How do you deal with dry eyes?

Posted by maryy @maryy, Jun 10, 2019

I have dry eyes due to sjogren's syndrome. Does anyone else deal with dry eyes?

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Profile picture for bustrbrwn22 @bustrbrwn22

@lacy2. I totally agree and am just figuring that out for my own body! 55 yo and just figuring that out, crazy. My sister had the narrow vision and the surgery corrected her vision but she takes no other medication. She’s almost 80, very overweight, and has no other issues while the me and one of my other sisters have all kinds of issues and we were the ones that worked out, ate healthy, watched our weight, etc. go figure

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Hi all? i am writing in response to" weiss ring", who posted re: a floater, via vitreous detachment. My husband had cataract sx in june,2020, since then so many issues ! sx went well however, a large floater developed on side of eye. went to 5 opthalmologists, and all they did was of course, prescribe drops, hes been on so many drops, cant keep up the list ! really? after reading all of your posts, i find he is not alone ! i wonder about these doctors and why no one can really find why these things occur. He does have sinus issues, living here in humid florida. I know the eye is affected by the sinus cavity, no eye doctor will tell him that, but he did go to an ENT, she said she couldnt find anything wrong. He has some pain in right eye after, almost 9-10 months now, off and on.
he went s far as leaving town, to an island in caribbean, for 8 weeks, and his eye LITERALLY , cleared up !! i was shocked.
he is back in florida with same issues. Go fiqure! he probably will have to move there ! anyone????

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the pain yes, cleared up and the light sensitivity, which i didnt even mention, from the start of all this 1 omg i have been thru enough with him suffering and complaining, but i understand too !anyway he just went for it he is 67m healthy and decided to get out of fla, and go surfing ( his passion) for 2 months ! best thing he ever did, instead of hoping and praying on doctors !!!!

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Profile picture for ess77 - Elizabeth @ess77

@sue225 Thanks, Sue. I'll that. BTW: the Bruder was recommended by the Mayo doc. not me....blessings, elizabeth

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@ess77 May I ask what "Bruder" is? thanks so much for sharing

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Profile picture for bustrbrwn22 @bustrbrwn22

@ess77 May I ask what "Bruder" is? thanks so much for sharing

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@bustrbrwn22 Dure! Gotta' laugh, since I just threw it out there, didn't I? So sorry...Bruder is a co that makes medical supplies for eye...at the instruction of my Opthomologist at Mayo, I ordered some things for my eyes.....eye patches filled with little beads you warm in the microwave; a spray I use on my lids a couple times daily, very cooling and let it dry a few seconds - cleans the lid surface; couple of other items I got since on sale....I'm a SUCKER!

Also got a sinus mask with beads to warm a few seconds in microwave and melt as it takes away the sinus/eye pain, etc. The products are well made, exactly as presented, work wonders for me.

Used eye masks last nite and no night eye issues. I'm still using the steroid drops, thank the good Lord for those. This is the first time in years I can see clearly, all the time! with no pain and not much itch or blur or other stuff. I still get double vision when i'm tired. Doctor says now it's caused by weakened muscles - my body and muscles don't get along well.

I take dopamine to help and it gives my legs ability to walk better, lift and don't feel like tree trunks anymore. Dopamine is good stuff for me. I've needed to improve the dopamine level in my brain for a long time, but finally, taking it for RLS, I find it helps tremendously with other muscle/movement/depression/me issues. Love the stuff! Parkinson's is a possibility......

Amazing...back on the eye diagnosis-.sarcoid and everyone missed it even tho I mentioned it to each doc. Sarcoid can blind a person. I thought I was going blind as nothing cleared up for weeks.....just plain scary.....but sight is back and good and I'm better. And, I'll use the Bruder items forever I'm sure. They are truly helpful. Wonder why no other doctor has ever mentioned any of these solutions? I'm thrilled this one did! It has led to good things, especially with the pollen season exploding and I'm covered in yellow! ...Blessings, BB22. elizabeth

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Profile picture for bustrbrwn22 @bustrbrwn22

