1. < Lung Cancer

Lung cancer with joints and muscles sore.

Posted by richcolleen @richcolleen, Apr 10, 2020

I have stage 4 lung cancer which has spread before caught. What I’m wondering if anyone has problems with all joints sore? I was on chemo and immune therapy 8 months and since (I quit chemo due to very sick days) been on just immune therapy and felt pretty good until the last week.

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janlanderz | @janlanderz | May 18, 2020

I have experienced sorness especially in the joints ever since I started Immunotherapy in Oct 2019. I had been receiving it every 4 weeks, however, when covid-19 hit, my last two infusions were cancelled, but still real bad joint pain.. mostly in my arms.

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3 replies
Merry, Alumni Mentor | @merpreb | May 18, 2020
In reply to @janlanderz "I have experienced sorness especially in the joints ever since I started Immunotherapy in Oct 2019...." + (show)
@janlanderz

I have experienced sorness especially in the joints ever since I started Immunotherapy in Oct 2019. I had been receiving it every 4 weeks, however, when covid-19 hit, my last two infusions were cancelled, but still real bad joint pain.. mostly in my arms.

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@janlanderz- Hi Jan. Nice to hear from you. While you were actively having immunotherapy did you ask your oncologist if there was something to control the pain? What was the medicine? Do you have a new appointment scheduled?

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shortshot80 | @shortshot80 | May 19, 2020
In reply to @janlanderz "I have experienced sorness especially in the joints ever since I started Immunotherapy in Oct 2019...." + (show)
@janlanderz

I have experienced sorness especially in the joints ever since I started Immunotherapy in Oct 2019. I had been receiving it every 4 weeks, however, when covid-19 hit, my last two infusions were cancelled, but still real bad joint pain.. mostly in my arms.

Jump to this post

Hi i had several weeks of immune therapy and then started having pain in my shourlders all my jjoints and then all over m y body. stopped the immune therapy and was put on prednisone which helped take away the pain. nancy/shortshto

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1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | May 19, 2020
In reply to @richcolleen "Mayo visit 1st and 2nd of June." + (show)
@richcolleen

Mayo visit 1st and 2nd of June.

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@richcolleen and @meka, I think you'll very much appreciate the tips and resources that fellow members share in this discussion about traveling and Mayo Clinic.

– Tips: Traveling to Mayo to get medical care safely during COVID-19 https://connect.mayoclinic.org/discussion/your-tips-traveling-and-getting-medical-care-safely-during-covid-19/

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richcolleen | @richcolleen | May 19, 2020

Thank you Colleen! Will do some calling.

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richcolleen | @richcolleen | May 19, 2020
In reply to @janlanderz "I have experienced sorness especially in the joints ever since I started Immunotherapy in Oct 2019...." + (show)
@janlanderz

I have experienced sorness especially in the joints ever since I started Immunotherapy in Oct 2019. I had been receiving it every 4 weeks, however, when covid-19 hit, my last two infusions were cancelled, but still real bad joint pain.. mostly in my arms.

Jump to this post

I’m on immunotherapy also but none have been cancelled. Oh yes can relate to sore joints. I also fell on daily walk and did loss of bruising. I’m hoping that’s all its is. Go back to Mayo June 1st and 2nd. For scans and blood work. See dr following day plus infusion. Dr home 3 hours without traffic. Lol thru MInneapolis.

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1 reply
Merry, Alumni Mentor | @merpreb | May 20, 2020
In reply to @richcolleen "I’m on immunotherapy also but none have been cancelled. Oh yes can relate to sore joints...." + (show)
@richcolleen

I’m on immunotherapy also but none have been cancelled. Oh yes can relate to sore joints. I also fell on daily walk and did loss of bruising. I’m hoping that’s all its is. Go back to Mayo June 1st and 2nd. For scans and blood work. See dr following day plus infusion. Dr home 3 hours without traffic. Lol thru MInneapolis.

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@richcolleen- Ouch! Are you sure that you didn't break anything? Please keep us updated on your results and what's next.!

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Merry, Alumni Mentor | @merpreb | May 21, 2020
In reply to @shortshot80 "Hi i had several weeks of immune therapy and then started having pain in my shourlders..." + (show)
@shortshot80

Hi i had several weeks of immune therapy and then started having pain in my shourlders all my jjoints and then all over m y body. stopped the immune therapy and was put on prednisone which helped take away the pain. nancy/shortshto

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Nancy- Your book is supposed to arrive tomorrow. I'm really looking forward to reading it. How are you today?

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1 reply
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | May 21, 2020

@merpreb

@shortshot80 My book arrived late yesterday and I'm up to the year 1970 when you bought the fishing boat and named it "shortshot." Funny story about how that name came about. Regarding your childhood, I can't imagine that you had your teeth drilled without novocaine! That must have been terrible. You are made of sturdy material, Nancy!

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