7% Saline Solution

Posted by thumperguy @thumperguy, Tue, Jan 7 1:27pm

Got a supply of 7% vials and got a real jolt in my throat when I began inhaling it. However I quickly adapted to it and was able to finish the vial. Within a few minutes I was coughing and bringing stuff up – a first. I never had a timely response to 0.9. Bottom line: I guess the 7% solution is…well the real solution. Not to be confused with the Sherlock and Sigmund thing. Forgive my corny effort at mirth. Don

I ask my Dr for saline and he said no! I am really upset. I tried the "Big 3" back in July 2017, right after my diagnosis. Took them for 3 1/2 months…too sick to take care of myself. I can't believe he would be unwilling to give me saline. He also said no to the vest. Other than coughing, usually productive, I have no symptoms. My oxygen stays 97%-98%. I am on no meds, except for medical cannabis. I did have a pseudomonis in Dec 2018, after having day surgery to have my gallbladder out. That was my last hospitalization. Can anyone send me links to research articles that I can show this Dr. He wants me to go back on Big 3…no way!

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@suenfl.. Hi Sue…Perhaps you need to go for a second opinion? Sounds as though your Doc is not terribly concerned with your thoughts about your body and your treatment. Also sounds as though he may not be up or current on treatment for MAC. Do you live near a Mayo Clinic? My local pulmo said no to saline (no added moisture was his response) yet everything I read about saline made sense so I got my GP to script it….. Then I went to Mayo for a second opinion….The Mayo Dr said yes to nebulizing and gave me so much direction that my local Pulmo never even mentioned. I can't tell you how happy I was that I went for that opinion from someone that I trusted and felt was a specialist to the disease. I hope you get some peace of mind about the direction of your treatment. Good luck. Kate

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@alleycatkate

@suenfl.. Hi Sue…Perhaps you need to go for a second opinion? Sounds as though your Doc is not terribly concerned with your thoughts about your body and your treatment. Also sounds as though he may not be up or current on treatment for MAC. Do you live near a Mayo Clinic? My local pulmo said no to saline (no added moisture was his response) yet everything I read about saline made sense so I got my GP to script it….. Then I went to Mayo for a second opinion….The Mayo Dr said yes to nebulizing and gave me so much direction that my local Pulmo never even mentioned. I can't tell you how happy I was that I went for that opinion from someone that I trusted and felt was a specialist to the disease. I hope you get some peace of mind about the direction of your treatment. Good luck. Kate

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Thank you, Kate! I was feeling the same way about the Dr not being up-to-date. I appreciate this blog so much. I read everything I can on MAC and bronchiectasis. I learn so much here.

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I had a similar experience with my last respirologist. He prescribed the big 3 but nothing else. I think he might just not have been up-to-date on how to treat the disease. He said more than once that he wasn’t an expert on treating Mac but got defensive when I asked for a referral to someone with more expertise in treating Mac (my GP finally made the referral).

I am seeing a new respirologist now and using a nebulizer with saline and an Aerobika and making lifestyle changes to support treatment and general health.

I can’t say enough about how important it is to find doctors who really know how to treat this disease. I regret that I didn’t do that sooner as I’ve lost some hearing and have other lingering issues as a result of medication side effects.

Good luck in sorting this out!

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@kathyhg

I had a similar experience with my last respirologist. He prescribed the big 3 but nothing else. I think he might just not have been up-to-date on how to treat the disease. He said more than once that he wasn’t an expert on treating Mac but got defensive when I asked for a referral to someone with more expertise in treating Mac (my GP finally made the referral).

I am seeing a new respirologist now and using a nebulizer with saline and an Aerobika and making lifestyle changes to support treatment and general health.

I can’t say enough about how important it is to find doctors who really know how to treat this disease. I regret that I didn’t do that sooner as I’ve lost some hearing and have other lingering issues as a result of medication side effects.

Good luck in sorting this out!

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@kathyhg and @suenfl My Pulmonologist went beyond getting defensive when I asked to consult an Infectious Disease specialist when my MAC treatment wasn't working – HE fired ME! Possibly one of the best things that has happened to me with this stupid disease – I now have a much better Pulmo who actually listens to me, backed off my meds, and prescribed 7% saline (original guy also said No to this.) If you don't feel comfortable with any physician, it's time to find a different one, and one well-versed in your condition.
Come back to the group with your location, you're almost sure to get a recommendation…Sue

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@sueinmn

@kathyhg and @suenfl My Pulmonologist went beyond getting defensive when I asked to consult an Infectious Disease specialist when my MAC treatment wasn't working – HE fired ME! Possibly one of the best things that has happened to me with this stupid disease – I now have a much better Pulmo who actually listens to me, backed off my meds, and prescribed 7% saline (original guy also said No to this.) If you don't feel comfortable with any physician, it's time to find a different one, and one well-versed in your condition.
Come back to the group with your location, you're almost sure to get a recommendation…Sue

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Thank you! I am in Tallahassee.

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I agree! I nebulize Duoneb and Budesonide. After that I add the saline. The saline was added to my regimen last year. It has made a huge difference for me. Good to hear it’s helping you too. 🙂

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@suenfl

I ask my Dr for saline and he said no! I am really upset. I tried the "Big 3" back in July 2017, right after my diagnosis. Took them for 3 1/2 months…too sick to take care of myself. I can't believe he would be unwilling to give me saline. He also said no to the vest. Other than coughing, usually productive, I have no symptoms. My oxygen stays 97%-98%. I am on no meds, except for medical cannabis. I did have a pseudomonis in Dec 2018, after having day surgery to have my gallbladder out. That was my last hospitalization. Can anyone send me links to research articles that I can show this Dr. He wants me to go back on Big 3…no way!

