Lung cancer with joints and muscles sore.

Posted by richcolleen @richcolleen, Fri, Apr 10 7:06am

I have stage 4 lung cancer which has spread before caught. What I’m wondering if anyone has problems with all joints sore? I was on chemo and immune therapy 8 months and since (I quit chemo due to very sick days) been on just immune therapy and felt pretty good until the last week.

@merpreb

@richcolleen– Good morning. I'm really starting to feel claustrophobic.I think that everyone has spring fever! I have my next scan in mid-June. I really hope that things will be more open by then, for both of us! I'm glad that you are feeling better. It's a very hard call to stop treatments, but your quality of life is more important, I think. Why not try and ask the infusion nurse why you felt so achy? They often seem to know more than Oncologists because they hear complaints and questions more often.

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Ended up calling and they will be running extra test. My joints -(fingers-wrist – arms-Back -neck- breast Legs-) ache all the time know. Taken 400 mg of ibuprofen every 6 hours which help. Praying they can do something for this.

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@shortshot80

Hi am doing pretty good today. Had a doc appt this morning. primary care got a couple shots "tetnus" shingles" shots. check up. more later have to have a ultra ulta sound soon. Nancy

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@shortshot80 Hi Nancy:

I was thinking about you and wondering if you had your ultrasound yet. I hope you are still pain-free.

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@richcolleen

Ended up calling and they will be running extra test. My joints -(fingers-wrist – arms-Back -neck- breast Legs-) ache all the time know. Taken 400 mg of ibuprofen every 6 hours which help. Praying they can do something for this.

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@richcolleen– I'm glad that you called. Do you know what other tests that they will do?

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I am also have joint pain and sore joints… however, oncologist sluffs it off and tells me to contact my family doctor and when I mentioned it again to his nurse.. she says that it is not related to cancer or cancer treatments… I don't believe this as I did not start getting this joint pain till several months after immunotherapy started. I was on nivolumab up till two months ago … I had 6 infusions to that date… infusions cancelled due to a high rise in covid patients at our local hospital … the oncologist says it it not the risk of going to the hospital .. he told me I would have 0% chance of survival if I get the virus… not sure why he feels that way.. yes.. I do have stage 4 lung cancer but have no breathing issues and am usually active.. no shortness of breath.. etc.. just had a CAT scan on May 22nd of the Chest.. will get results on June 3rd.. hoping that not getting my infusions did not bring me back to square one with my cancer 🙁

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@janlanderz

I am also have joint pain and sore joints… however, oncologist sluffs it off and tells me to contact my family doctor and when I mentioned it again to his nurse.. she says that it is not related to cancer or cancer treatments… I don't believe this as I did not start getting this joint pain till several months after immunotherapy started. I was on nivolumab up till two months ago … I had 6 infusions to that date… infusions cancelled due to a high rise in covid patients at our local hospital … the oncologist says it it not the risk of going to the hospital .. he told me I would have 0% chance of survival if I get the virus… not sure why he feels that way.. yes.. I do have stage 4 lung cancer but have no breathing issues and am usually active.. no shortness of breath.. etc.. just had a CAT scan on May 22nd of the Chest.. will get results on June 3rd.. hoping that not getting my infusions did not bring me back to square one with my cancer 🙁

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Hello again @janlanderz– This must be so hard for you. I too, as you know, have stage 4 lung cancer and if I get COVID-19 I will most certainly not survive it. All lung cancers damage lung tissues. Also, you have had some serious chemicals that probably damaged some too. Cancer patients have weakened immune systems so that is why he said what he did about you not surviving the virus. And according to most medical reports people who are put on respirators easily succumb.

It's amazing that you have stage 4 lung cancer and do not have any shortness of breath. I know that you have struggled to secure trusting doctors and treatments in the past. Since your present oncologist and his nurse seem to be poopooing your symptoms and contradicting what you've heard about COVID-19 and hospitals I am wondering if you think that it's time to seek other channels for your treatments and sanity. Is this something that you might consider?

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@merpreb

@shortshot80– Oh my goodness. Are you in a lot of pain?

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NO PAIN……SAW MY ONCOLOGIST YESTERDAY…..SHE THINKS THIS IS CANCER RELATED TO MY LUNG CANCER. ULTRA SOUND ON TUESDAY SHOULD TELL US WHAT IT IS…..NANCY

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@hopeful33250

@shortshot80 Hi Nancy,

I hope that the ultrasound provides information about this problem. It sounds like something that would create a lot of pain. Is that the case for you?

