Hello @oronogo. You will see that have moved your post into an existing discussion so you can connect with these members to share your experience. So glad to hear you are able to sleep better!
How many mgs do you take?
What do you mean by better?
How often do you take gummies?
How much do you weigh?
I'm trying to collect and compare data to my father's. I've notice he isn't stiff as before taking cbd but he has dementia so is hard to gather any information from him, I have to judge by observation only.
Welcome to Mayo Connect's PD discussion group. I have had PD for many years and have had great help with the traditional PD meds such as Sinemet, Stalevo and Amantadine. I also exercise on a regular basis which makes a tremendous difference. I have never used CBD for any reason.
Could you share a bit about your history of PD? For example: how long ago were you diagnosed and at what age; what symptoms led to your diagnosis; what meds have you tried?
A PD diagnosis can be difficult to wrap your mind around but with the right combination of meds, exercise (including physical therapy) and a positive attitude PD can be a manageable disorder.
What type of exercise are you involved in right now?
Hello Teresa:
My name is John I’m 57 and I was diagnosed with PD back in 2018. When I was first diagnosed I got really depressed and stayed in bed for about 9 months. Things were bad! My weight sky rocketed to 250 pounds. I guess it was around April or May something just clicked and my wife and I started to go outside for walks. Yes I had to use a cane but that didn’t last long because once I fell I had to start using a rollator. I really hated that because here I was a 57 year old guy having to use a rollator. I felt embarrassed! Eventually I did a 5K WALK for the Parkinson’s Association of the Carolinas. I did so well by raising the highest amount of donors for a single walker. For that the gym has in my HONOR IS PERMITTING PEOPLE WITH PD TO USE THE BICYCLES AND TREADMILLS FREE OF CHARGE! It’s really pretty cool.
I’m currently on carbidopa-levodopa 3x daily. It helps out and my tremors are very minimal. It’s funny you talk about CBD because I have talked to my PD and family physician about that same subject not to long ago. Here is the response I received:
Neither doctor agreed taking CBD not because of what or where it comes from but because there is no regulation on the product. In other words I could go buy the CBD at one pharmacy and the ingredients would be one way and I could go to the local gas station and the ingredients could be another! Yes there is some marijuana in CBD and one never knows for certain how much marijuana each producer puts into their product. That’s why my doctors advised me NOT to take it!
I workout daily at a gym. I do yoga and other classes to keep my muscles flexible. I will say my knees are my sore spot but I yoga does help. I can definitely tell when I don’t go to the gym. I use a bike at the gym for 45 minutes for my cardio daily. I use weights for toning up not for bulking up! I do both free weights and the machines.
On Saturday and Sunday I generally workout at home. I use the balance ball to help me out with my stability. Even though I do yoga during the week I do the ball on the weekends.
Since you said you workout another workout I use is on my iPhone or iPad and that’s the Apple Fitness+ app. It is awesome. It has cardio, yoga, HIIT, ROWING AND SOME OTHER STUFF. I’m also into making my own fresh fruit juices like:
KIWI PEACH JUICE
1 med peach, pitted
1 kiwi peeled
2 cups fresh baby spinach leaves
1/4 avocado
5 ounces water
CREAMY PAPAYA BERRY JUICE
1 cup papaya diced, seed free
1 cup cranberries
2 cups fresh baby spinach or kale
5 ounces water
CRANBERRY NECTARINE JUICE
1 cup cranberries
1 nectarine, pitted
3 large strawberries
2 cups fresh baby spinach
5 ounces water
I drink one of these before I workout or I really go crazy and make a 100% fruit juice combo and I add 1/2 scoop vanilla whey, 1 scoop creatine, 8oz skim milk, 1 scoop low carb vanilla ice cream, 1/2 apple no seeds, 1/2 peach, pitted, 1/4 pear seeded, 6 green grapes, 1/2 kiwi skinned, 1/4 cup fresh cut pineapple, 1/2 plum, 1/4 mango, 1 cup fresh kale, 1/2 tangerine, 1/4 papaya seeded, and anything else you may enjoy! The whey is great for your muscles after you workout.
If you have any further questions feel free to ask! John
Hello Teresa:
My name is John I’m 57 and I was diagnosed with PD back in 2018. When I was first diagnosed I got really depressed and stayed in bed for about 9 months. Things were bad! My weight sky rocketed to 250 pounds. I guess it was around April or May something just clicked and my wife and I started to go outside for walks. Yes I had to use a cane but that didn’t last long because once I fell I had to start using a rollator. I really hated that because here I was a 57 year old guy having to use a rollator. I felt embarrassed! Eventually I did a 5K WALK for the Parkinson’s Association of the Carolinas. I did so well by raising the highest amount of donors for a single walker. For that the gym has in my HONOR IS PERMITTING PEOPLE WITH PD TO USE THE BICYCLES AND TREADMILLS FREE OF CHARGE! It’s really pretty cool.
