CBD oil and Parkinsons

Posted by jonathanfesik @jonathanfesik, Feb 15 1:17pm

I have Parkinson's I was treating it with weekly acupuncture and started meds very dizzy and urinating constantly I want to try CBD anyone help?

Hello @jonathanfesik, welcome to Connect. As non-medical professionals, many on Connect rely on finding credible sources and personal experiences. CBD oil is always a bit more difficult because it is relatively new and in-depth clinical research has not yet been done extensively to provide information on its use for multiple diseases and side-effects. Here is an article that touches on CBD oil and Parkinson's, however, it is not from a medical accredited site and does mention research is limited, https://www.healthline.com/health/parkinsons-disease/cbd-oil-for-parkinsons. Here is what Mayo Clinic has to say about CBD oil in general terms, https://www.mayoclinic.org/healthy-lifestyle/consumer-health/expert-answers/is-cbd-safe-and-effective/faq-20446700.

@jonathanfesik, you mentioned the medications you have started have made you very dizzy, would you mind sharing what meds you have started? Does the acupuncture help?

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Hi, @jonathanfesik – I also wanted to welcome you to Mayo Clinic Connect. I'd like to invite some other Connect members who have talked about Parkinson's to comment on using CBD oil for Parkinson's. Please meet @pammettee @hopeful33250 @lsdempsey @pcolunio @hoard.

I'm wondering what Parkinson's symptoms in particular you are looking to alleviate, jonathanfesik?

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Hi @jonathanfesik,

Welcome to Mayo Connect's PD discussion group. I have had PD for many years and have had great help with the traditional PD meds such as Sinemet, Stalevo and Amantadine. I also exercise on a regular basis which makes a tremendous difference. I have never used CBD for any reason.

Could you share a bit about your history of PD? For example: how long ago were you diagnosed and at what age; what symptoms led to your diagnosis; what meds have you tried?

A PD diagnosis can be difficult to wrap your mind around but with the right combination of meds, exercise (including physical therapy) and a positive attitude PD can be a manageable disorder.

What type of exercise are you involved in right now?

Liked by Lisa Lucier, psvantx

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@lisalucier

Hi, @jonathanfesik – I also wanted to welcome you to Mayo Clinic Connect. I'd like to invite some other Connect members who have talked about Parkinson's to comment on using CBD oil for Parkinson's. Please meet @pammettee @hopeful33250 @lsdempsey @pcolunio @hoard.

I'm wondering what Parkinson's symptoms in particular you are looking to alleviate, jonathanfesik?

Jump to this post

Hi Lisa right tremors, stiffness tired and fall asleep at 8 but wake up at 5am slow walk right arm does not swing when I walk vivid dreams

Liked by Lisa Lucier

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@hopeful33250

Hi @jonathanfesik,

Welcome to Mayo Connect's PD discussion group. I have had PD for many years and have had great help with the traditional PD meds such as Sinemet, Stalevo and Amantadine. I also exercise on a regular basis which makes a tremendous difference. I have never used CBD for any reason.

Could you share a bit about your history of PD? For example: how long ago were you diagnosed and at what age; what symptoms led to your diagnosis; what meds have you tried?

A PD diagnosis can be difficult to wrap your mind around but with the right combination of meds, exercise (including physical therapy) and a positive attitude PD can be a manageable disorder.

What type of exercise are you involved in right now?

Jump to this post

Hi Teresa I'm a retired fire fighter I was diagnosed about 2 years ago my GP thought I should see a specialist I could not thread a needle any more because of tremors I,m 68 I started acupuncture it helps me and I'm not on any other medications but my last visit a month ago doc felt I should try Stalevo it makes me light headed I don't play hockey any more but still in good shape

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@jonathanfesik

Hi Teresa I'm a retired fire fighter I was diagnosed about 2 years ago my GP thought I should see a specialist I could not thread a needle any more because of tremors I,m 68 I started acupuncture it helps me and I'm not on any other medications but my last visit a month ago doc felt I should try Stalevo it makes me light headed I don't play hockey any more but still in good shape

Jump to this post

@jonathanfesik It sounds as if you have always been active. I'm sure you must miss that.

You mentioned that the Stalevo made you light-headed. Sometimes it takes a while before the benefits begin to appear and side effects disappear. Have you ever tried Sinemet?

I would encourage you to look into Parkinson's support groups in your area, especially any that offer exercise classes.

Do you have any type of exercise program now? Many PD patients enjoy boxing. Here are some links to websites with information about boxing and PD.
https://www.pdaids.com/boxing-therapy-for-pd-patients/
https://rocksteadyboxing.org/
It is important to exercise with PD, and if you can find an exercise program that you enjoy that is the best kind.

Liked by Lisa Lucier

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Hi Lisa, I am getting 5-9 emails every day from MayoConnect – all the same date. Can you make this stop?

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