Hearing Loss: Come introduce yourself and connect with others

Welcome to the Hearing Loss group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with hearing loss, and friends and family supporters. Whether you were born deaf or hard of hearing, experienced hearing loss after birth or with aging, it helps to connect with others. Together we can learn from each other, support one another and share stories about living with hearing loss, coping with challenges and celebrating milestones.

Let’s chat. Why not start by introducing yourself? What is your hearing loss experience? Got a question, tip or story to share?

@jfobes

JK I had a miserable experience with a new to me ENT. After spending the $575 to the have the mandatory hearing test to gain access to the ENT. His highly educated diagnoses "you have bad ears, some people are born with bad knees you got bad ears" He did not listen to any of my concerns nor address any of my questions. I have filed a complaint with provider and am waiting to hear back from them. Oh and indecently about 10 days before my appointment I pretty much lost my left ear! I can only hear treble no bass or low tones at all!!! He had no idea why that would be, and of course my ears looked "perfect" and according to the testing my e tubes are working perfectly normal. I asked why do my ear feel plugged and voices sound muffled? "you got bad ears"

This is so frustrating! I'm left handed thus use my left ear for the phone. I can't hear anyone in that ear and switching is proving to be quite challenging to say the least!!!!!!

I may follow up with the University of Wisconsin medical school for advice. I am waiting to hear back from the friend of a friend that is currently in school to become an audiologist. Hope he can mention my condition to an educator and if nothing else raise an eyebrow?

FYI – the chewing gum made my jaw sore from chewing, did nothing for my ears!

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I feel your pain as it's similar to experiences I had many years ago. I was given no hope for help of any kind for the adult onset hearing loss I had been diagnosed with in my 20s. "Bad ears; learn to live with it." If you live in Wisconsin, as your post suggests, I encourage you to get in touch with one of the HLAA chapters in that state. There are active chapters in Appleton/Fox Valley, Madison and Milwaukee. I believe chapters are starting to develop in southwestern Wisconsin and in Door County. People who participate in HLAA will share information about their experiences. They don't promote products or providers, but they can certainly share their positive (and negative) experiences with them. It really helps to talk to other people with hearing loss in an open forum. Check out the HLAA-Wisconsin website at hlaawi.org HLAA-WI is holding a state conference next fall that might interest you. Regardless, don't take this kind of treatment as 'the answer'. There is help for poor hearing and 'bad ears'. You deserve to find a provider, ENT, Audiologist, etc. who will work with you to find it. There are many excellent providers in Wisconsin.

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@sharieberts

Hi everyone! My name is Shari and I have a genetic adult-onset moderate hearing loss in both ears. I write a weekly blog about my ups and down living with hearing loss and share tips for living your best life despite the challenges of hearing loss. Please check it out if you are interested. http://www.livingwithhearingloss.com. I am also on the board of HLAA and a member of the NYC chapter. Thanks to Mayo/Ida/HLAA for providing this forum.

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@sharieberts Thanks for sharing this, Sharie. It's really excellent. I sent the link to my husband and kids, hopefully they will understand what I am going through a little bit better. My husband seems to be the one who just cannot learn to accommodate my problem. He speaks in a low voice and almost every time he says anything I have to ask him to repeat it. It's so frustrating, and tiring. My kids are better about it, thankfully. Sometimes with my husband I just don't bother asking him to repeat, hoping it's not anything important.
JK

Liked by lioness, capausz

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@gingerw @contentandwell @hopeful33250 I went to ear Dr the ear exercises he gave me worked No more dizziness or balance problems So that I'd one down now May 1new rheumatologist I @parus. Didn't have to use the barbells haha

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@lioness

@gingerw @contentandwell @hopeful33250 I went to ear Dr the ear exercises he gave me worked No more dizziness or balance problems So that I'd one down now May 1new rheumatologist I @parus. Didn't have to use the barbells haha

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@lioness That's great! Vertigo generally does go away after a while but it can recur too so be aware of that. My daughter has brief episodes of it recurring. My sister does not.
JK

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@contentandwell Thanks I,I'm remember that It it does Dr told me to see if I need to do the exercises

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Colleen- Thank you for my invitation.
Good morning all. I am a mentor on Connect. You can find me in the Lung Cancer and anxiety and depression group. I am married to a man who has terrible hearing- well what's left of it after gunfire damage. He has had surgeries but that there are injuries that can not be fixed. Up until his present set of hearing aids I have had to adjust my voice to his loss. This has happened over a period of almost 40 years. For years he denied his problem then he refused to get hearing aids. And NOW I have to adjust the voice that I made for him back to what it was and softer because my voice is too loud for him and hurts his ears. So I am coming from a different view point- lol. It's extremely frustrating to all of a sudden have to modulate my voice- any suggestions? Just this minute I was told to stop yelling- well my voice was raised because I didn't know if he had his hearing aids in or not. grrr. My voice was loud yes, but I wasn't yelling! lol. Can you tell my frustration?
Does anyone have any suggestions on how this can be resolved?

