Lung cancer with joints and muscles sore.

Posted by richcolleen @richcolleen, Fri, Apr 10 7:06am

I have stage 4 lung cancer which has spread before caught. What I’m wondering if anyone has problems with all joints sore? I was on chemo and immune therapy 8 months and since (I quit chemo due to very sick days) been on just immune therapy and felt pretty good until the last week.

@merpreb

Nancy- I've looked high and low on Amazon and can't find your book. Any chance of getting a link? I used to commercial fish with my husband. We owned a sportfishing charter boat for over 25 years. I didn't fish for all that time but I have seen some awesome sights way off shore!

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hi, hopeful listed a link. i don't know how to do that.. nancy

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@richcolleen

I will be staying at Holiday Inn Express June 1 and 2nd. Never stayed there so will find out.

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@richcolleen– I'm checking in to see how you are faring after your Mayo visit. How are you feeling?

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Mayo visit 1st and 2nd of June.

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@richcolleen

Mayo visit 1st and 2nd of June.

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How was the May 1 visit?

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I have experienced sorness especially in the joints ever since I started Immunotherapy in Oct 2019. I had been receiving it every 4 weeks, however, when covid-19 hit, my last two infusions were cancelled, but still real bad joint pain.. mostly in my arms.

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@janlanderz

I have experienced sorness especially in the joints ever since I started Immunotherapy in Oct 2019. I had been receiving it every 4 weeks, however, when covid-19 hit, my last two infusions were cancelled, but still real bad joint pain.. mostly in my arms.

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@janlanderz– Hi Jan. Nice to hear from you. While you were actively having immunotherapy did you ask your oncologist if there was something to control the pain? What was the medicine? Do you have a new appointment scheduled?

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@janlanderz

I have experienced sorness especially in the joints ever since I started Immunotherapy in Oct 2019. I had been receiving it every 4 weeks, however, when covid-19 hit, my last two infusions were cancelled, but still real bad joint pain.. mostly in my arms.

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Hi i had several weeks of immune therapy and then started having pain in my shourlders all my jjoints and then all over m y body. stopped the immune therapy and was put on prednisone which helped take away the pain. nancy/shortshto

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@richcolleen

Mayo visit 1st and 2nd of June.

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@richcolleen and @meka, I think you'll very much appreciate the tips and resources that fellow members share in this discussion about traveling and Mayo Clinic.

– Tips: Traveling to Mayo to get medical care safely during COVID-19 https://connect.mayoclinic.org/discussion/your-tips-traveling-and-getting-medical-care-safely-during-covid-19/

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Thank you Colleen! Will do some calling.

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@janlanderz

I have experienced sorness especially in the joints ever since I started Immunotherapy in Oct 2019. I had been receiving it every 4 weeks, however, when covid-19 hit, my last two infusions were cancelled, but still real bad joint pain.. mostly in my arms.

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I’m on immunotherapy also but none have been cancelled. Oh yes can relate to sore joints. I also fell on daily walk and did loss of bruising. I’m hoping that’s all its is. Go back to Mayo June 1st and 2nd. For scans and blood work. See dr following day plus infusion. Dr home 3 hours without traffic. Lol thru MInneapolis.

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@richcolleen

I’m on immunotherapy also but none have been cancelled. Oh yes can relate to sore joints. I also fell on daily walk and did loss of bruising. I’m hoping that’s all its is. Go back to Mayo June 1st and 2nd. For scans and blood work. See dr following day plus infusion. Dr home 3 hours without traffic. Lol thru MInneapolis.

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@richcolleen– Ouch! Are you sure that you didn't break anything? Please keep us updated on your results and what's next.!

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@shortshot80

Hi i had several weeks of immune therapy and then started having pain in my shourlders all my jjoints and then all over m y body. stopped the immune therapy and was put on prednisone which helped take away the pain. nancy/shortshto

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Nancy- Your book is supposed to arrive tomorrow. I'm really looking forward to reading it. How are you today?

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@merpreb

@shortshot80 My book arrived late yesterday and I'm up to the year 1970 when you bought the fishing boat and named it "shortshot." Funny story about how that name came about. Regarding your childhood, I can't imagine that you had your teeth drilled without novocaine! That must have been terrible. You are made of sturdy material, Nancy!

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