1. < Hearing Loss
Moderator

Hearing Loss: Come introduce yourself and connect with others

Posted by Colleen Young, Connect Director @colleenyoung, Feb 5, 2019

Welcome to the Hearing Loss group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with hearing loss, and friends and family supporters. Whether you were born deaf or hard of hearing, experienced hearing loss after birth or with aging, it helps to connect with others. Together we can learn from each other, support one another and share stories about living with hearing loss, coping with challenges and celebrating milestones.

Let’s chat. Why not start by introducing yourself? What is your hearing loss experience? Got a question, tip or story to share?

Interested in more discussions like this? Go to the Hearing Loss Support Group.

katherinebouton | @katherinebouton | Mar 13, 2019
In reply to @salledell "Hi. This is Sylvia. I experienced hearing loss in my left ear in my 50’s. Shortly..." + (show)
@salledell

Hi. This is Sylvia. I experienced hearing loss in my left ear in my 50’s. Shortly after, I developed Ménière’s disease and have very little hearing in that ear.
I wear hearing aids in both ears and am fine with face to face conversation, but have trouble distinguishing words in a large room like a gym or swimming pool. This makes it difficult to follow instructions in exercise classes. I’m thinking possibly cochlear implants might help. Does anyone have experience with a cochlear implant?

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I have a cochlear implant, which helps me tremendously. But the device that helps in exercise class is a clip on mini-mic that works with my hearing aid. The teacher clips it to her shirt and I change the setting on my phone so it acts as a receiver. The teacher's voice goes right into my ear. After 15 years of semi-managing in exercise (pilates) class by following what others are doing I can finally hear the teacher. What a difference!

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katherinebouton | @katherinebouton | Mar 13, 2019
In reply to @contentandwell "@asklar02492 It is unfortunate that there are no HLAA chapters closer to me. Could I benefit..." + (show)
@contentandwell

@asklar02492 It is unfortunate that there are no HLAA chapters closer to me. Could I benefit from their website, as in do they have blogs they send out to people like CHC does? CHC's emails are generally notifications of special events but sometimes they do have very interesting and helpful ones also.

Regarding replies, if on your reply you include the @ sign followed by the person's connect name -- for me contentandwell -- that person will be notified in their email that there is a response to them. That can help when time is limited and the emails are voluminous.
JK

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@asklar02492, The HLAA website is full of helpful information. HLAA also offers webinars on particular subjects. Convention, this year in Rochester, is a great way to connect with others with hearing loss. You can find a link to the Convention (early June) on the HLAA website. You can also find a list of chapters on the site.
There are quite a few blogs on hearing loss, including mine: "Hearing Aids, Hearing Loss, Hearing Help", Shari Eberts' Living With Hearing Loss, and Gael Hannan's The Better Hearing Consumer. All are easy to subscribe to, but you'll have to look them up because the site won't let me give you website addresses.

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1 reply
mostcheg | @mostcheg | Mar 13, 2019

Hello, I am Mirna, I experienced hearing loss when I was 47 years old. My hearing loss progressed very quickly I had 20 % of hearing loss on left ear and I had almost no hearing on my right ear . I had a cochlea implant two year ago on my right ear and I wear a hearing aid on left. I had some problems with my processor last week and at this time I am using my spare processor and it is not working as good. I am hearing a lot background noise and the sound is not as great as before when the processor was working great.

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3 replies
asklar02492 | @asklar02492 | Mar 14, 2019

@katherinebouton
Thanks for the tip on blogs - I'll check them out as soon as I can find a spare minute.

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Mentor
Rosemary, Volunteer Mentor | @rosemarya | Mar 14, 2019
In reply to @mostcheg "Hello, I am Mirna, I experienced hearing loss when I was 47 years old. My hearing..." + (show)
@mostcheg

Hello, I am Mirna, I experienced hearing loss when I was 47 years old. My hearing loss progressed very quickly I had 20 % of hearing loss on left ear and I had almost no hearing on my right ear . I had a cochlea implant two year ago on my right ear and I wear a hearing aid on left. I had some problems with my processor last week and at this time I am using my spare processor and it is not working as good. I am hearing a lot background noise and the sound is not as great as before when the processor was working great.

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@mostcheg, Good Morning, and Welcome to Mayo Clinic Connect. I am happy to meet you, and that you have shared your experience with hearing loss. My husband wears hearing aids and when one of his is out for repair, he also struggles with having to get by without it, even though his hearing loss is not severe.
Is your processor being repaired?