@ess77. Hi Elizabeth. Is there a Systane gel at night that doesn’t have preservatives or additives? I just looked at what I bought and it has .001% preservative. Thanks

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@bustrbrwn22 Hi, bb22...don't know. Will ck it out as I absolutely goofed on that one. I use the gel drops rarely, but they do help as they're thicker....but may be a good thing I only used a bit since the preservatives.....primarily thimerisol is tough on my eyes. I'll ck online and see....blessings, elizabeth

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Profile picture for lioness @lioness

@marye2 I've had fibromyalgia since the late 90,s Tried ever on the market finally looked into non prescriptions was in a fibro group they suggested isometric exercises and they do also just Light stretching I take magnesium malate. I haven had a flare up in awhi,awhile, but Zim sure you know how it is ,cant do anything and nothing you try helps thank good mine only last 1 day how bout you ?

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Like you, flare ups don't last long. I know when I've goofed with food the next day, and then revert to my usual non-processed diet, low sugar. But with fibro, best to not rest through it; movement is important. I do a daily walk which helps with tight chest muscles. PT was great, and I have the yoga/isometric/pilates stretches from PT. I wish I would do them daily! My hip/sciatica act up when I do not move enough.

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Depending how bad, the dryness is, I have the Systane liquid tears, PM ointment and an RX from ophthalmologist. I just use them as needed. If your eyes are blurry, they are dry, also.

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Opthalmologists are what I go to for my visits, even though Optometrists think they can treat it all. I think it was nice that your Dr traded you to another one to try. Sometimes, just get crossways with a Dr and can't be nicey nice any more! I think you are worth the cost of the trip to Toronto/hotel room. Sounds like you have a fairly complex case and so one does what they must. Take care.

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I have lots of floaters, but at this point they are not worth the procedure, which sounds like it needs more time to get better technologically. They tend to shift around, which is good. They say to look up/look down a few times to dislodge them to somewhere less noticeable. For light sensitivity, which I have, I wear sunglasses (blue blockers are great) and a hat for overhead lights. Fluorescents are the worst for me.

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Profile picture for ess77 - Elizabeth @ess77

@marye2, et al. This has been a long and really difficult journey with these dry eyes of mine. I now, after many years of trying to find something to give me some relief....it seemed to only get worse and symptoms increased and worsened. After visitng my long-term opthomologist and more of the same, I saw the optomotrist at Mayo for glasses w/prisms for double vision assistance
Welll, I reminded her I have Sarcoid, autoimmune disease since I was 40, I'm 74 now, and it hits the eyes often as it does the lungs; I have sarcoid attacks periodically and am always aware it's there.
Funny thing...I had indications of residual sarcoid in my eyes. Missed by my doc and others.....several months ago I went through a couple of weeks when I actually thought I was losing my eyesight, going blind. It was weird, with wosening and long term blurry sight, dull and just off so nothing was clear. Then it cleared up, then back again and I went for several days with much worse sight, buring, dry, itching, light sensitivity was horrid....she prescribed a couple weks ago a steroid eye drop that is amazing. For the first time in years, I can see clearly, with few blurred times and all the other stuff is far less. Now, I live in Fl and we have everything in the world blooming now, so my allergy eyes are having tough time.

I'm tapering off the steroid drops. using Refresh Dry Eye and Systane Dry Eye as needed duriing day, have used PM jel drops and love them. Alwyas ck to be sure no additives, no preservatives, no thimerisol at all.

Also, this doc suggested warm eye patch compresses daily, and an eye mask at night with warm compresses. If you want to think you've gone to heaven, try it. Works wonders for relaxation of body, but also relaxation and pain removal of eyes. Highly recommend. Try Bruder, ordered on-line, got wipes for lids too. Good stuff.
Wishing you all well on this search. elixabeth

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I have the Sjogrens overlap for MCTD, and dry eyes, mouth and skin with that. Blurriness is dry eyes - I use Systane during the day; PM ointment at night as needed, and Pataday RX when I need to up the game for "crunchy" eyes. If you can find a light weight, not tight, eyemask for nighttime that will help, too.

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