Undiagnosed Head Symptoms (Still Help!)

Posted by tess0831 @tess0831, Apr 22, 2020

A few times over the last couple years, I’ve had this strange head feeling that comes on suddenly, sticks around for 2-3 weeks, then goes away (most recently, it came back today). It’s extremely hard to explain, but it’s like I’ll suddenly start to feel like I’m not fully “in my head”– I’d almost want to call it brain fog, but my cognitive function is still completely there. It’s almost a mild “head high” feeling, and while I don’t feel any pain or pressure, it’s extremely distracting/annoying and makes me feel like I don’t have mental clarity. The first time it happened I actually was so worried at one point that I went to the ER. They did a blood test and EKG, nothing abnormal, and basically sent me home and told me to try allergy meds. It coincided with tooth pain/me finding out I needed my wisdom teeth removed, and then it kind of went away on its own, so I didn’t think too much of it. The second time was several months ago, where it came on suddenly one evening as the sun was going down (at first I thought I was just reacting weird to the change in light, but it stuck around for a couple weeks after that). That time I was having some neck pain from a recent fall and had seen a chiropractor, so they thought it could have to do with the neck pain….but again, it seemed to just go away on its own after a couple weeks. This morning I felt completely fine, but I was working outside (I work with horses) and it started to get really hot which made me hot/tired, and I sat down because that feeling started to come back.
When it happens, I tend to have sensitivity to light, and very vivid dreams/I’ll tend to sleep deeper and be more tired.
Given that it’s happened 3 times now under different circumstances, I’m having a difficult time figuring out what it could be, and it’s not exactly the best time to go to a hospital and have tests run. I plan on having a call with my doctor, but I would love any suggestions in the meantime for things I could try or get over-the-counter that could possibly help (or just any ideas of what it could be).
Thank you in advance!

@baxtersmom

Throughout my life I have had something that my ENT and my neurologist called Benign Positional Vertigo. It would come and go and when it came it might be accompanied by many other symptoms such as nausea, fatigue, migraines and brain fog just to mention a few. I decided sometime ago that one of the primary things that correlated with its onset was a high mold count which we have where I live a good deal of the time. The first time I had it was my first year of graduate school and now I am 65 years old so as you can see, it must not be life threatening. But I will tell you that there were times when I was still working that it would cause extreme anxiety which made it much much worse. I taught at a large university for almost 30 years and when this would happen it would be very difficult to lecture. I would turn my head to write on the board and get a waive of dizziness that would almost cause me to black out. Once it happened during a lecture, I would get sweaty, have palpitations, get progressively more dizzy and sometimes be so distracted that I would lose my focus. I would on many occasions have to grab hold of the podium or something else in order to get my balance.The bigger that the classroom was the worse it was due to the visual aspects of a very large vast space. This happened dozens of times and I don't think any students or anyone else ever noticed but I know that it caused me a great deal of worry over many, many years.

The other day I posted something in the Women's Health Group that sounds very similar to what you describe. It is something similar to what I described above having all my life but it is not exactly the same and is a new thing for me. It comes on usually just as I finish a meal and is characterized by dizziness and profuse sweating. I believe my post from the other day was in a discussion that @gailb had also posted in and my recent symptoms were similar to hers following her gastric surgery although I have not ever had this surgery. My post was on May 24th in this group where I described my recent symptoms focussing on sweating and extreme hot flashes after eating along with nausea and dizziness. I do not think anyone has responded to it yet but @gailb if you have anything to add please let me know. Interestingly lately I have been also having a number of vivid dreams which @tess0831 has mentioned here.

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@tess0831

6 days ago, I had just eaten lunch and started walking outside, when I very suddenly had a strange feeling come on in my head– as I was walking, I felt like I was moving slowly…I almost felt "high"…and was somewhat sensitive to the bright sunlight. I came back inside and proceeded to have what I thought was a panic attack– along with the head feeling, my heart was racing/beating out of my chest, I got a dry mouth, nausea, and extreme anxiety/a nervous stomach feeling. I thought I was going to be sick at certain points, but this eventually went away. The rest of the day, and the next 2 days, the head feeling stuck around– it's very hard to explain, but almost feels like I'm high. Cognitively I'm functional, and I'm not faint or dizzy. But I feel like I'm not "in my head", it's terribly uncomfortable. I already am prone to anxiety, and it's just awful while this is happening. I've had a loss of appetite, constant anxiety pretty much, and the head feeling has not gone away. I've also been having very vivid bad dreams and waking up feeling heavy in my head, along with some pressure in my ears and temples every so often. One night I had a fairly bad headache (back of my head), but otherwise no actual pain. This is Day 6 since it initially came on, and while yesterday and the day before I thought it was overall getting better (but not gone), today it seems worse again. I still don't have much of an appetite but I'm not sure if that's due to the anxiety about how I'm feeling or not (it's a vicious cycle really).
The only pills I take regularly are birth control (and the occasional acid reflux med or allergy meds), and the only thing I took differently that day was a CBD oil– I've had CBD oils before and not had this reaction…though I realize even with a tiny amount of THC in it (and myself being sensitive to THC) that could have caused it. However, it seems extremely strange to me that it would go on for 6+ days if so. In addition, I've had this strange head feeling before (not the attack with the panic/dry mouth etc., but the same exact head feeling that's come on suddenly in the past and lasted days or even a week).
I had an over-the-phone appointment with a doctor a couple days ago and he essentially said it sounded like it could be the CBD (though he'd expect me to feel better by now) otherwise anxiety, but it's hard to tell without testing etc. So I'm waiting on a callback from my primary care dr. for an office visit as soon as possible. In the meantime, this feels almost debilitating, and I'm finding it hard to work or have a normal day– if anyone has any similar experiences or even suggestions as to what this could be, I'd be extremely grateful!

