1. < Autoimmune Diseases

Pernicious Anemia and B12 Ranges

Posted by bumble81 @bumble81, Sep 18, 2019

I was diagnosed in 2015. Do any of you with PA still have symptoms related to your PA even when your B12 levels are in normal ranges? I was under the impression that getting B12 shots would eliminate any issues caused by PA.

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Mentor
John, Volunteer Mentor | @johnbishop | Sep 18, 2019

@bumble81 there is another discussion with the same name. I'm tagging our moderator @ethanmcconkey to see if we should combine your discussion with the following discussion started by @pdsi43one.

> Groups > Autoimmune Diseases > Pernicious anemia
-- https://connect.mayoclinic.org/discussion/pernicious-anemia-1/

There is also a Mayo Clinic News Network article you may be interested in seeing -- TUESDAY Q & A: Vitamin B-12 deficiency more common with increasing age: https://newsnetwork.mayoclinic.org/discussion/tuesday-q-a-vitamin-b-12-deficiency-more-common-with-increasing-age/

Have you asked your doctor if the B12 shots would eliminate any issues caused by pernicious anemia?

REPLY
2 replies
peach414144 | @peach414144 | Sep 18, 2019
In reply to @johnbishop "@bumble81 there is another discussion with the same name. I'm tagging our moderator @ethanmcconkey to see..." + (show)
@johnbishop

@bumble81 there is another discussion with the same name. I'm tagging our moderator @ethanmcconkey to see if we should combine your discussion with the following discussion started by @pdsi43one.

> Groups > Autoimmune Diseases > Pernicious anemia
-- https://connect.mayoclinic.org/discussion/pernicious-anemia-1/

There is also a Mayo Clinic News Network article you may be interested in seeing -- TUESDAY Q & A: Vitamin B-12 deficiency more common with increasing age: https://newsnetwork.mayoclinic.org/discussion/tuesday-q-a-vitamin-b-12-deficiency-more-common-with-increasing-age/

Have you asked your doctor if the B12 shots would eliminate any issues caused by pernicious anemia?

Jump to this post

what can help pantypacemia anemia? It just gets worse. Less cells as aging happens even though I see an oncologist. Maybe once a year a b12 shot, once a year a drip of ferretin. Nothing helps the fatigue. I seem to have so very many medical problems. I guess because of this. It affects the entire body. (Just feeling sorry for myself again). But the Psoriatic and rheumatoid arthtitis are swelling the legs and the chronic venus insufficiency is swelling at the same time. The doctors are confused. I would be to if I were one of them. How to treat when this is going on? About almost two years now. It would be easy to give up. But I keep fighting. The pain is unbelievable. Worry for the cat a d dog keeps me going. It is just as if they are my children and I live for their welfare. Opiods are worthless for the pain. 4 advils help somewhat. Ahhhh, the will to live is so terribly strong. Sorry to disturb anyone but writing this seems to help the mind somewhat. Of course I think of wanting to die to rid the pain. I think it can be a natural thing. The doctors laugh if i bring up the pain pump. Being 82 and having more painful health problems are not enough for the pump I am told. So here we are. I do thank all of you for your time and understanding. One last ting: One of my conditions is I am legally blinf and cotinuing to lose the rest of my sight slowly. This would be the last straw. Again, I am not ready yet but who knows? Who could have the will power, the guts Not yet. to actually pull the trigger?

REPLY
2 replies
Mentor
John, Volunteer Mentor | @johnbishop | Sep 18, 2019
In reply to @peach414144 "what can help pantypacemia anemia? It just gets worse. Less cells as aging happens even though..." + (show)
@peach414144

what can help pantypacemia anemia? It just gets worse. Less cells as aging happens even though I see an oncologist. Maybe once a year a b12 shot, once a year a drip of ferretin. Nothing helps the fatigue. I seem to have so very many medical problems. I guess because of this. It affects the entire body. (Just feeling sorry for myself again). But the Psoriatic and rheumatoid arthtitis are swelling the legs and the chronic venus insufficiency is swelling at the same time. The doctors are confused. I would be to if I were one of them. How to treat when this is going on? About almost two years now. It would be easy to give up. But I keep fighting. The pain is unbelievable. Worry for the cat a d dog keeps me going. It is just as if they are my children and I live for their welfare. Opiods are worthless for the pain. 4 advils help somewhat. Ahhhh, the will to live is so terribly strong. Sorry to disturb anyone but writing this seems to help the mind somewhat. Of course I think of wanting to die to rid the pain. I think it can be a natural thing. The doctors laugh if i bring up the pain pump. Being 82 and having more painful health problems are not enough for the pump I am told. So here we are. I do thank all of you for your time and understanding. One last ting: One of my conditions is I am legally blinf and cotinuing to lose the rest of my sight slowly. This would be the last straw. Again, I am not ready yet but who knows? Who could have the will power, the guts Not yet. to actually pull the trigger?