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NO PAIN…..SAW MY ONCOLOGIST YESTERDAY,……SHE THINKS IT IS CANCER RELATED TO MY LUNG CANCER.. ULTA SOUND TUESDAY SHOULD TELL WHAT IT IS…… NANCY

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@shortshot80

NO PAIN…..SAW MY ONCOLOGIST YESTERDAY,……SHE THINKS IT IS CANCER RELATED TO MY LUNG CANCER.. ULTA SOUND TUESDAY SHOULD TELL WHAT IT IS…… NANCY

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@shortshot80 Thanks for the update, Nancy. I pray that the ultrasound will go well. Do you have to travel far?

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@shortshot80

NO PAIN……SAW MY ONCOLOGIST YESTERDAY…..SHE THINKS THIS IS CANCER RELATED TO MY LUNG CANCER. ULTRA SOUND ON TUESDAY SHOULD TELL US WHAT IT IS…..NANCY

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@shortshot80– I'll be thinking of you!

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@hopeful33250

@shortshot80 Thanks for the update, Nancy. I pray that the ultrasound will go well. Do you have to travel far?

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I LIVE 25 MILES EITHER DIRECTION TO A HOSPITAL. NORTH & sOUTH. i GO TO THE ONE NORTH. NANCY

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@merpreb

Hello again @janlanderz– This must be so hard for you. I too, as you know, have stage 4 lung cancer and if I get COVID-19 I will most certainly not survive it. All lung cancers damage lung tissues. Also, you have had some serious chemicals that probably damaged some too. Cancer patients have weakened immune systems so that is why he said what he did about you not surviving the virus. And according to most medical reports people who are put on respirators easily succumb.

It's amazing that you have stage 4 lung cancer and do not have any shortness of breath. I know that you have struggled to secure trusting doctors and treatments in the past. Since your present oncologist and his nurse seem to be poopooing your symptoms and contradicting what you've heard about COVID-19 and hospitals I am wondering if you think that it's time to seek other channels for your treatments and sanity. Is this something that you might consider?

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I may be changing oncologists, but that requires driving 2 and a half hours away to see the doctor, which is fine.. because I can apparently get my infusions at a hospital, that is 45 minutes from here.. basically considered like one of their satellite sites for infusions and or scans, etc..

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@janlanderz

I may be changing oncologists, but that requires driving 2 and a half hours away to see the doctor, which is fine.. because I can apparently get my infusions at a hospital, that is 45 minutes from here.. basically considered like one of their satellite sites for infusions and or scans, etc..

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@janlanderz– Please let me know what you decide. I think that switching might be advisable at this time. Best of luck!

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@merpreb

@janlanderz– Please let me know what you decide. I think that switching might be advisable at this time. Best of luck!

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Thank You Merry

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@shortshot80

BOOK NAME IS "SHORTSHOT" AND IT IS ON AMAZON $13.99. IT IS NOT A BIG BOOK, BUT IT STARTED OUT TO BE A WOMAN COMMERCIAL FISHING WITH MY HUSBAND. MY FRIEND TOLD ME I NEEDED CLOSURE AFTER MY HUBBY PASSED AFTER 67 YEARS, SO i THOUGHT I HAD BETTER HAVE A BEGINNING FOR HIM, SOOOOO ENDED UP WITH A AUTOBIOGRAPHY. IT TOOK ME A YEAR AND HALF TO WRITE IT. I FINISHED IT IN MARCH MY 87TH BIRTHDAY. I AM PROUD OF MYSELF AND I KNOW THAT MY HUBBU IS TO. NANCY

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@shortshot80 Hi Nancy:

I finally finished your book. What a neat story about you and your family. I really enjoyed reading about all of the community activities you were involved in, I know your community appreciated you! I also enjoyed hearing about your school bus driving days. You must have had great fun dressing up for the kids when holidays came around. I'm sure that they all loved you!

You talked about "dory fishing." I'm not sure what that was about. Can you fill me in?

The story that was published about you and Bob helped the visitor get back to work on time was certainly touching. You and Bob had great compassion and love for people. You went out of your way to help and assist.

I'm so glad you wrote the book. It is a good example of what family, friends, and faith should be.

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