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@tess0831– Hi Tess. Your description of your funny feelings in your head wrang a bell with me! Have you considered migraines as a possible reason? I was sent to a neurologist, several in fact, over a span of 5 years. I had no idea why I was feeling the way I was. Finally, I went to someone who figured it out almost immediately. A migraine comes in all shapes and sizes has phases. And surprisingly not all migraines are accompanied by headaches. They are considered auras. You might be describing an aura, or more than one.

The following links might help.
https://americanmigrainefoundation.org/resource-library/silent-migraine/
https://www.migrainetrust.org/
https://www.mayoclinic.org/diseases-conditions/migraine-headache/symptoms-causes/syc-20360201
Would you consider seeing a neurologist to see if this is what you might be dealing with?

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Hello everyone, I'm having bad issues here.
I have pressure in my head that doctors call a silent migraine. It doesn't hurt, but sits there and doesn't move sometimes it becomes very uncomfortable when the pressure builds up, at times I can ignore it but at other times I want to scream. This has not gone away, even after neck surgery and I was hoping the surgery would help this.
Then there's a symptom of a cloud entering my head and all thoughts, movement, and the 5 senses are no longer there and I become a shell of a person. When someone talks to me I look at them but I can't speak. I feel like someone else is trying to take control of my body and I feel lost when this happens.
The doctors claim that I'm doing this to get attention.

Then there's another issue to where I can sit or stand perfectly still, and I fall to the floor as someone pushed me. The doctors told me that my inner ear is missed up, but this has been going on since I was 19, and ideas will be grateful.

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@david33

Hello everyone, I'm having bad issues here.
I have pressure in my head that doctors call a silent migraine. It doesn't hurt, but sits there and doesn't move sometimes it becomes very uncomfortable when the pressure builds up, at times I can ignore it but at other times I want to scream. This has not gone away, even after neck surgery and I was hoping the surgery would help this.
Then there's a symptom of a cloud entering my head and all thoughts, movement, and the 5 senses are no longer there and I become a shell of a person. When someone talks to me I look at them but I can't speak. I feel like someone else is trying to take control of my body and I feel lost when this happens.
The doctors claim that I'm doing this to get attention.

Then there's another issue to where I can sit or stand perfectly still, and I fall to the floor as someone pushed me. The doctors told me that my inner ear is missed up, but this has been going on since I was 19, and ideas will be grateful.

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Hello,
Sorry you are going thru those awful symptoms.
A good ear, nose throat doctor for the ear symptoms, and a neurological exam would be a good idea. When doctors do not have answers, it’s common for them to tell patients it’s all in their heads.
You need answers.
Are you near a teaching hospital?
Funcountess

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@funcountess

Hello,
Sorry you are going thru those awful symptoms.
A good ear, nose throat doctor for the ear symptoms, and a neurological exam would be a good idea. When doctors do not have answers, it’s common for them to tell patients it’s all in their heads.
You need answers.
Are you near a teaching hospital?
Funcountess

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No, I'm not.
The ear, nose, and throat doctor said that there is nothing wrong with me. I'm only doing it for attention. I told the doctor that was funny, I'm just going to stand or sit and fall for fun so people can watch me fall, he said yeah sounds like it. I told him thanks and never went back.

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@david33

No, I'm not.
The ear, nose, and throat doctor said that there is nothing wrong with me. I'm only doing it for attention. I told the doctor that was funny, I'm just going to stand or sit and fall for fun so people can watch me fall, he said yeah sounds like it. I told him thanks and never went back.

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That doctor is not worth your time. How insensitive and arrogant.
Do you have a neurologist?
Obviously something is not right, and you need answers and relief. Do you take any Rxthat may have side affects?
Funcountess

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@david33

No, I'm not.
The ear, nose, and throat doctor said that there is nothing wrong with me. I'm only doing it for attention. I told the doctor that was funny, I'm just going to stand or sit and fall for fun so people can watch me fall, he said yeah sounds like it. I told him thanks and never went back.

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I just thought of something. Could you be having a form of epilepsy? There are grand mal, and petite mal episodes, also some forms of staring where you cannot talk. I believe a good and competent neurologist would help.
Take care,
Funcountess

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No.My symptomsare more standing and may b tid into upper spinal fuid pressure or brain barrier harmones

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@david33

No, I'm not.
The ear, nose, and throat doctor said that there is nothing wrong with me. I'm only doing it for attention. I told the doctor that was funny, I'm just going to stand or sit and fall for fun so people can watch me fall, he said yeah sounds like it. I told him thanks and never went back.

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This group has more answers

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Did you have your wisdom teeth removed?

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@helenfrances

Did you have your wisdom teeth removed?

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2.did you have an MRI or CAT scan after your fall?

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@helenfrances

Did you have your wisdom teeth removed?

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70 yrs ago!

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