Hearing Loss: Come introduce yourself and connect with others

Welcome to the Hearing Loss group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with hearing loss, and friends and family supporters. Whether you were born deaf or hard of hearing, experienced hearing loss after birth or with aging, it helps to connect with others. Together we can learn from each other, support one another and share stories about living with hearing loss, coping with challenges and celebrating milestones.

Let’s chat. Why not start by introducing yourself? What is your hearing loss experience? Got a question, tip or story to share?

Interested in more discussions like this? Go to the Hearing Loss Support Group.

@rosemarya

@mostcheg, Good Morning, and Welcome to Mayo Clinic Connect. I am happy to meet you, and that you have shared your experience with hearing loss. My husband wears hearing aids and when one of his is out for repair, he also struggles with having to get by without it, even though his hearing loss is not severe.
Is your processor being repaired?

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@rosemaya, Hello, yes my processor is in the process of getting repaired. I have two processor , my audiologist programmed, the one I am wearing at present time after I had problems. I am not sure if every one with CI get two processors, I was given a bag with supplies and extra processor after I had my surgery.

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@contentandwell

@mostcheg. I have been wearing HAs for about 15 years now, and my hearing loss has progressed to fairly severe so I am thinking more and more that I may have to consider a CI. When you have a CI, do you always have two processors so if one is not working you have a spare? I am completely uniformed about CIs.
Thanks.
JK

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@contentanwell, I got a bag full of hearing supplies and an extra processor after my surgery, I do not a standard practice for all CI.

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For past 5 years, I have worn Lyrics in both ears. My. ght right ear “outgrew “ the capability of the Lyric . I was evaluated and then approved for the CI which was performed on January 8 2019.
The first week I developed an infection with the ear becoming hot and quite swollen and painful. After a week and a half and three different antibiotics, it responded and began healing.
Unfortunately , during the 5th week , I developed severe Vertigo and was literally sick for 2 weeks....I had Vertigo three years ago. The diagnosis was no crystal probllem

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@jetrel, I am sorry to hear about the vertigo. I had it for six months after my surgery, but it went away gradually. It is very difficult to move around with it.

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@jetreal

For past 5 years, I have worn Lyrics in both ears. My. ght right ear “outgrew “ the capability of the Lyric . I was evaluated and then approved for the CI which was performed on January 8 2019.
The first week I developed an infection with the ear becoming hot and quite swollen and painful. After a week and a half and three different antibiotics, it responded and began healing.
Unfortunately , during the 5th week , I developed severe Vertigo and was literally sick for 2 weeks....I had Vertigo three years ago. The diagnosis was no crystal probllem

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@jetreal I am sorry also to hear about your vertigo, it sounds as if it really complicates things for a person. Is it due to the CI? So yours was not thought to be from crystals in your ear? What did they feel caused it, I presume not everyone who gets a CI has vertigo afterward. I am particularly interested, wondering if I am quickly getting to the point of needing a CI.
JK

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Hello I am.new to this group. My only real health issue at nearly 80 is hearing loss so could be worse but as others find it is isolating mainly because the technology does not get you back to 20/20 to use a sight analogy. For the first five years of having hearing aids when the audiologist said my need was marginal I thought wearing them was more trouble than it was worth so wore them little. Fast forward to a year ago when word recognition in one ear had fallen by 40% I really need them to function even with a one on one conversation. These Oticon aids are maybe getting on for 7 years old now but the audiologist 6 months ago said they were still fine. Since then I went to an HLLA meeting when someone talked about the advisability of doing a Real Ear Measurement (REM) when fitting aids. I gather my audiologist now does this so perhaps that will improve matters but realistically I think with increasing age my hearing will get worse but I am very active and healthy so appreciate that.and maybe there will be some way of regenerating the auditory nerve which seems to be the culprit in the future! I am.glad I found this group through the HLLA.

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@mahnrut

Hello I am.new to this group. My only real health issue at nearly 80 is hearing loss so could be worse but as others find it is isolating mainly because the technology does not get you back to 20/20 to use a sight analogy. For the first five years of having hearing aids when the audiologist said my need was marginal I thought wearing them was more trouble than it was worth so wore them little. Fast forward to a year ago when word recognition in one ear had fallen by 40% I really need them to function even with a one on one conversation. These Oticon aids are maybe getting on for 7 years old now but the audiologist 6 months ago said they were still fine. Since then I went to an HLLA meeting when someone talked about the advisability of doing a Real Ear Measurement (REM) when fitting aids. I gather my audiologist now does this so perhaps that will improve matters but realistically I think with increasing age my hearing will get worse but I am very active and healthy so appreciate that.and maybe there will be some way of regenerating the auditory nerve which seems to be the culprit in the future! I am.glad I found this group through the HLLA.

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@mahnrut If you think you may get new hearing aids, wait just a tiny bit longer. I have Oticon Opn1 hearing aids that were a fairly new model when I got them, a bit over two years ago. They were supposed to be a big improvement on clarity for people who had problems with that, and I am one of them. They were better than my previous hearing aids for that function.
They are coming out with a new one though, Opn S, which is supposed to be a 15% improvement on clarity. Since these are not yet even two and half years old, and the cost of hearing aids is so high, I won't be getting new ones yet. I sure wish I could though. If you can wait more than just a tiny bit, I would wait even longer until the audiologists get some experience with this new model. I was one of the first people who my audiologist prescribed the Opn1 for and it was a learning curve for both of us.

I am part of a group on Facebook that is for people with Oticon hearing aids. It's a private group but you can request to be in it, and I don't think they turn anyone down unless they feel it is someone trying to sell something. It is run by people who wear these hearing aids, not professionals, but I guess Oticon is allowed to post there which is how I discovered that they were coming out with a new HA.
JK

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My name is Kathy. I have hearing loss in both ears. Have worn aids for about 30 years. Recently i was told i was a good candidate for cochlear implants. I am 65 I am going to try the full mold aids first.

Without my aids in i am deaf. Which is scary.

My question is can anyone help me understand why aids are not covered insurance?

Thank you so much

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@angus

My name is Kathy. I have hearing loss in both ears. Have worn aids for about 30 years. Recently i was told i was a good candidate for cochlear implants. I am 65 I am going to try the full mold aids first.

Without my aids in i am deaf. Which is scary.

My question is can anyone help me understand why aids are not covered insurance?

Thank you so much

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HA's are considered a "quality of life" issue and not a medical necessity. No, I do not agree with that but that is the excuse we get. My real theory is that it would bankrupt the system, especially Medicare, if they covered HA's because so many people need them.

As for Cochlear Implants, GO FOR IT!! My CI's are the best thing I have ever done for myself. HA's just do not compare. The short of it is that HA"s just amplify sound where CI's use your ear structure to produce sound the way it is supposed to be made. CI's have given me my life back.

Also, CI's are covered under insurance 🙂

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Thank you so much for the information. This helps me so much

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