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@merpreb

Colleen- Thank you for my invitation.
Good morning all. I am a mentor on Connect. You can find me in the Lung Cancer and anxiety and depression group. I am married to a man who has terrible hearing- well what's left of it after gunfire damage. He has had surgeries but that there are injuries that can not be fixed. Up until his present set of hearing aids I have had to adjust my voice to his loss. This has happened over a period of almost 40 years. For years he denied his problem then he refused to get hearing aids. And NOW I have to adjust the voice that I made for him back to what it was and softer because my voice is too loud for him and hurts his ears. So I am coming from a different view point- lol. It's extremely frustrating to all of a sudden have to modulate my voice- any suggestions? Just this minute I was told to stop yelling- well my voice was raised because I didn't know if he had his hearing aids in or not. grrr. My voice was loud yes, but I wasn't yelling! lol. Can you tell my frustration?
Does anyone have any suggestions on how this can be resolved?

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@merpreb I don't know but have a suggestion Go into the bathroom close door start talking to yourself as sound hurts your ears conciously talk softer to yourself just thinking maybe will help don't know good luck

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@lioness– I might not have been clear. It's not my ears that hurt it's Dave's. I'll have to bring him in with me. :)))

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@merpreb

@lioness– I might not have been clear. It's not my ears that hurt it's Dave's. I'll have to bring him in with me. :)))

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@merprep I misunderstood I thought you wanted to tone down your voice Good idea both go in I don't want to be around though lol

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@lioness– Yes, I do but I will need him because I wont be able to tell if my voice is that soft. LOL

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@merpreb Might work Merry

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@merpreb

Colleen- Thank you for my invitation.
Good morning all. I am a mentor on Connect. You can find me in the Lung Cancer and anxiety and depression group. I am married to a man who has terrible hearing- well what's left of it after gunfire damage. He has had surgeries but that there are injuries that can not be fixed. Up until his present set of hearing aids I have had to adjust my voice to his loss. This has happened over a period of almost 40 years. For years he denied his problem then he refused to get hearing aids. And NOW I have to adjust the voice that I made for him back to what it was and softer because my voice is too loud for him and hurts his ears. So I am coming from a different view point- lol. It's extremely frustrating to all of a sudden have to modulate my voice- any suggestions? Just this minute I was told to stop yelling- well my voice was raised because I didn't know if he had his hearing aids in or not. grrr. My voice was loud yes, but I wasn't yelling! lol. Can you tell my frustration?
Does anyone have any suggestions on how this can be resolved?

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@merpreb Merry, I think this is a problem that time will solve as you find the level that he needs to be able to hear you without feeling like you are shouting to him. It must be tough though to have gotten used to speaking in a loud voice for years to now have to tone it down. Also, louder is not always better. Sometimes it's the clarity. That is my problem frequently but if I don't understand my husband he shouts. I feel like he is always shouting at me.
JK

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@contentandwell– awww. I feel like I'm either too loud or not loud enough and get these not so pleasant looks and then a "I can't hear you" or he ducks his head and says, "Lower your voice, you're yelling." He's got the head lowering down to a science to show me the pain that I have caused him.
I understand the clarity part- good point. He has the most expensive hearing aids. There still is a long way for those to go.

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@merpreb

@contentandwell– awww. I feel like I'm either too loud or not loud enough and get these not so pleasant looks and then a "I can't hear you" or he ducks his head and says, "Lower your voice, you're yelling." He's got the head lowering down to a science to show me the pain that I have caused him.
I understand the clarity part- good point. He has the most expensive hearing aids. There still is a long way for those to go.

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@merpreb I have the most expensive also, they were supposed to be the latest improvement for clarity. Hearing aids can only do so much though, it's not like correcting vision with eyeglasses.
JK

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Hello I am new to the group, I encountered my hearing loss do to and illness 4yrs ago, I was diagnose with sepsis(bacteria in the blood) was treated with an strong antibiotic(vanamyacin)which took my hearing that was the trade off, was given 48 hrs. to live, thanks to that antibiotic but did not know I would be affected. I am so thankful that I am hear to share my story. Left ear 48 right 80 and with this tinitis, I wear HA. My first experience with ha which i purchased through the audiologist were I feel was not what I was looking for with the money I invested and they lasted 2 1/2 yrs I vowed to myself I was going to find a place, so I was all on Amazon buying these HA items all they seemed to do was amplfy so I found a place where I could pay less and get the results I wanted, BBB rated them A+ so gave them a try bought a cheap pair think it was $400 didn't like them wasn't what I wanted returned got another pair $600 didn't like these either so I upgraded
and got the better quality I love them,$1000.00 for the pair, the clarity, channels, the volume you control were as your hubby maybe watching a show with you and to you it's loud or too low you can control it for your liking without disturbing him, I have had them for a 1yr 1/2 I just love them and the company are very caring .

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