Jump to this post

Hi Peach @peach414144 -- Never heard of that type of anemia? Sorry to hear you haven't found anything for the fatigue. It may not help the fatigue but sometimes a piece of dark chocolate helps the soul. Hoping you find a way to get some energy along with some relief for the pain.

Can chocolate be good for my health?
-- https://www.mayoclinic.org/healthy-lifestyle/nutrition-and-healthy-eating/expert-answers/healthy-chocolate/faq-20058044

REPLY
1 reply
peach414144 | @peach414144 | Sep 18, 2019
In reply to @johnbishop "Hi Peach @peach414144 -- Never heard of that type of anemia? Sorry to hear you haven't..." + (show)
@johnbishop

Hi Peach @peach414144 -- Never heard of that type of anemia? Sorry to hear you haven't found anything for the fatigue. It may not help the fatigue but sometimes a piece of dark chocolate helps the soul. Hoping you find a way to get some energy along with some relief for the pain.

Can chocolate be good for my health?
-- https://www.mayoclinic.org/healthy-lifestyle/nutrition-and-healthy-eating/expert-answers/healthy-chocolate/faq-20058044

Jump to this post

Thank you John. Ah yes, I do love the dark chocolate especially with liquid cranberry inside and cold from the refrigerator. This anemia has insufficient cells in the blood needed to feed the body. White cells and all of the other cells. Of course I have spelled it incorrectly and I just do not want to look it up now as I am getting ready to just lie down for the night. Big day tomorrow as physical therapy is waiting for my legs. Therapy gives me a reason to continue on. Maybe it will help some. Must continue to have hope. Just heard: Stents in the leg veins for vascular insufficiency. Wow! Hope? Here I am Going for arterial and venus doppler tests next month. Good but why must we wait so long for the testing? So hope will be served with dinner tonight. John, you are a caring person to listen to all the ailments from the many of us; especially with all your problems. I am grateful for your time and caring as I am sure the rest of us do. You seem to allways be there for us. Thank you again. peach barbara

REPLY
beanglow | @beanglow | Sep 19, 2019
In reply to @peach414144 "what can help pantypacemia anemia? It just gets worse. Less cells as aging happens even though..." + (show)
@peach414144

what can help pantypacemia anemia? It just gets worse. Less cells as aging happens even though I see an oncologist. Maybe once a year a b12 shot, once a year a drip of ferretin. Nothing helps the fatigue. I seem to have so very many medical problems. I guess because of this. It affects the entire body. (Just feeling sorry for myself again). But the Psoriatic and rheumatoid arthtitis are swelling the legs and the chronic venus insufficiency is swelling at the same time. The doctors are confused. I would be to if I were one of them. How to treat when this is going on? About almost two years now. It would be easy to give up. But I keep fighting. The pain is unbelievable. Worry for the cat a d dog keeps me going. It is just as if they are my children and I live for their welfare. Opiods are worthless for the pain. 4 advils help somewhat. Ahhhh, the will to live is so terribly strong. Sorry to disturb anyone but writing this seems to help the mind somewhat. Of course I think of wanting to die to rid the pain. I think it can be a natural thing. The doctors laugh if i bring up the pain pump. Being 82 and having more painful health problems are not enough for the pump I am told. So here we are. I do thank all of you for your time and understanding. One last ting: One of my conditions is I am legally blinf and cotinuing to lose the rest of my sight slowly. This would be the last straw. Again, I am not ready yet but who knows? Who could have the will power, the guts Not yet. to actually pull the trigger?