I’m currently on carbidopa-levodopa 3x daily. It helps out and my tremors are very minimal. It’s funny you talk about CBD because I have talked to my PD and family physician about that same subject not to long ago. Here is the response I received:
Neither doctor agreed taking CBD not because of what or where it comes from but because there is no regulation on the product. In other words I could go buy the CBD at one pharmacy and the ingredients would be one way and I could go to the local gas station and the ingredients could be another! Yes there is some marijuana in CBD and one never knows for certain how much marijuana each producer puts into their product. That’s why my doctors advised me NOT to take it!
I workout daily at a gym. I do yoga and other classes to keep my muscles flexible. I will say my knees are my sore spot but I yoga does help. I can definitely tell when I don’t go to the gym. I use a bike at the gym for 45 minutes for my cardio daily. I use weights for toning up not for bulking up! I do both free weights and the machines.
On Saturday and Sunday I generally workout at home. I use the balance ball to help me out with my stability. Even though I do yoga during the week I do the ball on the weekends.
Since you said you workout another workout I use is on my iPhone or iPad and that’s the Apple Fitness+ app. It is awesome. It has cardio, yoga, HIIT, ROWING AND SOME OTHER STUFF. I’m also into making my own fresh fruit juices like:
KIWI PEACH JUICE
1 med peach, pitted
1 kiwi peeled
2 cups fresh baby spinach leaves
1/4 avocado
5 ounces water
CREAMY PAPAYA BERRY JUICE
1 cup papaya diced, seed free
1 cup cranberries
2 cups fresh baby spinach or kale
5 ounces water
CRANBERRY NECTARINE JUICE
1 cup cranberries
1 nectarine, pitted
3 large strawberries
2 cups fresh baby spinach
5 ounces water
I drink one of these before I workout or I really go crazy and make a 100% fruit juice combo and I add 1/2 scoop vanilla whey, 1 scoop creatine, 8oz skim milk, 1 scoop low carb vanilla ice cream, 1/2 apple no seeds, 1/2 peach, pitted, 1/4 pear seeded, 6 green grapes, 1/2 kiwi skinned, 1/4 cup fresh cut pineapple, 1/2 plum, 1/4 mango, 1 cup fresh kale, 1/2 tangerine, 1/4 papaya seeded, and anything else you may enjoy! The whey is great for your muscles after you workout.
If you have any further questions feel free to ask! John
I did not mention CBD, I do not take it myself and do not recommend it either. Unless you know the purity of the product (from start to finished product) it might not be healthy. I agree totally with your doctors.
I am so glad for your exercise program, that is the best way to deal with PD! Also, your smoothie recipes look great. They are healthy and look tasty.
Hi to all in these troublesome times hope all are well! Just an update I still do acupuncture but every two weeks, I only do CBD oil no other meds. My tremors have all but stopped, I sleep well and have only slight stiffness I take .5 mg twice a day Very happy with the results. Jonathan
Hi @jonathanfesik, I only just joined this discussion group and saw your post. Would you mind telling me how long ago you were diagnosed with PD? And what kind/brand of CBD oil do you use? I would really appreciate it. Thanking you in advance.
Hi, it's great and inspiring to hear how well people like John are doing with exercise routines. Wow! Gym sessions every day plus yoga and other activities! Congratulations, John, on turning yourself around so dramatically. That's wonderful! Exercise is definitely the way to fight PD: But I can't help thinking how it seems one would have to be retired, to be able to have so much time every day for exercise. I was diagnosed with PD one year ago and still work full time, not by choice but because in our countyr it's not considered a disability, so we don't get any disability pay, We just have to keep working for as long as we can. So it's difficult to dedicate 2 hours daily to gym sessions, etc. I realise this soundsa bit negative, but just wanted to share a different reality. Struggling to find a way to deal with this .
Hi to all in these troublesome times hope all are well! Just an update I still do acupuncture but every two weeks, I only do CBD oil no other meds. My tremors have all but stopped, I sleep well and have only slight stiffness I take .5 mg twice a day Very happy with the results. Jonathan
Hello Jonathan, would love to hear how you are doing taking the CBD twice daily. Is this a Oil capsule? We are just getting involved with CBD to help my mom with tremendous and constant neuralgia pain.
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How do you take .5 mg, if 1mg equals one drop?
Hi Parkin41 I have a dropper that gives me .5 at one time every morning under my tongue. Jonathan
I just got my card from the state of Missouri, and started taking the gummies at bedtime. It is helping me sleep much better.
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2 ReactionsHello @oronogo. You will see that have moved your post into an existing discussion so you can connect with these members to share your experience. So glad to hear you are able to sleep better!
How long have you been taking the gummies?
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Hug
1 ReactionHow many mgs do you take?
What do you mean by better?
How often do you take gummies?
