1. < MAC & Bronchiectasis

7% Saline Solution

Posted by thumperguy @thumperguy, Jan 7, 2020

Got a supply of 7% vials and got a real jolt in my throat when I began inhaling it. However I quickly adapted to it and was able to finish the vial. Within a few minutes I was coughing and bringing stuff up - a first. I never had a timely response to 0.9. Bottom line: I guess the 7% solution is...well the real solution. Not to be confused with the Sherlock and Sigmund thing. Forgive my corny effort at mirth. Don

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suenfl | @suenfl | Jan 20, 2020
In reply to @sueinmn "@kathyhg and @suenfl My Pulmonologist went beyond getting defensive when I asked to consult an Infectious..." + (show)
@sueinmn

@kathyhg and @suenfl My Pulmonologist went beyond getting defensive when I asked to consult an Infectious Disease specialist when my MAC treatment wasn't working - HE fired ME! Possibly one of the best things that has happened to me with this stupid disease - I now have a much better Pulmo who actually listens to me, backed off my meds, and prescribed 7% saline (original guy also said No to this.) If you don't feel comfortable with any physician, it's time to find a different one, and one well-versed in your condition.
Come back to the group with your location, you're almost sure to get a recommendation...Sue

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Thank you! I am in Tallahassee.

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tamarrillo2 | @tamarrillo2 | Jan 21, 2020

I agree! I nebulize Duoneb and Budesonide. After that I add the saline. The saline was added to my regimen last year. It has made a huge difference for me. Good to hear it’s helping you too. 🙂

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Mentor
Terri Martin, Volunteer Mentor | @windwalker | Jan 22, 2020
In reply to @suenfl "I ask my Dr for saline and he said no! I am really upset. I tried..." + (show)
@suenfl

I ask my Dr for saline and he said no! I am really upset. I tried the "Big 3" back in July 2017, right after my diagnosis. Took them for 3 1/2 months...too sick to take care of myself. I can't believe he would be unwilling to give me saline. He also said no to the vest. Other than coughing, usually productive, I have no symptoms. My oxygen stays 97%-98%. I am on no meds, except for medical cannabis. I did have a pseudomonis in Dec 2018, after having day surgery to have my gallbladder out. That was my last hospitalization. Can anyone send me links to research articles that I can show this Dr. He wants me to go back on Big 3...no way!

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@suenfl, You can click on this link that I have here and print it out to show your dr. to try to convince him/her that you need the saline. Here is the saline chart. The chart is located near the end of the article. @flib, you may want to show this to your doctor. You can push the 'bookmark' tab underneath our texts to save it there. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4850692

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2 replies
poodledoc | @poodledoc | Jan 23, 2020
In reply to @windwalker "@suenfl, You can click on this link that I have here and print it out to..." + (show)
@windwalker

@suenfl, You can click on this link that I have here and print it out to show your dr. to try to convince him/her that you need the saline. Here is the saline chart. The chart is located near the end of the article. @flib, you may want to show this to your doctor. You can push the 'bookmark' tab underneath our texts to save it there. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4850692

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Very interesting article. Thanks for posting. So it appears MAC can actually be killed by the 7% saline.

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1 reply
kathyhg | @kathyhg | Jan 23, 2020

Thanks for the article. If 7% actually kills it, what does 3% do if anything?

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Mentor
Terri Martin, Volunteer Mentor | @windwalker | Jan 23, 2020
In reply to @poodledoc "Very interesting article. Thanks for posting. So it appears MAC can actually be killed by the..." + (show)
@poodledoc

Very interesting article. Thanks for posting. So it appears MAC can actually be killed by the 7% saline.

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@poodledoc Hi. I had read an article back in 2010 that the 7% saline was being used successfully in France to treat mac. I asked my pulmonologists in Tucson, Az about it and they said they had never heard of it and did not prescribe it for me. Then in 2013, I mentioned it to my Mayo dr and he said "Oh yeah, that is a fabulous idea, lets try it." After seeing the good results in me, I think he started to use it more and more. When I first started mentoring this group here; hardly anyone was being treated with the saline. If I had to guess, I'd say most of us are now, and most say they are doing better by using it. When we know better, we do better. *Saline treatment is not ideal for everyone. Patients with severely abscessed or very fragile lungs are not candidates for use.

