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sue6408 (@sue6408)

C. difficile – Are your guts ever normal again?

Digestive Health | Last Active: Jun 2 6:35pm | Replies (591)

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@bluebanana

I'm suffered for 7 days with what I thought was a bad case of the stomach flu until I went to my family doctor and they requested a stool sample and found from that that I had c-diff I believe this is the sickest I've ever been in my entire life

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Replies to "I'm suffered for 7 days with what I thought was a bad case of the stomach..."

I still have days I just feel awful. I just want my life back. Can’t gain weight. Just don’t want another relapse but the doctor says if I don’t have active cdiff he can prescribe dificid. I am just so upset to think I have to get sick to get what will help.

I agree it’s horrible I trust no doctors anymore

From what I've been reading, more and more doctors are no longer prescribing Flagyl for the first episode of Cdiff. They're using Vancomycin. I hope more doctors will prescribe Dificid (fidaxamicin) if there is a relapse. Cliff is so hard on our bodies. And it takes months after an episode for the colon and intestinal tract to get back to normal. And it's not only a physical challenge, but also a mental one. Whenever I have diarrhea, for even ONE day, I fear Cdiff is back and my emotions run rampant. I thought I did everything right, yet I went through FOUR episodes of Cdiff in 2018. And with every episode, my chances of a reoccurrence went higher. I did the bleach, the wipes, the hand washing, you name it. We were very careful and none of my family members were infected. But I also lived with that fear. My heart goes out to all of you who are fighting this battle. It's something I'd never even heard of until I took Clindamycin and a couple weeks later, became so sick. I now feel like a "Cdiff expert." 🙂 I wish you all well in 2019.

It’s my first time on anything for cDiff I’m on it for 14 days total I just want to be able to eat again I’m very limited no gluten dairy can only eat sweet potatoes gluten free toast and crackers and soup and that’s a good day

I have had 3 episodes and finishing Vanco. I take Florastor twice daily and I too am lactose intolerant. I have days when I can eat some foods but if I eat something wrong I know the next day. I feel that my colon can not absorb my food so I empty out the next day. I then have hunger issues and the cycle of disappointment repeats itself. I am glad there are those of you that are fortunate enough to beat this. I hope I will be one soon to the person who has just be diagnosed do the Florastor if you are able and be your own advocate and get the dificid if you can. I have read many of these posts and it seems that is the best treatment. I know it’s expensive but I would pay every dime I have to be healthy again. When I am better I will be addressing the clindamycin issue by writing a detailed letter to the FDA This should not happen to anyone else .. prayers to all fighting this battle🙏🏻

Thanks for the info. I am going to share

Sorry to hear that. My stomach is so sensitive. I don’t like being sick. I am always nervous when j eat anything.

Just a couple days. I know it’s coming back I feel under the weather and going to the bathroom a lot. Everything I eat upsets my stomach. Not sleeping well. It’s a battle. Thanks for asking. How are you doing ?

2 days off of vancomycin and already having symptoms not sure if it’s just my body trying to work the right way

I’m 2 days after vancomycin and already feeling ill this is crazy

I’m in the process of moving from Florida to New Jersey leaving tomorrow for 15 hour ride which means finding new drs I hate this I’m so over it and want desperately to feel normal

I drink a lot and am not dehydrated I just can’t tolerate aloof of foods. I work in healthcare and talk to the dieticians a lot and they seem to think it’s a fiber issue