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C. difficile – Are your guts ever normal again?

Digestive Health | Last Active: Jul 15 5:56pm | Replies (646)

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@bluebanana

I'm suffered for 7 days with what I thought was a bad case of the stomach flu until I went to my family doctor and they requested a stool sample and found from that that I had c-diff I believe this is the sickest I've ever been in my entire life

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Replies to "I'm suffered for 7 days with what I thought was a bad case of the stomach..."

Just a couple days. I know it’s coming back I feel under the weather and going to the bathroom a lot. Everything I eat upsets my stomach. Not sleeping well. It’s a battle. Thanks for asking. How are you doing ?

Sorry to hear that. My stomach is so sensitive. I don’t like being sick. I am always nervous when j eat anything.

Thanks for the info. I am going to share

I have had 3 episodes and finishing Vanco. I take Florastor twice daily and I too am lactose intolerant. I have days when I can eat some foods but if I eat something wrong I know the next day. I feel that my colon can not absorb my food so I empty out the next day. I then have hunger issues and the cycle of disappointment repeats itself. I am glad there are those of you that are fortunate enough to beat this. I hope I will be one soon to the person who has just be diagnosed do the Florastor if you are able and be your own advocate and get the dificid if you can. I have read many of these posts and it seems that is the best treatment. I know it’s expensive but I would pay every dime I have to be healthy again. When I am better I will be addressing the clindamycin issue by writing a detailed letter to the FDA This should not happen to anyone else .. prayers to all fighting this battle🙏🏻

From what I've been reading, more and more doctors are no longer prescribing Flagyl for the first episode of Cdiff. They're using Vancomycin. I hope more doctors will prescribe Dificid (fidaxamicin) if there is a relapse. Cliff is so hard on our bodies. And it takes months after an episode for the colon and intestinal tract to get back to normal. And it's not only a physical challenge, but also a mental one. Whenever I have diarrhea, for even ONE day, I fear Cdiff is back and my emotions run rampant. I thought I did everything right, yet I went through FOUR episodes of Cdiff in 2018. And with every episode, my chances of a reoccurrence went higher. I did the bleach, the wipes, the hand washing, you name it. We were very careful and none of my family members were infected. But I also lived with that fear. My heart goes out to all of you who are fighting this battle. It's something I'd never even heard of until I took Clindamycin and a couple weeks later, became so sick. I now feel like a "Cdiff expert." 🙂 I wish you all well in 2019.

I agree it’s horrible I trust no doctors anymore

I still have days I just feel awful. I just want my life back. Can’t gain weight. Just don’t want another relapse but the doctor says if I don’t have active cdiff he can prescribe dificid. I am just so upset to think I have to get sick to get what will help.

I just started yesterday taking it 3 times a day I have a lot of rumbling going on in my stomach and just feeling I’ll still on the vancomycin so thinking it that can’t wait to be done w this antibiotic

Can I ask how much Florastor you take in a day? I take it twice a day.

I came across this subject and thought I'd pass on some information I learned when my husband had c-diff. I apologize if this has already been discussed. My husband was blind, had terminal cancer, and then contracted a very bad case of c-diff. It was a very difficult time for us, made worse by the high cost of the medication. He needed three separate courses of medication because it wouldn't clear up. Someone mentioned trying a compounding pharmacy and the cost was a small fraction of the other two courses. Hopefully someone else can save considerable money from my experience.