My dad has a mass on bladder and kidney not functioning

Thanks for all your input! His apt with his normal physician went well he ordered a ct to see if his pain is from scar tissue then we can go from there on next steps. He was very happy to have someone at least take him seriously-yes he was VERY discouraged! not to mention hes sitting around with cancer growing inside waiting for insurance to approve treatment that has been denied once. everyday he has been taking two ex strength Tylenol for weeks because of the pain.. He has been telling the cancer doc- and the surgeon.. the surgeon said well maybe you ate something hows your diet? Dad was kinda taken back by that comment. so im glad to hear his doc is heading in some direction:)

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@formydad It's good to hear the doctors are appealing the decision by the insurance company. I guess they want to hear how serious his team is about treating the situation like this? Pull out the big guns! Will a personal interview with the insurance people help his situation? Heck, we'll all pile into that room and overpower them with testimony on his behalf!!
When is the CT scan set for? I want to put that on my calendar.
Ginger

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Ugh! I am SO ridiculously frustrated and really wondering why doctors send people to the er to sit in lobby for hour on end. My mom and dad i know are not alone. But since his surgery they have been sitting in er’s for at least three days time lost. At least 5 trips or more. 🙁
Today was my dads ct. the radiologist told him he needs to get to er sees pockets of fluid or who knows- its not good. 🙄my dad was like um ok- so he called his doc who ordered ct he said yes you should go -we’ll call ahead and get tell your urologist informed too ct is being sent there now so dad left went home grabbed mom and went up to er that was at 4:15 today. Its 10:14. They are still in lobby- they put an iv thing in his arm and sat him back down in lobby. Meanwhile theres a pandemic.. with corono- dad has cancer and now whatevers going on. My mom has ongoing issues gerd- hiatal hernias- and copd. They are over 70 and shouldnt be sitting there for hours i want to ring a neck! Good news. They approved treatment but now doc thinks might be too close to spine n only kidney left with proton so might mix treatment. My question is hes been sitting waiting so long - have the spots changed? Gotten worse or better will they even check? 😥

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Ugh! I am SO ridiculously frustrated and really wondering why doctors send people to the er to sit in lobby for hour on end. My mom and dad i know are not alone. But since his surgery they have been sitting in er’s for at least three days time lost. At least 5 trips or more. 🙁
Today was my dads ct. the radiologist told him he needs to get to er sees pockets of fluid or who knows- its not good. 🙄my dad was like um ok- so he called his doc who ordered ct he said yes you should go -we’ll call ahead and get tell your urologist informed too ct is being sent there now so dad left went home grabbed mom and went up to er that was at 4:15 today. Its 10:14. They are still in lobby- they put an iv thing in his arm and sat him back down in lobby. Meanwhile theres a pandemic.. with corono- dad has cancer and now whatevers going on. My mom has ongoing issues gerd- hiatal hernias- and copd. They are over 70 and shouldnt be sitting there for hours i want to ring a neck! Good news. They approved treatment but now doc thinks might be too close to spine n only kidney left with proton so might mix treatment. My question is hes been sitting waiting so long - have the spots changed? Gotten worse or better will they even check? 😥

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@formydad I can totally sympathize with you and your parents. I too had one of those long ER waits very recently. My doctor sent me there for an ultrasound to rule out DVT in my leg and said he called ahead. They said in the ER that it was not possible! So there we waited for six hours, finally got out at 2:00 A.M. I too am over 70 and my husband is over 80.
Good question about the spots. Has he or you contacted his doctor to ask that question? His doctor is really the only person who can answer that question, and even if the spots have gotten worse, what is, is. At this point you can't turn back the clock. This is another area where I am in a similar position. My PCP dropped the ball on DEXA scans and I now have rather advanced osteoporosis. I'm pretty upset at him but I can't go back, only forward.
Just know, you are not alone at all in your frustrations.
JK

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Forgive me for my rant last-night- And Thank you for sharing your experience with me- it seems so wrong to call something an emergency room and have to wait so long. And true going forward is the only option no-matter how long they make you wait or the cancer spreads.

Last night I learned a lot. Im young in the Lord and i have a lot of growing up to do. i know we’ll never be perfected this side of life and that sure showed last night.
I know in my Heart that Christ is before all things and that all things hold together IF your resting in him. Last-night i was not. I was researching for answers till after midnight - wondering why none of his docs seem capable of making a decision or seem like they are fighting for him and i was telling my dad he needs to call his docs latenight number and let him know your still waiting. (Ugh such bad advise 🙁 ... I was so worked up i was ready to drive up and let someone there know.. im a few hours away.
But God is faithful and a thought popped in my head, what makes you think your dad is more precious to me than the person sitting next to him there. So i was calmed some by that thought. And I stopped and tried to sleep.
Woke at 4 though tried to get info but apparently they were in a basement with no means to communicate. SO i had a long night of learning... im reading through a book to seek and to save - daily reflections on the road to the cross by Sinclair B Ferguson. I saw myself lastnight in someone i was reading about This past week. Luke 10:38-42 the very different sisters - mary and Martha i was acting like Martha. Overwhelmed and not focused on the Lord. But He is growing me up. Very publicly 😊here. Im humbled and im grateful. For His word this little place and His faithful reminders that keep me in check!
I still have to talk to my parents on what the docs decided. Ill update as soon as i find out. Thanks for putting up with me ❤️

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@formydad your testimony really resonated with me. I started following your posts a year ago when they came up in a kidney/bladder group discussion before they were moved to the cancer group. I have stage 4 chronic kidney disease (CKD). I believe I will need a kidney transplant at some point but am trying to wait with trust that the details are in God’s hands. My heart goes out to you & your folks when I read about the Dr. appointments, tests, treatments, ER visits, insurance struggles, other health issues .....etc. You and your family are in my thoughts and prayers. People who pray are called Prayer Warriors for a reason. There are so many battles this side of heaven. But God is in control and we believers know how this ends. Rest in His sovereignty and soak up the help & support offered here by these great members, volunteers and mentors.

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Forgive me for my rant last-night- And Thank you for sharing your experience with me- it seems so wrong to call something an emergency room and have to wait so long. And true going forward is the only option no-matter how long they make you wait or the cancer spreads.

Last night I learned a lot. Im young in the Lord and i have a lot of growing up to do. i know we’ll never be perfected this side of life and that sure showed last night.
I know in my Heart that Christ is before all things and that all things hold together IF your resting in him. Last-night i was not. I was researching for answers till after midnight - wondering why none of his docs seem capable of making a decision or seem like they are fighting for him and i was telling my dad he needs to call his docs latenight number and let him know your still waiting. (Ugh such bad advise 🙁 ... I was so worked up i was ready to drive up and let someone there know.. im a few hours away.
But God is faithful and a thought popped in my head, what makes you think your dad is more precious to me than the person sitting next to him there. So i was calmed some by that thought. And I stopped and tried to sleep.
Woke at 4 though tried to get info but apparently they were in a basement with no means to communicate. SO i had a long night of learning... im reading through a book to seek and to save - daily reflections on the road to the cross by Sinclair B Ferguson. I saw myself lastnight in someone i was reading about This past week. Luke 10:38-42 the very different sisters - mary and Martha i was acting like Martha. Overwhelmed and not focused on the Lord. But He is growing me up. Very publicly 😊here. Im humbled and im grateful. For His word this little place and His faithful reminders that keep me in check!
I still have to talk to my parents on what the docs decided. Ill update as soon as i find out. Thanks for putting up with me ❤️

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