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1 reply
Debbie5169 | @debbiefili | Mar 14, 2019
In reply to @mostcheg "Hello, I am Mirna, I experienced hearing loss when I was 47 years old. My hearing..." + (show)
@mostcheg

Hello, I am Mirna, I experienced hearing loss when I was 47 years old. My hearing loss progressed very quickly I had 20 % of hearing loss on left ear and I had almost no hearing on my right ear . I had a cochlea implant two year ago on my right ear and I wear a hearing aid on left. I had some problems with my processor last week and at this time I am using my spare processor and it is not working as good. I am hearing a lot background noise and the sound is not as great as before when the processor was working great.

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Hi I got my CI last summer. I did ask my audiologist what to do when something goes wrong. I was told I should contact the maker of my processor. I would be given instructions on how to send it back to them. In the meantime I was to use my backup processor. The maker of my processor will overnight a new processor to my audiologist and she will program it. I then go to her to pick it up. My processor is Cochlear so I can’t be sure of other companies

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mostcheg | @mostcheg | Mar 14, 2019

Debbie, than you for the information. The processor that was not working is in the mail to manufacturing, Mirna

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JK | @contentandwell | Mar 14, 2019
In reply to @mostcheg "Hello, I am Mirna, I experienced hearing loss when I was 47 years old. My hearing..." + (show)
@mostcheg

Hello, I am Mirna, I experienced hearing loss when I was 47 years old. My hearing loss progressed very quickly I had 20 % of hearing loss on left ear and I had almost no hearing on my right ear . I had a cochlea implant two year ago on my right ear and I wear a hearing aid on left. I had some problems with my processor last week and at this time I am using my spare processor and it is not working as good. I am hearing a lot background noise and the sound is not as great as before when the processor was working great.

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@mostcheg. I have been wearing HAs for about 15 years now, and my hearing loss has progressed to fairly severe so I am thinking more and more that I may have to consider a CI. When you have a CI, do you always have two processors so if one is not working you have a spare? I am completely uniformed about CIs.
Thanks.
JK

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1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | Mar 14, 2019
In reply to @katherinebouton "@asklar02492, The HLAA website is full of helpful information. HLAA also offers webinars on particular subjects...." + (show)
@katherinebouton

@asklar02492, The HLAA website is full of helpful information. HLAA also offers webinars on particular subjects. Convention, this year in Rochester, is a great way to connect with others with hearing loss. You can find a link to the Convention (early June) on the HLAA website. You can also find a list of chapters on the site.
There are quite a few blogs on hearing loss, including mine: "Hearing Aids, Hearing Loss, Hearing Help", Shari Eberts' Living With Hearing Loss, and Gael Hannan's The Better Hearing Consumer. All are easy to subscribe to, but you'll have to look them up because the site won't let me give you website addresses.

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Hi @katherinebouton, You will be able to add URLs in a few days. There is a brief period where new members can't post links. We do this to deter spammers and keep the community safe. Clearly the links you wanted to post was not spam. Please allow me to post them for you.

- HLAA website https://www.hearingloss.org/
- HLAA Convention (early June) https://www.hearingloss.org/programs-events/convention/
- HLAA New York area chapter meetings: hearinglossnyc.org

Blogs on hearing loss listed by HLAA
- Katherine Bouton www. katherinebouton.com,
- Shari Eberts at http://www.LivingwithHearingLoss.com
- Gael Hannan at https://hearinghealthmatters.org/betterhearingconsumer/

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1 reply
katherinebouton | @katherinebouton | Mar 14, 2019
In reply to @colleenyoung "Hi @katherinebouton, You will be able to add URLs in a few days. There is a..." + (show)
@colleenyoung

Hi @katherinebouton, You will be able to add URLs in a few days. There is a brief period where new members can't post links. We do this to deter spammers and keep the community safe. Clearly the links you wanted to post was not spam. Please allow me to post them for you.

- HLAA website https://www.hearingloss.org/
- HLAA Convention (early June) https://www.hearingloss.org/programs-events/convention/
- HLAA New York area chapter meetings: hearinglossnyc.org

Blogs on hearing loss listed by HLAA
- Katherine Bouton www. katherinebouton.com,
- Shari Eberts at http://www.LivingwithHearingLoss.com
- Gael Hannan at https://hearinghealthmatters.org/betterhearingconsumer/

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Thanks so much!

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