjeta with a Faslodex shot. But in Jan 2020 we discovered lesions in my neck/spine that turned out to be HER2-. (My neck fractured... which resulted in 10 rounds of radiation & a very restrictive neck brace from 01/25-06/29)
It appears the + is responding well to Herceptin/Perjeta/Faslodex. The - is a bit more stubborn. I started Piqray in May, I am into round 3 of the Piqray and it appears it might be working 🙏🏽Scheduled to check my tumor marker again in about 3 weeks. If it’s going down we will stay with Herceptin/Perjeta/Faslodex/Piqray. I remain optimistic and faithful. This journey requires a positive attitude always.....otherwise cancer wins . Don’t give in..... Don’t give up..... Don’t give out!
My daughter was 23 when she was first diagnosed with HER2 negative breast cancer in Nov of 2018. Had a lumpectomy right away, followed 4 rounds of chemo and 30+ rounds of radiation. Then in April of this year 2021 she was diagnosed with HER2 positive, same breast, different area, and a bone biopsy determined it's stage 4 cancer. She's having chemo #6 next week (in addition to the immunotherapy - herceptin/projetta). We do not have a history of breast cancer in my family, and her genetic markers are negative for the breast cancer gene. It's really terrible, I wish so much this wasn't happening to her.
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Hello All, I am still battling HER2 + and HER2- at the same time the + appears to be responding to Herceptin and Perjeta. I started Piqray for the negative about 45 days ago & will know soon if it is getting the HER2 negative under control. Please let me know if anybody else has both a negative and a positive going on at the same time. Thanks
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1 ReactionI am now taking Arimidex.
Unfortunately Arimidex did not work as well as I expected for me.
I wish you every luck with your treatment and keep on fighting,💕💓
I was just recently (July) diagnosed with both. My left breast tumor is HER2- but my lymph nodes are HER2+ I have a small cancerous lesion on my left pelvic bone. I am not sure what type it is yet. I just had my first round of (six scheduled) chemo treatments a week ago. I am taking Taxotere, Carboplatin, Herceptin, Perjeta and Neulasta. I will have surgery after I finish chemotherapy.
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1 Reaction@michmom
The pelvic bone lesion is something which I worry about (bone lesions in general)... at my age, so many places hurt. How did you discover it? What were your symptoms, if you don't mind me asking?
@michmom er
Oh my, you sure have a lot to deal with. I had two lesions in my breast but both were ER/PR+ and HER2- and was on taxotere and carboplatin, not all the extras you are receiving. Just recently though on PET scan a very small lesion was noted in my lung which they'll watch and do another PET scan in 3 months. Here's to all of your infusions going well. All the best to you.
WOW..... I hope you read my initial post. But just to quickly recap, I was diagnosed in April 2015 with HR+HER2- invasive ductile carcinomas. 2 surgeries/8 rounds of chemo/33 rounds of radiation and then declared NED until August 2019 when it came back in my chest. We thought it was negative & started Ibrance but about 30 days in we discovered it was HER2+.....& switched to Herceptin/Perjeta with a Faslodex shot. But in Jan 2020 we discovered lesions in my neck/spine that turned out to be HER2-. (My neck fractured... which resulted in 10 rounds of radiation & a very restrictive neck brace from 01/25-06/29)
It appears the + is responding well to Herceptin/Perjeta/Faslodex. The - is a bit more stubborn. I started Piqray in May, I am into round 3 of the Piqray and it appears it might be working 🙏🏽Scheduled to check my tumor marker again in about 3 weeks. If it’s going down we will stay with Herceptin/Perjeta/Faslodex/Piqray. I remain optimistic and faithful. This journey requires a positive attitude always.....otherwise cancer wins . Don’t give in..... Don’t give up..... Don’t give out!
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3 ReactionsYou can do this! Stay strong!
My daughter was 23 when she was first diagnosed with HER2 negative breast cancer in Nov of 2018. Had a lumpectomy right away, followed 4 rounds of chemo and 30+ rounds of radiation. Then in April of this year 2021 she was diagnosed with HER2 positive, same breast, different area, and a bone biopsy determined it's stage 4 cancer. She's having chemo #6 next week (in addition to the immunotherapy - herceptin/projetta). We do not have a history of breast cancer in my family, and her genetic markers are negative for the breast cancer gene. It's really terrible, I wish so much this wasn't happening to her.
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