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C. difficile – Are your guts ever normal again?
Does anyone know any body that has recovered from c.diff (guts back to pre-c.diff status ) . I have been negative for a year and still have bloating every time I eat anything and sporadic diarrhea. I need maternity clothing to eat and be comfortable. I have 0 appetite since I was initially infected.I am on creon 36,000 . this helps some what with bloating,I take papya&pineapple enzymes not helping, and floraster 2xday not sure about that.I have tried the FODMAP diet, I avoid many foods on that diet. I am seeing an RD, just finished an elimination diet with her. If I eat I bloat there for I am. Bottom line...are my guts ruined forever ?
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I know many doctors are no longer giving Flagyl for the initial Cdiff. They are going straight to Vancomycin. I wish mine would have done that. And I wish I would have received Dificid after the second bout. I have a friend who was given it after her second bout and she didn't have any further relapses. I didn't take Dificid until my 4th bout.
I finished dificid on Friday the 15th and I'm back to having symptoms..Mainly just going multiple times a day. I have been nauseated, broke out with a rash on my face yesterday, I'm just thinking it is not really gone....Not sure what my next step will be - referral to GI and go from there I guess. So frustrating!!!! I just wonder what it would be like to go through a day and not be sick to stomach!
@pines @losthope My Dr. said Flagyl is no longer recommended. Nor is metroingel (SP??) She said vanco first, then vanco pulse taper, then dificid, but I talked her into skipping the pulse taper and going right to dificid, but I don't think it is gone yet...Not sure what now....
I didn’t do Dificid at all because the copay at the pharmacy was going to be between $1000-1500 for 14 days. I did Flagyl (useless) then Vanco 3x, then FMT.
Well, I survived (barely!) the colonoscopy prep and had the colonoscopy and fmt this morning. I was not able to"hold it" for very long after the procedure. Don't know how much they give you so I can't tell if I lost it all. I guess only time will tell! Will keep you all posted.
@ngorman25 I'm fortunate that Dificid worked for me after Flagyl and two rounds of Vanco failed. But I had decided FMT would be next but I wanted to talk to my GI about doing the FMT in capsule form from Open Biome. The price was $635 and I would even be willing to pay for it if my ins. didn't. Please keep us posted how you're doing. It would be so hard to try to hold it in for any period of time. Hopefully there's enough higher up in your colon that it will "go to battle" on the Cdiff spores.
@pines Well, they gave me one loperamide right before the procedure. Then they gave me another one right after the procedure. However, I don't think loperamide works that fast especially since I was still getting rid of the bowel prep this morning. I think they should have told me to take before I left home. But what do I know?
@ngorman25 I think they put quite a bit up there and some is saline. I lost saline for sure and some of the other. I read that FMT through colonoscopy is the best. Capsules do not work as well. However, we all have to do what we can. Every experience is different! I feel that I am on the road to recovery. Today has been much better! I hope this does it for you!!
@nettecook If you don't mind my asking, what kind of anesthesia did you have? I had propofol but my throat is pretty sore. Don't know why other than being so dried out.. Have been drinking water all day but doesn't seem to make a difference. Was wondering if it was from the propofol.
@nettecook I'm happy to hear that you're doing better today. I sure hope the FMT works for you. I was worried after your comments yesterday. It's nice to have people on here who have been through the procedure. Wishing you well.