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sue6408 (@sue6408)

C. difficile – Are your guts ever normal again?

Digestive Health | Last Active: Jun 2 6:35pm | Replies (591)

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@bluebanana

I'm suffered for 7 days with what I thought was a bad case of the stomach flu until I went to my family doctor and they requested a stool sample and found from that that I had c-diff I believe this is the sickest I've ever been in my entire life

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Replies to "I'm suffered for 7 days with what I thought was a bad case of the stomach..."

I have just posted VERY LOW FRUCTOSE, LOW FODMAPS, AND GLUTEN FREE RECIPES AND DIET in the Fructose Malabsorption discussion section. This might be a help to the C-Diff group. I had a very severe case of viral food poisoning that left me with fructose malabsorption, etc. Take a look – you might find it helpful.

Could be all you mentioned but also what you ate day before. Helpful to keep food diary of trigger foods

I have had about 3 to 4 bouts a year of Diverticulitis, but the surgeon I saw a couple years ago said pockets weren’t bad enough, in his opinion, to merit removal. My current surgeon said that with bouts so often for a few years meant get it out immediately, which I did.

@sandyabbey @losthope I am so encouraged to hear that you are on Dificid (fidaxamicin). That's the on RX that seems to be working for me. I've done Flagyl first, Vanco second, Vanco taper third & FINALLY Dificid with my 4th bout. I finished Dificid on 10/26 and so far…so good. This is the longest I've gone without a C.diff episode since April when I finished Clindaymycin. I'm fighting a cold now that I hope doesn't turn in to a sinus infection. I was given Clindamycin in April after my 4th sinus infection. There is no way I will take another antibiotic right now when my colon is finally functioning pretty normal. More and more physicians have stopped giving Flagyl for the first Cdiff episode. They are starting with Vancomycin and then going to Dificid earlier in the process. I realize that the cost of Dificid is prohibitive and my insurance didn't approve paying for mine until I had tried other drugs. I have a friend who was given Dificid after her second relapse and she has been free of C.diff for over two years. I, like a few of you here, will do the fecal transplant if I have another relapse. My fingers are crossed and I pray to God that Dificid worked. It's the one drug that ONLY kills the C.diff spores and leaves your good bacteria. Wishing you all a healthy 2019.

I have been through this for 2 years. Praying for it to be over soon

I call it the devil’s antibiotic. I never knew a week’s course of antibiotics could cause so much devastation for so long. It took me three months of diarrhea, losing 20 pounds, two other rounds with other antibiotics and finally following a strict diet to finally see some improvement.

With diverticulitis I always have pain in the left side of the groin area. I’ve had c diff No suggestions as to what it could be. If it keeps on go to the dr. Best of luck. @losthope

I have had both as well.

Prayers 🙏🏻🙏🏻

Its sad that we are forced to pay such high prices for curing C Diff. Especially when the return rate is so high. But like you all that matters is getting well and staying well.

I am praying for you. I am on a Vancomycin taper now after a 3rd relapse. You are not alone!

It is the worst. I too would not wish this on my worst enemy. I only hope it ends soon