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4 replies
heathert | @heathert | Jan 23, 2020
In reply to @windwalker "@poodledoc Hi. I had read an article back in 2010 that the 7% saline was being..." + (show)
@windwalker

@poodledoc Hi. I had read an article back in 2010 that the 7% saline was being used successfully in France to treat mac. I asked my pulmonologists in Tucson, Az about it and they said they had never heard of it and did not prescribe it for me. Then in 2013, I mentioned it to my Mayo dr and he said "Oh yeah, that is a fabulous idea, lets try it." After seeing the good results in me, I think he started to use it more and more. When I first started mentoring this group here; hardly anyone was being treated with the saline. If I had to guess, I'd say most of us are now, and most say they are doing better by using it. When we know better, we do better. *Saline treatment is not ideal for everyone. Patients with severely abscessed or very fragile lungs are not candidates for use.

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@windwalker If it wasn't for you my Dr wouldn't have put me on it when she did, now she recommends it, thanks Terri!!!!!!!!

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alleycatkate | @alleycatkate | Jan 23, 2020
In reply to @windwalker "@poodledoc Hi. I had read an article back in 2010 that the 7% saline was being..." + (show)
@windwalker

@poodledoc Hi. I had read an article back in 2010 that the 7% saline was being used successfully in France to treat mac. I asked my pulmonologists in Tucson, Az about it and they said they had never heard of it and did not prescribe it for me. Then in 2013, I mentioned it to my Mayo dr and he said "Oh yeah, that is a fabulous idea, lets try it." After seeing the good results in me, I think he started to use it more and more. When I first started mentoring this group here; hardly anyone was being treated with the saline. If I had to guess, I'd say most of us are now, and most say they are doing better by using it. When we know better, we do better. *Saline treatment is not ideal for everyone. Patients with severely abscessed or very fragile lungs are not candidates for use.

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@windwalker.. you are my go to source for so many things including nebulizing. I would not have known if not for you and this site. I have a lot to be grateful for. 🙏 Thank you!! Kate

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Mentor
Sue, Volunteer Mentor | @sueinmn | Jan 23, 2020
In reply to @windwalker "@poodledoc Hi. I had read an article back in 2010 that the 7% saline was being..." + (show)
@windwalker

@poodledoc Hi. I had read an article back in 2010 that the 7% saline was being used successfully in France to treat mac. I asked my pulmonologists in Tucson, Az about it and they said they had never heard of it and did not prescribe it for me. Then in 2013, I mentioned it to my Mayo dr and he said "Oh yeah, that is a fabulous idea, lets try it." After seeing the good results in me, I think he started to use it more and more. When I first started mentoring this group here; hardly anyone was being treated with the saline. If I had to guess, I'd say most of us are now, and most say they are doing better by using it. When we know better, we do better. *Saline treatment is not ideal for everyone. Patients with severely abscessed or very fragile lungs are not candidates for use.

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@windwalker I was treated by 2 different docs in the same practice, one refused to prescribe 7% saline, the other said "Oh, yes - it's good for keeping MAC from growing again" (I just got off the Big3.) Doc #1 had me on Breo, which was causing horrible irritation and loss of voice, Doc #2 switched me back to Flovent with Levalbuterol as a backup, both of which I knew I could tolerate. She said she would look for something else, but so far, with the saline it's enough.
When I told my daughter, an RN and an asthma/bronch patient herself, she said, "Well he (Doc #1) doesn't play well with others and doesn't take suggestions from anyone." Turns out she quit him a few years earlier...

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Tina Sims | @tinaesims | Jan 24, 2020
In reply to @windwalker "@poodledoc Hi. I had read an article back in 2010 that the 7% saline was being..." + (show)
@windwalker

@poodledoc Hi. I had read an article back in 2010 that the 7% saline was being used successfully in France to treat mac. I asked my pulmonologists in Tucson, Az about it and they said they had never heard of it and did not prescribe it for me. Then in 2013, I mentioned it to my Mayo dr and he said "Oh yeah, that is a fabulous idea, lets try it." After seeing the good results in me, I think he started to use it more and more. When I first started mentoring this group here; hardly anyone was being treated with the saline. If I had to guess, I'd say most of us are now, and most say they are doing better by using it. When we know better, we do better. *Saline treatment is not ideal for everyone. Patients with severely abscessed or very fragile lungs are not candidates for use.

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Yes, if it wasn't for this group I wouldn't of asked my doctor to start me on the saline solution. He didn't even a bat an eye and agreed.

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