Hearing Loss: Come introduce yourself and connect with others

Welcome to the Hearing Loss group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with hearing loss, and friends and family supporters. Whether you were born deaf or hard of hearing, experienced hearing loss after birth or with aging, it helps to connect with others. Together we can learn from each other, support one another and share stories about living with hearing loss, coping with challenges and celebrating milestones.

Let’s chat. Why not start by introducing yourself? What is your hearing loss experience? Got a question, tip or story to share?

Hi, my hearing loss was detected in 1991, about 8 months after my first child was born, during a routine hearing test at work (with the soundproof booth). I began wearing a HA in my left ear in 1998 and in my right ear in 2003. By 2016 my hearing with the HAs had gotten to the point of making phone calls very difficult. Fall 2016 I qualified for a CI in my left ear and had it done in Jan 2017. We thought my right ear would still be ok with a HA for a few years, but apparently it got jealous that the worse ear was now hearing better than it, so it had a rapid decline and I got a CI in it in June 2018. I'm doing very well with the CIs.

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I experienced sudden sensorineural hearing loss (SSHL) about 8 years ago and have nearly profound hearing loss in one ear but normal hearing in the other ear. I wear a bone anchored hearing aid, which helps but certainly doesn't give me "normal" hearing capacity. I really joined this group because I am incidentally working on a project about hearing health in older adults (hearing loss typically associated with aging) and wanted to learn more about what people experiencing that are feeling, do, etc. It is just a side perk that I may hear something that is personally applicable, but maybe I will also have something to offer to someone newly diagnosed with SSHL.

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@merpreb

Colleen- Thank you for my invitation.
Good morning all. I am a mentor on Connect. You can find me in the Lung Cancer and anxiety and depression group. I am married to a man who has terrible hearing- well what's left of it after gunfire damage. He has had surgeries but that there are injuries that can not be fixed. Up until his present set of hearing aids I have had to adjust my voice to his loss. This has happened over a period of almost 40 years. For years he denied his problem then he refused to get hearing aids. And NOW I have to adjust the voice that I made for him back to what it was and softer because my voice is too loud for him and hurts his ears. So I am coming from a different view point- lol. It's extremely frustrating to all of a sudden have to modulate my voice- any suggestions? Just this minute I was told to stop yelling- well my voice was raised because I didn't know if he had his hearing aids in or not. grrr. My voice was loud yes, but I wasn't yelling! lol. Can you tell my frustration?
Does anyone have any suggestions on how this can be resolved?

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Hi Merry, Your situation is a little different than mine: I had sudden hearing loss in one ear (which makes it surprisingly difficult to understand people) but wanted to encourage you re: your relationship. This does put a strain on relationships, both with spouse and others. Sometimes it's exhausting and I just want to "tune out" so to speak, but I know that isn't the right thing, either. My husband happened to meet someone else who had the same situation as me, and (you know how it goes, sometimes you just hear it better from a neutral party) after a long conversation with that person, he has been more understanding towards me. Or maybe I didn't verbalize it well. But maybe your talking with others will help you – and maybe him, too – understand better and not let it negatively impact your relationship. It is hard for both of you. I thin you just have to re-learn how to talk to him (volume), but if any consolation I guess it is also not easy to re-learn to "hear" with hearing aids. However if he puts them in/out at unexpected times, then he will need to own letting you know that 🙂 And you can let him know that you are not "yelling," you are talking loudly… different connotation! Good luck!

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@ciblue

Hi, my hearing loss was detected in 1991, about 8 months after my first child was born, during a routine hearing test at work (with the soundproof booth). I began wearing a HA in my left ear in 1998 and in my right ear in 2003. By 2016 my hearing with the HAs had gotten to the point of making phone calls very difficult. Fall 2016 I qualified for a CI in my left ear and had it done in Jan 2017. We thought my right ear would still be ok with a HA for a few years, but apparently it got jealous that the worse ear was now hearing better than it, so it had a rapid decline and I got a CI in it in June 2018. I'm doing very well with the CIs.

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@ciblue That is wonderful they both are good now My R. Ear is worse then my left I wear H A in both but have had ,still do have TINNITUS Do you have TINNITUS or did you ?

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Hello! I am Mary Anne and I suffered Sudden Hearing Loss in my left ear about 20 years ago. The loss was moderate and the hearing I had in my right ear compensated. About 3 years ago, with decrease hearing in my right ear, I got hearing aids. This past February I suffered Sudden Hearing Loss in my right ear. I now have bilateral hearing loss that is moderate to severe. The tinnitus in my right ear is awful. I am trying to cope with this new reality.

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@mamanring

Hello! I am Mary Anne and I suffered Sudden Hearing Loss in my left ear about 20 years ago. The loss was moderate and the hearing I had in my right ear compensated. About 3 years ago, with decrease hearing in my right ear, I got hearing aids. This past February I suffered Sudden Hearing Loss in my right ear. I now have bilateral hearing loss that is moderate to severe. The tinnitus in my right ear is awful. I am trying to cope with this new reality.