How much do you weigh?
I'm trying to collect and compare data to my father's. I've notice he isn't stiff as before taking cbd but he has dementia so is hard to gather any information from him, I have to judge by observation only.
Hello Teresa:
My name is John I’m 57 and I was diagnosed with PD back in 2018. When I was first diagnosed I got really depressed and stayed in bed for about 9 months. Things were bad! My weight sky rocketed to 250 pounds. I guess it was around April or May something just clicked and my wife and I started to go outside for walks. Yes I had to use a cane but that didn’t last long because once I fell I had to start using a rollator. I really hated that because here I was a 57 year old guy having to use a rollator. I felt embarrassed! Eventually I did a 5K WALK for the Parkinson’s Association of the Carolinas. I did so well by raising the highest amount of donors for a single walker. For that the gym has in my HONOR IS PERMITTING PEOPLE WITH PD TO USE THE BICYCLES AND TREADMILLS FREE OF CHARGE! It’s really pretty cool.
I’m currently on carbidopa-levodopa 3x daily. It helps out and my tremors are very minimal. It’s funny you talk about CBD because I have talked to my PD and family physician about that same subject not to long ago. Here is the response I received:
Neither doctor agreed taking CBD not because of what or where it comes from but because there is no regulation on the product. In other words I could go buy the CBD at one pharmacy and the ingredients would be one way and I could go to the local gas station and the ingredients could be another! Yes there is some marijuana in CBD and one never knows for certain how much marijuana each producer puts into their product. That’s why my doctors advised me NOT to take it!
I workout daily at a gym. I do yoga and other classes to keep my muscles flexible. I will say my knees are my sore spot but I yoga does help. I can definitely tell when I don’t go to the gym. I use a bike at the gym for 45 minutes for my cardio daily. I use weights for toning up not for bulking up! I do both free weights and the machines.
On Saturday and Sunday I generally workout at home. I use the balance ball to help me out with my stability. Even though I do yoga during the week I do the ball on the weekends.
Since you said you workout another workout I use is on my iPhone or iPad and that’s the Apple Fitness+ app. It is awesome. It has cardio, yoga, HIIT, ROWING AND SOME OTHER STUFF. I’m also into making my own fresh fruit juices like:
KIWI PEACH JUICE
1 med peach, pitted
1 kiwi peeled
2 cups fresh baby spinach leaves
1/4 avocado
5 ounces water
CREAMY PAPAYA BERRY JUICE
1 cup papaya diced, seed free
1 cup cranberries
2 cups fresh baby spinach or kale
5 ounces water
CRANBERRY NECTARINE JUICE
1 cup cranberries
1 nectarine, pitted
3 large strawberries
2 cups fresh baby spinach
5 ounces water
I drink one of these before I workout or I really go crazy and make a 100% fruit juice combo and I add 1/2 scoop vanilla whey, 1 scoop creatine, 8oz skim milk, 1 scoop low carb vanilla ice cream, 1/2 apple no seeds, 1/2 peach, pitted, 1/4 pear seeded, 6 green grapes, 1/2 kiwi skinned, 1/4 cup fresh cut pineapple, 1/2 plum, 1/4 mango, 1 cup fresh kale, 1/2 tangerine, 1/4 papaya seeded, and anything else you may enjoy! The whey is great for your muscles after you workout.
If you have any further questions feel free to ask! John
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2 ReactionsHello John,
I did not mention CBD, I do not take it myself and do not recommend it either. Unless you know the purity of the product (from start to finished product) it might not be healthy. I agree totally with your doctors.
I am so glad for your exercise program, that is the best way to deal with PD! Also, your smoothie recipes look great. They are healthy and look tasty.
Hi @jonathanfesik, I only just joined this discussion group and saw your post. Would you mind telling me how long ago you were diagnosed with PD? And what kind/brand of CBD oil do you use? I would really appreciate it. Thanking you in advance.
Hi, it's great and inspiring to hear how well people like John are doing with exercise routines. Wow! Gym sessions every day plus yoga and other activities! Congratulations, John, on turning yourself around so dramatically. That's wonderful! Exercise is definitely the way to fight PD: But I can't help thinking how it seems one would have to be retired, to be able to have so much time every day for exercise. I was diagnosed with PD one year ago and still work full time, not by choice but because in our countyr it's not considered a disability, so we don't get any disability pay, We just have to keep working for as long as we can. So it's difficult to dedicate 2 hours daily to gym sessions, etc. I realise this soundsa bit negative, but just wanted to share a different reality. Struggling to find a way to deal with this .
-
Like -
Helpful -
Hug
1 ReactionHello Jonathan, would love to hear how you are doing taking the CBD twice daily. Is this a Oil capsule? We are just getting involved with CBD to help my mom with tremendous and constant neuralgia pain.
-
Like -
Helpful -
Hug
1 Reaction