Oral lichen Planus: What home remedies or medications help you?

@johnbishop Hello again, John. I forgot to mention, I've finally had a mouth guard made by my dentist. This involved having molds (moulds? Lol) made of my teeth but not too big a deal to go through. Very costly ($600 for me with no dental plan) but I am so desperate to help the pain and misery of Lichen Planus. My thought in getting the mouth appliance was that it would help keep my teeth away from my sore tongue and cheeks, lips, etc. The material it's made from is silky soft and softish in my mouth.
And it does work, giving me relief when I need it! I usually wear it at night, but also sometimes during the day during painful periods.

@fdixon63 have you read @orangealert’s post here dated October 20, 2020? Worth giving that Rembrandt toothpaste a shot. My lichen planus is under control now by using Methotrexate (prescribed by my dermatologist - took about four to six weeks before I saw result) but if my mouth ever flares up again, I’m going to get a tube and try it out!

@rashida, my diagnosis was burning mouth syndrome. I wouldn't describe my feelings like razor cuts. My mouth, tongue, and lips felt like they were on fire. In the winter, I used my cold hands to press on my lips and I sucked on ice for inside my mouth. I kept telling the doctors that the inside my mouth felt like a garbage can. Not sure why I chose that comparison. That is under control with the Clonazepam. Razor cuts would describe what is going on in my vulva area. That was diagnosed as lichen sclerosis. I surely have not been cured of that. I do not believe there is a cure. I go from one flare to another very rapidly. I use Halobetasol and a compounded numbing ointment. Prior to that, I used Lidocaine/Prilocaine to numb. My scalp does burn and I use Head and Shoulders shampoo. My dermatologist just said I had flaky scalp. Nothing really helps that, but my PCP recommended 20 mg. of Amitriptyline at night. He was hoping it would help both areas. I suppose it could be worse, but sitting can be very painful. Sometimes I sit on an ice pack. If I were you, I would drop eating any mushrooms. I wonder if there is any connection between lichen planus and lichen sclerosis. I will have to look into that. I am sure you are as tired as I am of looking for help. Onward and upward! @joybringer1

@rashida I just posted @johnbishop about toothpaste. We both use Arm and Hammer. It's excellent for my use, with Lichen Planus.

@joybringer1 Oh gosh, life can be cruel! I'm so sorry you have all that pain and trouble.
I've had scalp issues too, likely from my GCA. Selsun Blue was recommended by my doc, which didn't work. I've tried so many different shampoos and conditioners, I gave away a whole box of them that I was allergic to, to a friend. I finally showed up at our local Healthyway Foods and talked to a very knowledgeable staff member. She recommended Curelle products (Canada), and I've been using the shampoo, conditioner, build-up remover treatment (helps to remove sebum, etc.), even styling gel, which I haven't been able to use for years due to allergy. Although other products I tried "said" they were "natural", these products are pure, and they work. No more itchy scalp, pain, etc.! I urge you to check with your local health food store! Good luck! Laurie

@joybringer oh, what could be worse than what you’re going through! My heart goes out to you because I know the agony of searching for the right treatment! It took me almost ten years before I found a solution so I understand what you’re going through! Are you in Canada, or in the States?

@artist01 I intend on checking checking out Arm & Hammer too - I have a feeling it might be the more affordable one for me (based on my observation that Arm & Hammer baking sofa itself is quite affordable, lol).

Help! Anyone with this version of OLP? I had OLP 6 years ago. Never went away, evolved into the following: scalloped design all around the perimeter of my tongue / lip somewhat misshapen on one side / Now it impairs my speech and people are constantly asking "what was that?" AS a teacher, this has begun to interfere with my job. Any experience with this? I;ve been to many doctors in high-level institutions. No luck.

@rashida Yes, Arm and Hammer toothpaste is very affordable. Under $4.00!