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@mamanring Sorry you have lost your hearing I have had TINNITUS seems like forever I use a h.a. in my R.ear only so far my L ear is o.k.

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@lioness

@ciblue That is wonderful they both are good now My R. Ear is worse then my left I wear H A in both but have had ,still do have TINNITUS Do you have TINNITUS or did you ?

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My tinnitus has never been bad. I still have it, but rarely notice it, especially when I'm wearing my CI processors.

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@ciblue

My tinnitus has never been bad. I still have it, but rarely notice it, especially when I'm wearing my CI processors.

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@ciblue Mine hasn't been bad when I'm busy I don't notice but it's when I'm quiet at night sometimes it's so loud I can't stand it but wearing h.a. help I think .

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Hi, I am Bonnie and experienced sudden sensorineural hearing loss (SSHL) about 9 weeks ago. My loss went from mild at high frequencies to moderate-severe (around 60 db) for all frequencies past 1000 Hz. I have tinnitus – and that is my main issue. I have a good Right ear — so I could probably compensate ok (still have ~70% of word understanding at 40 db) if it weren't for the tinnitus. My ENT said I could wait 3 months before getting a hearing aid, but seriously, the tinnitus is so bad that, forgive me, I am not sure I can live with it forever. Any suggestions/experiences with which aids help with tinnitus? Does anyone here have the new Phontac titanium B?

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@bonnieinarizona

Hi, I am Bonnie and experienced sudden sensorineural hearing loss (SSHL) about 9 weeks ago. My loss went from mild at high frequencies to moderate-severe (around 60 db) for all frequencies past 1000 Hz. I have tinnitus – and that is my main issue. I have a good Right ear — so I could probably compensate ok (still have ~70% of word understanding at 40 db) if it weren't for the tinnitus. My ENT said I could wait 3 months before getting a hearing aid, but seriously, the tinnitus is so bad that, forgive me, I am not sure I can live with it forever. Any suggestions/experiences with which aids help with tinnitus? Does anyone here have the new Phontac titanium B?

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My tinnitus is mild so I drink Distilled water when it happens. And avoid salt.

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@bonnieinarizona

Hi, I am Bonnie and experienced sudden sensorineural hearing loss (SSHL) about 9 weeks ago. My loss went from mild at high frequencies to moderate-severe (around 60 db) for all frequencies past 1000 Hz. I have tinnitus – and that is my main issue. I have a good Right ear — so I could probably compensate ok (still have ~70% of word understanding at 40 db) if it weren't for the tinnitus. My ENT said I could wait 3 months before getting a hearing aid, but seriously, the tinnitus is so bad that, forgive me, I am not sure I can live with it forever. Any suggestions/experiences with which aids help with tinnitus? Does anyone here have the new Phontac titanium B?

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@bonnieinarizona Welcome Bonnie we here aren't Dr,s but can help with our experience. I've had tinnitus all my life but when I'm busy don't notice it About 4 yes ago I did get h.a. my R.ear is worse then left Seems like those that have h.a.have tinnitus also. I have Phonax h.a.they go behind your ear I think they have quieted my TINNITUS down but ENT Dr just told me there is no cure Good luck

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@lioness

@bonnieinarizona Welcome Bonnie we here aren't Dr,s but can help with our experience. I've had tinnitus all my life but when I'm busy don't notice it About 4 yes ago I did get h.a. my R.ear is worse then left Seems like those that have h.a.have tinnitus also. I have Phonax h.a.they go behind your ear I think they have quieted my TINNITUS down but ENT Dr just told me there is no cure Good luck

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thank you for your reply. Many people with sudden sensorineural hearing loss have tinnitus that is the same frequency as our hearing loss – the brain recognizes that there is a breakdown in the "circuitry" and trying to signal the inner ear (I am a scientist :)). I am seeing a hearing aid person today — so I will report back what she says about the latest technology, I know there are several hearing aids that have implemented some sort of functionality that they say helps with tinnitus.

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@bonnieinarizona

thank you for your reply. Many people with sudden sensorineural hearing loss have tinnitus that is the same frequency as our hearing loss – the brain recognizes that there is a breakdown in the "circuitry" and trying to signal the inner ear (I am a scientist :)). I am seeing a hearing aid person today — so I will report back what she says about the latest technology, I know there are several hearing aids that have implemented some sort of functionality that they say helps with tinnitus.

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bonnieinarizona Thank so much I will appreciate anything you can find out

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Hi There! My 7 year old son has mild hearing loss. I'm having a hard time finding folks in a similar situation to bounce ideas off of. Is there a group you all would refer me to? Thank you!

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@nicolet

Hi There! My 7 year old son has mild hearing loss. I'm having a hard time finding folks in a similar situation to bounce ideas off of. Is there a group you all would refer me to? Thank you!

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@nicolet, the AG Bell Foundation is an excellent place for information about families and children with hearing loss. https://www.agbell.org/.

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