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@suenfl, You can click on this link that I have here and print it out to show your dr. to try to convince him/her that you need the saline. Here is the saline chart. The chart is located near the end of the article. @flib, you may want to show this to your doctor. You can push the 'bookmark' tab underneath our texts to save it there. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4850692

Liked by poodledoc

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@windwalker

@suenfl, You can click on this link that I have here and print it out to show your dr. to try to convince him/her that you need the saline. Here is the saline chart. The chart is located near the end of the article. @flib, you may want to show this to your doctor. You can push the 'bookmark' tab underneath our texts to save it there. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4850692

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Very interesting article. Thanks for posting. So it appears MAC can actually be killed by the 7% saline.

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Thanks for the article. If 7% actually kills it, what does 3% do if anything?

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@poodledoc

Very interesting article. Thanks for posting. So it appears MAC can actually be killed by the 7% saline.

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@poodledoc Hi. I had read an article back in 2010 that the 7% saline was being used successfully in France to treat mac. I asked my pulmonologists in Tucson, Az about it and they said they had never heard of it and did not prescribe it for me. Then in 2013, I mentioned it to my Mayo dr and he said "Oh yeah, that is a fabulous idea, lets try it." After seeing the good results in me, I think he started to use it more and more. When I first started mentoring this group here; hardly anyone was being treated with the saline. If I had to guess, I'd say most of us are now, and most say they are doing better by using it. When we know better, we do better. *Saline treatment is not ideal for everyone. Patients with severely abscessed or very fragile lungs are not candidates for use.

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@windwalker

@poodledoc Hi. I had read an article back in 2010 that the 7% saline was being used successfully in France to treat mac. I asked my pulmonologists in Tucson, Az about it and they said they had never heard of it and did not prescribe it for me. Then in 2013, I mentioned it to my Mayo dr and he said "Oh yeah, that is a fabulous idea, lets try it." After seeing the good results in me, I think he started to use it more and more. When I first started mentoring this group here; hardly anyone was being treated with the saline. If I had to guess, I'd say most of us are now, and most say they are doing better by using it. When we know better, we do better. *Saline treatment is not ideal for everyone. Patients with severely abscessed or very fragile lungs are not candidates for use.

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@windwalker If it wasn't for you my Dr wouldn't have put me on it when she did, now she recommends it, thanks Terri!!!!!!!!

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@windwalker

@poodledoc Hi. I had read an article back in 2010 that the 7% saline was being used successfully in France to treat mac. I asked my pulmonologists in Tucson, Az about it and they said they had never heard of it and did not prescribe it for me. Then in 2013, I mentioned it to my Mayo dr and he said "Oh yeah, that is a fabulous idea, lets try it." After seeing the good results in me, I think he started to use it more and more. When I first started mentoring this group here; hardly anyone was being treated with the saline. If I had to guess, I'd say most of us are now, and most say they are doing better by using it. When we know better, we do better. *Saline treatment is not ideal for everyone. Patients with severely abscessed or very fragile lungs are not candidates for use.

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@windwalker.. you are my go to source for so many things including nebulizing. I would not have known if not for you and this site. I have a lot to be grateful for. 🙏 Thank you!! Kate

Liked by lorifilipek

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@windwalker

@poodledoc Hi. I had read an article back in 2010 that the 7% saline was being used successfully in France to treat mac. I asked my pulmonologists in Tucson, Az about it and they said they had never heard of it and did not prescribe it for me. Then in 2013, I mentioned it to my Mayo dr and he said "Oh yeah, that is a fabulous idea, lets try it." After seeing the good results in me, I think he started to use it more and more. When I first started mentoring this group here; hardly anyone was being treated with the saline. If I had to guess, I'd say most of us are now, and most say they are doing better by using it. When we know better, we do better. *Saline treatment is not ideal for everyone. Patients with severely abscessed or very fragile lungs are not candidates for use.

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@windwalker I was treated by 2 different docs in the same practice, one refused to prescribe 7% saline, the other said "Oh, yes – it's good for keeping MAC from growing again" (I just got off the Big3.) Doc #1 had me on Breo, which was causing horrible irritation and loss of voice, Doc #2 switched me back to Flovent with Levalbuterol as a backup, both of which I knew I could tolerate. She said she would look for something else, but so far, with the saline it's enough.
When I told my daughter, an RN and an asthma/bronch patient herself, she said, "Well he (Doc #1) doesn't play well with others and doesn't take suggestions from anyone." Turns out she quit him a few years earlier…

Liked by poodledoc

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@windwalker

@poodledoc Hi. I had read an article back in 2010 that the 7% saline was being used successfully in France to treat mac. I asked my pulmonologists in Tucson, Az about it and they said they had never heard of it and did not prescribe it for me. Then in 2013, I mentioned it to my Mayo dr and he said "Oh yeah, that is a fabulous idea, lets try it." After seeing the good results in me, I think he started to use it more and more. When I first started mentoring this group here; hardly anyone was being treated with the saline. If I had to guess, I'd say most of us are now, and most say they are doing better by using it. When we know better, we do better. *Saline treatment is not ideal for everyone. Patients with severely abscessed or very fragile lungs are not candidates for use.

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Yes, if it wasn't for this group I wouldn't of asked my doctor to start me on the saline solution. He didn't even a bat an eye and agreed.

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