Jump to this post

Hi Peach,
I admire your determination and persistence in all you are going through. I just got more bad news today about my blood marrow biopsy. I also have CIPO, Sjogren's and other autoimmune diseases. I have no idea what else is in store for me. It's hard not to become discouraged. I don't know why the doctors would not give you a pain pump if you are in that much pain. I hope things improve for you. Elaine

REPLY
1 reply
peach414144 | @peach414144 | Sep 19, 2019
In reply to @beanglow "Hi Peach, I admire your determination and persistence in all you are going through. I just..." + (show)
@beanglow

Hi Peach,
I admire your determination and persistence in all you are going through. I just got more bad news today about my blood marrow biopsy. I also have CIPO, Sjogren's and other autoimmune diseases. I have no idea what else is in store for me. It's hard not to become discouraged. I don't know why the doctors would not give you a pain pump if you are in that much pain. I hope things improve for you. Elaine

Jump to this post

Thank you for caring. I also have Sjogrens and rheumatoid arthritis, and, and, and. (Long list). Perhaps we have to many people on this planet and if we do not stop the polluting of this planet we are killing ourselves as well as this magnificant planet. (And the horrendus treatment of the wild animals for greed, etc. It is disgusting. Where has our goodness gone? Keep up the love some how.

REPLY
TERESA LOGAN | @quiteachiver75 | Sep 24, 2019
In reply to @johnbishop "@bumble81 there is another discussion with the same name. I'm tagging our moderator @ethanmcconkey to see..." + (show)
@johnbishop

@bumble81 there is another discussion with the same name. I'm tagging our moderator @ethanmcconkey to see if we should combine your discussion with the following discussion started by @pdsi43one.

> Groups > Autoimmune Diseases > Pernicious anemia
-- https://connect.mayoclinic.org/discussion/pernicious-anemia-1/

There is also a Mayo Clinic News Network article you may be interested in seeing -- TUESDAY Q & A: Vitamin B-12 deficiency more common with increasing age: https://newsnetwork.mayoclinic.org/discussion/tuesday-q-a-vitamin-b-12-deficiency-more-common-with-increasing-age/

Have you asked your doctor if the B12 shots would eliminate any issues caused by pernicious anemia?

Jump to this post

THANKS FOR THIS ARTICLE THE WEB PAGES WERE VERY HELPFULL. I DO GET VIT B12 EVERY MONTH. I FEEL IT HELPS

REPLY
peach414144 | @peach414144 | Sep 24, 2019

DEAR MAYO CLINIC MEMBERS; THE NAME OF THE ANEMIA THAT I HAVE IS PANCYTOPENIA. IS THIS A DANGEROUS ILLNESS TO HAVE? I HAVE LOOKED IT UP AND NOTHING IS SAID ABOUT HOW DANGEROUS IT IS. PERHAPS I WORRY FOR NAUGHT? I DO GO TO AN ONCOLOGIST FOR THIS.

REPLY
2 replies
Mentor
John, Volunteer Mentor | @johnbishop | Sep 25, 2019
In reply to @peach414144 "DEAR MAYO CLINIC MEMBERS; THE NAME OF THE ANEMIA THAT I HAVE IS PANCYTOPENIA. IS THIS..." + (show)
@peach414144

DEAR MAYO CLINIC MEMBERS; THE NAME OF THE ANEMIA THAT I HAVE IS PANCYTOPENIA. IS THIS A DANGEROUS ILLNESS TO HAVE? I HAVE LOOKED IT UP AND NOTHING IS SAID ABOUT HOW DANGEROUS IT IS. PERHAPS I WORRY FOR NAUGHT? I DO GO TO AN ONCOLOGIST FOR THIS.

Jump to this post

Hi Peach @peach414144 -- Pancytopenia is a condition that occurs when a person has low counts for all three types of blood cells: red blood cells, white blood cells, and platelets. Has your doctor suggested any treatment?

Medical News Today (2017) - What you should know about pancytopenia
-- https://www.medicalnewstoday.com/articles/320075.php

REPLY
1 reply
Mentor
Becky, Volunteer Mentor | @becsbuddy | Sep 25, 2019
In reply to @peach414144 "DEAR MAYO CLINIC MEMBERS; THE NAME OF THE ANEMIA THAT I HAVE IS PANCYTOPENIA. IS THIS..." + (show)
@peach414144

DEAR MAYO CLINIC MEMBERS; THE NAME OF THE ANEMIA THAT I HAVE IS PANCYTOPENIA. IS THIS A DANGEROUS ILLNESS TO HAVE? I HAVE LOOKED IT UP AND NOTHING IS SAID ABOUT HOW DANGEROUS IT IS. PERHAPS I WORRY FOR NAUGHT? I DO GO TO AN ONCOLOGIST FOR THIS.

Jump to this post

@peach414144 Good morning. We are all volunteers here and no one is knowledgeable enough to give you medical advice. You say that you are seeing an oncologist. That’s good. What is your treatment plan? Any medications? I would encourage you to ask your doctor about the seriousness of your disease. Will you do that? And, let us know what you are told.

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