Undiagnosed Head Symptoms (Still Help!)

No, I'm not.
The ear, nose, and throat doctor said that there is nothing wrong with me. I'm only doing it for attention. I told the doctor that was funny, I'm just going to stand or sit and fall for fun so people can watch me fall, he said yeah sounds like it. I told him thanks and never went back.

Did you have your wisdom teeth removed?

Did you have your wisdom teeth removed?

Hi everyone, thank you for the input. As of right now, my primary care doctor thinks it could be allergy related, but I have an appointment with a neurologist this afternoon. I've been taking over-the-counter allergy meds (have tried allegra and claritin) as well as a daily saline nasal rinse, per my doctor, and while my allergy symptoms haven't been an issue, the head feeling is still there and comes in waves, better at some times, bad at others, but always there. A few things I will say: One, my dad has sinus issues and a long time ago was diagnosed with chronic sinustitis and had to have surgery for it. Two, my mom and sister both get bad seasonal allergies, and I didn't until a couple years ago. For now my doctor wants me to see a neurologist but if that's ruled out I'm sure I'll end up with an ear nose and throat doctor. This is almost debilitating, and it's so frustrating not having something that can help. My doctors so far have really wanted to pin it on anxiety, but I'm 100% certain my anxiety is DERIVING from this head feeling and not knowing what it is/being uncomfortable all the time.

I've written down all of my symptoms and came up with this list so far: A "filled up" or "high" feeling (NOT dizzy or a headache); feeling like I'm not really "in my head" but cognitively still functioning normally; more tired than usual; having vivid, bad dreams and a heavy headed feeling overnight; sensitivity to light; mild pressure in sides of head or ears sometimes; a few times, have had ear ringing for a few seconds; lasts anywhere from a few days to a couple weeks at a time; have gotten an actual headache a few times, but it's not often; sometimes I feel like a dizziness is coming on, but it never gets to that point. I'll post an update after I see the neurologist today.

Hi everyone, thank you for the input. As of right now, my primary care doctor thinks it could be allergy related, but I have an appointment with a neurologist this afternoon. I've been taking over-the-counter allergy meds (have tried allegra and claritin) as well as a daily saline nasal rinse, per my doctor, and while my allergy symptoms haven't been an issue, the head feeling is still there and comes in waves, better at some times, bad at others, but always there. A few things I will say: One, my dad has sinus issues and a long time ago was diagnosed with chronic sinustitis and had to have surgery for it. Two, my mom and sister both get bad seasonal allergies, and I didn't until a couple years ago. For now my doctor wants me to see a neurologist but if that's ruled out I'm sure I'll end up with an ear nose and throat doctor. This is almost debilitating, and it's so frustrating not having something that can help. My doctors so far have really wanted to pin it on anxiety, but I'm 100% certain my anxiety is DERIVING from this head feeling and not knowing what it is/being uncomfortable all the time.

I've written down all of my symptoms and came up with this list so far: A "filled up" or "high" feeling (NOT dizzy or a headache); feeling like I'm not really "in my head" but cognitively still functioning normally; more tired than usual; having vivid, bad dreams and a heavy headed feeling overnight; sensitivity to light; mild pressure in sides of head or ears sometimes; a few times, have had ear ringing for a few seconds; lasts anywhere from a few days to a couple weeks at a time; have gotten an actual headache a few times, but it's not often; sometimes I feel like a dizziness is coming on, but it never gets to that point. I'll post an update after I see the neurologist today.

Let me start from the beginning-- about 2 years ago, I was driving to work and suddenly felt this strange head feeling (a "fullness" in my head, almost a high feeling, feeling detached, some pressure in the sides or back of my head, etc.) and it made me sensitive to light and have difficulty concentrating. Extreme anxiety also ensued because of this (the feeling itself, plus not knowing what it is and having to call out from my job), and I actually had to turn around, go home, and take the day off of work. At the time it coincided with tooth pain, so I went to a dentist and found out my wisdom teeth had to be removed-- they told me my impacted wisdom teeth could possibly be pushing against my sinuses causing the strange head symptoms.
I had my wisdom teeth removed, but the dentist told me after surgery that he had to leave a small rice-sized piece of one of my wisdom teeth in there because it was too close to my sinuses.
About a month or less after the surgery, the strange head feeling returned, and lasted almost 2 weeks before going away; during that time, I actually went to the ER one day because of how bad it was-- they did a basic blood test and EKG, said it was normal and I might have allergies, and sent me home. OTC allergy medication did not help the symptoms. After a few days, the feeling went away on its own.
Over the last couple years, it's come on a small handful of times during different times of year, lasted anywhere from a few days to two weeks, and then disappeared.
A month ago however, it came on strongly one day, and has not gone away since-- this is the longest it's lasted, by far. It's completely debilitating, and I'm at my wit's end here. My primary care doctor suggested allergies, or anxiety. I had an over the phone appointment with an ENT Dr. who also though allergies, and has had me taking Flonase and Claritin daily for 2 weeks now (which has not improved my symptoms). I saw a neurologist and passed his basic neurological exam "with flying colors", and had a normal head CT. I've had various blood tests which have come back normal except for a couple-- my Cortisol was high, but was also taken outside of their typical reference time (so they're having me do a 24hr urine test to test my cortisol levels). I also tested positive "across the board" on the allergy blood panel I did (for pollen, dust, etc.) but can't see an allergist for another week, and while the allergy medication is helping my actual allergy symptoms, it's not helping the mysterious head feeling. I do live on a horse ranch in an old house, and have always wondered about allergens and even mold-- but again, the allergy meds are not helping the strange head symptoms.
At this point I have several theories in my mind-- an inner ear or sinus issue (I do get almost-dizziness sometimes, pressure in the sides of my head above my ears, etc. and my dad and grandmother had sinus issues), some sort of allergy thing, mold exposure as a possibility, anxiety (although I really believe the anxiety is triggered by the head symptoms rather than the other way around), or something having to do with that wisdom tooth surgery.
Any and all suggestions would be so much appreciated! I'm finally seeing an ENT tomorrow in person, and then an allergist on Monday.

Hi @tess0831, I appreciate your retelling your story from the beginning. I've moved this full message to join the earlier discussion you started to keep the history of your journey in one place. While you haven't got a clear diagnosis yet, it does seem like some progress is being made either by ruling things out and trying new avenues of investigation. While it's frustrating to not have a diagnosis, you must be relieved that you passed the basic neurological exam and that the head CT came back normal.

It sounds like you have doctors who are working with you to get to the bottom of the issue. All the best with your appointment with ENT tomorrow. As you prepare for your appointment, you may be interested in reading these discussions:
- Meniere's Disease https://connect.mayoclinic.org/discussion/menieres-disease-2/
- Middle ear congestion https://connect.mayoclinic.org/discussion/middle-ear-congestion/

And others in the ENT group https://connect.mayoclinic.org/group/ear-nose-throat-conditions/

In a previous post, you said that dizziness wasn't an issue. Is this a new symptom?